With data starting from 1999 and around 500,000 cancer patients being added each year, the population-based cancer registries in each German federal state transfer data to the German Centre for Cancer Registry Data (ZfKD). ZfKD estimates national cancer incidence, prevalence and survival rates after assessing the completeness of the data recorded in the individual registries. The basic method is that the data are first checked for completeness of incidence and of vital status.
The Egypt National Population-based Cancer Registry (NPCR) was established in 2007 and is the only source for cancer incidence in the whole of Egypt. It routinely collects patient data from peripheral population-based registries in the cancer centers of the 5 governorates. Data include patient demographics, primary tumor site, tumor morphology, stage at diagnosis, and follow-up for vital status from over one million patients.
Kantar's latest NHWS, from South Korea and Taiwan, are the latest to be profiled in B.R.I.D.G.E. TO DATA. These databases provide demographic data, disease-specific measures on >165 conditions (including symptoms & comorbidities), patient-reported outcomes (including quality of life), patient attitudes, medication and healthcare resource utilization. The survey aims to collect data to show how patients view their health, their attitudes and behaviors, outcomes and their unmet needs.
The South Australian Cancer Registry (SACR) has been collecting data on cancer incidence and mortality since 1977. Pathology laboratories and health care institutions are required to notify the SACR of any cancer diagnosed at their facility. Approximately 10,000 new cancers are added each year.
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The IBM® MarketScan® Hospital Drug Database provides researchers with inpatient drug utilization data from hospital discharge records since 2002. This database is derived primarily from hospital billing systems from US hospitals. These data allow researchers to evaluate drug use in the inpatient and outpatient settings, including hospital use patterns, switching behavior, combination therapy and patient characteristics.
The Singapore Renal Registry (SRR) started capturing patients with chronic kidney disease stage 5 (CKD5) since 1999. In 2007, the Singapore General Hospital, which contributes about 50% of the new CKD5 cases each year, started to provide the SRR their list of patients with eGFR <15 ml/min/1.73m2. The SRR receives CKD5 case notifications from the public hospitals, dialysis centres, kidney transplant centres and private nephrology clinics.
Launched in October 2015, the Public Health Genomics and Precision Health Knowledge Base (PHGKB) is an online, continuously updated, searchable compendium of databases (including a COVID-19 GPH) containing published scientific literature, CDC resources, and other materials that address the translation of genomics and precision health discoveries into improved health care and disease prevention. Specialized PHGKB are subsets related to specific do
The Singapore Myocardial Infarction Registry (SMIR) and the Singapore Stroke Registry (SSR) are two of several databases managed by the National Registry of Diseases Office (NRDO).
The SACT database is a population-based resource of SACT activity reported routinely by National Health Service (NHS) trusts in England. Data are collected since 2012 on the SACT treatments of adult and paediatric patients, delivered in secondary and tertiary settings with the intention of improving survival, delaying further cancer progression or development and improving disease-free or progression-free survival.