What's new

The Spanish Rare Diseases Patient Registry [Registro Nacional de Enfermedades Raras] is a registry of national scope which collects information on all persons diagnosed with any disease considered to be rare or of low prevalence. The objectives of the registry are to:
- Provide necessary information to contribute to the development of new treatments and to the prevention, diagnosis, prognosis and quality of life of rare disease patients and their families;

CancerMPact® is an international cancer registry that includes published epidemiology studies in the USA, Japan, and Western Europe.  Cancer patient data are obtained from clinician surveys. This resource is composed of web-based integrated modules: Patient Metrics (Patient Metrics – G7, Patient Metrics – China, Patient Metrics – Expanded Markets and Biomarker Analysis) and Treatment Practices and Evolution (Treatment Architecture and Future Trends and Insights).

IQVIA Oncology Dynamics, formerly QuintilesIMS Oncology Dynamics, is a market research tool that has been designed to monitor various cancer treatments and therapies. It segments patients by indication, stage, and line of therapy to provide an understanding of patient pathways, prescribers, products, prescribing initiation and treatment practice patterns.

The full portfolio is a global database comprising patient records spanning nine (9) countries; each country has a separate profile in our resource.

Since 1950, the National Institute for Health and Welfare Finland (THL) Register of Induced Abortions monitors and develops measures to promote the health and well-being of the population of Finland. Among other things, data include information on grounds for abortion - since 1955. Starting 1958, information is available on patient’s marital status, age, number of births and the number of procedures performed in each province.

We were pleased to meet you all and hope you enjoyed your chance to conduct your own database search with B.R.I.D.G.E. TO DATA®. Don’t forget we are offering ISPE members a 10% discount for signing up by September 30, 2017*.

We are pleased to include the Department of Defense (DoD) Military Health Services (MHS) Electronic Health Records Database profile into B.R.I.D.G.E. This database encompasses ~40-50 Million uniformed service members, retirees, and their family members across all states, territories, and regions of the US from 1990 through the present. There are ~10 Million active beneficiaries, and the database population is demographically similar to most US healthcare systems.

 

Our team will be at the 33rd International Conference on Pharmacoepidemiology and Therapeutic Risk Management (ICPE) in Montreal, Canada, August 28-30.  Meet us at booth #18 and say hello. 

Our 284th profile is the Care Register for Health Care, a continuation of the Finnish National Hospital Discharge Register (FHDR). One of the oldest individual level hospital discharge registers covering all of Finland, the Care Register covers data from 1969 to present and has more comprehensive data on the use of services and service users than the original FHDR.

 

There are now 283 profiles listed in our resource! The Maccabi Healthcare Services (MHS) maintains several chronic disease registries that are updated automatically in real time from the central medical record. As of January 2017:

MHS Home Care Registry includes 57,199 members (20,528 active);

MHS Warfarin Treatment Registry includes 42,515 members (26,114 active); and