The Singapore Myocardial Infarction Registry (SMIR) and the Singapore Stroke Registry (SSR) are two of several databases managed by the National Registry of Diseases Office (NRDO).
The SACT database is a population-based resource of SACT activity reported routinely by National Health Service (NHS) trusts in England. Data are collected since 2012 on the SACT treatments of adult and paediatric patients, delivered in secondary and tertiary settings with the intention of improving survival, delaying further cancer progression or development and improving disease-free or progression-free survival.
The Singapore Cancer Registry (SCR), one of the oldest and most established registries, was set up in 1968 to provide information on cancer trends in Singapore. Over the last 50+ years, SCR, a comprehensive, population-based national cancer registry, has collated data on all cancers by histological diagnosis as well as notification by doctors through clinical assessment in Singapore.
VCB is one of the largest multi-center collection facilities of its kind in the world, collecting tissue and blood from donors at 26 public & private hospitals in metropolitan Melbourne. VCB has an open-door policy to public and private investigators or companies that have an ethically approved research project. It is customer-focused with an archival collection of >400,000 biospecimens in various storage formats and can support prospective collections.
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Formerly known as the Longitudinal Study of Young People in England (LSYPE), Next Steps is a longitudinal study which followed a sample of around 16,000 people born in 1989/1990. Participants were interviewed annually for seven waves until they were aged 19/20 in 2010, and then again in Wave 8 at the age of 25. The information collected during Waves 1–7 of the study covered family background and parents’ employment status, young person’s characteristics, attitudes, experiences and behaviours, education and schooling.
The Victorian Cancer Registry was established in 1939. This Registry is the longest running comprehensive cancer registry in Australia and among the oldest continuously operating registries in the world. Currently, about 240 hospitals and 30 pathology laboratories notify the Registry of cancer cases. The Registry folks can work with researchers to recruit patients with cancer for research projects. They support research which fosters improvements and innovations in cancer prevention, clinical practice and cancer service delivery.
The COTA database is sourced from electronic health records (EHR) of contributing academic, for-profit, and community oncologist provider sites and hospital systems. COTA contains detailed demographic, diagnostic, molecular and genomic testing, treatment, and outcome data. As of June 2020, COTA’s database is a geographically and genetically diverse set, comprised of rich longitudinal patient records collected from >40 unique locations across North America.
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