Formerly known as the Longitudinal Study of Young People in England (LSYPE), Next Steps is a longitudinal study which followed a sample of around 16,000 people born in 1989/1990. Participants were interviewed annually for seven waves until they were aged 19/20 in 2010, and then again in Wave 8 at the age of 25. The information collected during Waves 1–7 of the study covered family background and parents’ employment status, young person’s characteristics, attitudes, experiences and behaviours, education and schooling.
The Victorian Cancer Registry was established in 1939. This Registry is the longest running comprehensive cancer registry in Australia and among the oldest continuously operating registries in the world. Currently, about 240 hospitals and 30 pathology laboratories notify the Registry of cancer cases. The Registry folks can work with researchers to recruit patients with cancer for research projects. They support research which fosters improvements and innovations in cancer prevention, clinical practice and cancer service delivery.
The COTA database is sourced from electronic health records (EHR) of contributing academic, for-profit, and community oncologist provider sites and hospital systems. COTA contains detailed demographic, diagnostic, molecular and genomic testing, treatment, and outcome data. As of June 2020, COTA’s database is a geographically and genetically diverse set, comprised of rich longitudinal patient records collected from >40 unique locations across North America.
REMINDER: New subscribers who are ISPE members can avail of a 10% discount if they sign up by October 15, 2020.
With B.R.I.D.G.E. TO DATA you can:
- Search by keyword / criteria
- Compare results
- Save & export search results
- Create database collections
There is a growing interest among epidemiologists to investigate genetic risk factors for disease, alongside other risk factors. We present a case study that demonstrates how B.R.I.D.G.E. TO DATA® (www.bridgetodata.org) supports gene-disease association studies by allowing searching for genetic databases, reviewing data elements, and comparing cohorts for pooling.
The Flatiron Health database is a longitudinal and nationwide database comprised of de-identified patient-level structured and unstructured data from an EHR data source, curated via technology-enabled abstraction. It includes de-identified data from >280 cancer clinics representing more than 2.5 million U.S. cancer patients.
Keep a look out for our latest poster, Data Sources for Studying Genetic Factors of Chronic Obstructive Pulmonary Disease (COPD), to be presented at ICPE 2020 (Sep. 16-17, 2020).
HPHC is a non-profit regional health plan providing medical insurance/administering insurance benefits for >2.7 million members; over 80% of members also have full pharmacy coverage. The HPHC provider network comprises nearly 9,000 primary care providers and 18,000 specialist physicians who practice in a broad range of settings. Enrollment and administrative claims data are available for HPHC members from 2000 to present. Linked electronic medical record data are available for about 13% of the HPHC member population.