Sep 21, 2021: Our 100th profile from the USA!

The Rheumatology Informatics System for Effectiveness (RISE) registry is a Qualified Clinical Data Registry (QCDR) developed by the American College of Rheumatology to help clinicians and researchers. RISE is the first and largest electronic health record (EHR)-enabled rheumatology registry collecting 2.6 Million records in the United States since 2014. It is a rheumatology-specific registry and includes patients with all medical conditions seen by a rheumatologist and all insurance types.

Rheumatology Informatics System for Effectiveness (RISE) Registry (USA)

Database Contact Data

Tom Tack
Senior Director, Registry
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 137
Email 1: ttack@rheumatology.org
Email 2: arp@@rheumatology.org

Alternate Contact

Amber Washington
Specialist, Registry Analytics
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777
Email: awashington@rheumatology.org

References of Studies Using/Describing Database

1. Nasrallah C, Schmajuk G, Hamblin A, Wilson C, Kersey E, Young C, Katz P, Bajaj P, Downey C, Bartels C, Zell J, Danila MI, Ferguson S, Barton JL, DeQuattro K, Yazdany J. Leveraging the Consolidated Framework for Implementation Research to Develop the American College of Rheumatology's Toolkit for Implementation of Rheumatoid Arthritis Outcome Measures in Clinical Practice: A Qualitative Study. Arthritis Care Res (Hoboken). 2024 Dec;76(12):1647-1656.

2. Li J, Baker R, Stovall R, Curtis JR, Xie F, Yazdany J, Schmajuk G. Agreement of Medication Information Derived From EHR Data Compared to Medicare Insurance Claims: An Analysis of Biologic Disease-Modifying Antirheumatic Drugs. Pharmacoepidemiol Drug Saf. 2024 Oct;33(10):e70020.

3. Palmowski A, Roberts ET, Li J, Kersey E, Stovall R, Buttgereit F, Yazdany J, Schmajuk G. Initiation of glucocorticoids before entering rheumatology care associates with long-term glucocorticoid use in older adults with early rheumatoid arthritis: A joint analysis of Medicare and the Rheumatology Informatics System for Effectiveness (RISE) data. Semin Arthritis Rheum. 2024 Oct;68:152535.

4. Clowse MEB, Li J, Snyderman A, Schmajuk G. Alignment of contraception use with the ACR reproductive health guidelines in women with systemic lupus erythematosus within the RISE registry. Lupus Sci Med. 2024 Aug 24;11(2):e001192.

5. Kersey E, Li J, Kay J, Adler-Milstein J, Yazdany J, Schmajuk G. Development and application of Breadth-Depth-Context (BDC), a conceptual framework for measuring technology engagement with a qualified clinical data registry. JAMIA Open. 2024 Jul 26;7(3):ooae061.

6. Roberts ET, Schmajuk G, Li J, Murrill M, Yazdany J. Latent Tuberculosis Screening Among New Users of a Biologic or Targeted Synthetic Disease-Modifying Antirheumatic Drug: Gaps in Screening Overall and Among Janus Kinase Inhibitors. Arthritis Care Res (Hoboken). 2024 Jul;76(7):1037-1044.

7. Bridges JM, Li J, Mannion ML, Clowse MEB, Schmajuk G, Singh JA. Contraception Care Patterns for Adult Females With Juvenile Idiopathic Arthritis on Teratogens in the Rheumatology Informatics System for Effectiveness (RISE) Registry. J Rheumatol. 2024 May 1;51(5):542-545.

8. Holladay EE, Mudano AS, Xie F, Zhang J, Mikuls TR, LaMoreaux B, Padnick-Silver L, Curtis JR. Urate-lowering therapy, serum urate, inflammatory biomarkers, and renal function in patients with gout following pegloticase discontinuation. Arthritis Res Ther. 2024 Apr 12;26(1):86.

9. Sattui SE, Xie F, Wan Z, Clinton C, Domsic RT, Curtis JR. Treatment of Polymyalgia Rheumatica by Rheumatology Providers: Analysis from the American College of Rheumatology RISE Registry. Arthritis Care Res (Hoboken). 2024 Feb;76(2):259-264.

10. Hammam N, Li J, Kay J, Izadi Z, Yazdany J, Schmajuk G. Monitoring and Achievement of Target Serum Urate Among Gout Patients Receiving Long-Term Urate-Lowering Therapy in the American College of Rheumatology RISE Registry. Arthritis Care Res (Hoboken). 2023 Jul;75(7):1544-1552.

Subscribe to