National Longitudinal Study of Adolescent to Adult Health (Add Health) (USA)

Database Contact Data

Sarah Dean, JD
Project Manager, Add Health
Carolina Population Center, UNC Chapel Hill
CB 8120
123 West Franklin Street, Bldg C
Chapel Hill, NC 27516
USA
Phone: +1 919-962-6090
Email: deansa@email.unc.edu

Alternate Contact

1. Sydney Will, MPH-PAPH
Data Dissemination Coordinator
Carolina Population Center
UNC-Chapel Hill, CB #2164-H
Carolina Square, Suite 210
123 West Franklin Street
Chapel Hill, NC 27516
USA
Phone: +1 (919) 445-6955 
Email: sydneylw@email.unc.edu

2. You may also complete the "contact us" form on this page: https://addhealth.cpc.unc.edu/about/contact-us/
Please refer to the list of resources on the page, so you can contact the appropriate department.

References of Studies Using/Describing Database

1. Alshehri K, Hawk G, Su L, Loprinzi P, Walker J. Body Weight Does Not Associate with Smoking Prevalence or Cigarette Consumption in Adult Women. Clinical Health Promotion. 2022 Dec 21:e22004-1.

2. Austin AE, Naumann RB, Shiue KY, Daniel L, Singichetti B, Hays CN. An Illustrative Review of Substance Use–Specific Insights From the National Longitudinal Study of Adolescent to Adult Health. Journal of Adolescent Health. 2022 Dec 1;71(6):S6-13.

3. Assini-Meytin LC, Thorne EJ, Sanikommu M, Green KM, Letourneau EJ. Impact of child sexual abuse on socioeconomic attainment in adulthood. Journal of Adolescent Health. 2022 Nov 1;71(5):594-600.

4. Assini-Meytin LC, Fix RL, Green KM, Nair R, Letourneau EJ. Adverse childhood experiences, mental health, and risk behaviors in adulthood: exploring sex, racial, and ethnic group differences in a nationally representative sample. Journal of Child & Adolescent Trauma. 2022 Sep;15(3):833-45.

5. Barry MC, Zimmer C, Halpern CT. Biomarkers of pre-pregnancy allostatic load and subsequent adverse birth outcomes. SSM-Population Health. 2022 Jun 1;18:101099.

6. Adzrago D, Kavi L, Ezeugoh RI, Osafo-Darko B. Temporal Patterns of Cigarette Smoking and Its Associated Covariates: a Multilevel Longitudinal Data Analysis. Global Social Welfare. 2022 Jun;9(2):121-9.

7. Abdel Magid HS, Milliren CE, Rice K, Molanphy N, Ruiz K, Gooding HC, Richmond TK, Odden MC, Nagata JM. Adolescent individual, school, and neighborhood influences on young adult hypertension risk. PloS one. 2022 Apr 28;17(4):e0266729.

8. Apostolou M. The direct reproductive cost of same-sex attraction: Evidence from two nationally representative US samples. Archives of Sexual Behavior. 2022 Apr 4:1-8.

9. Amialchuk A, Sapci O. The long‐term health effects of initiating smoking in adolescence: Evidence from a national longitudinal survey. Health Economics. 2022 Apr;31(4):597-613.

10. Bone JK, Bu F, Fluharty ME, Paul E, Sonke JK, Fancourt D. Arts and cultural engagement, reportedly antisocial or criminalized behaviors, and potential mediators in two longitudinal cohorts of adolescents. Journal of youth and adolescence. 2022 Mar 23:1-20.

Medical Data Vision (EBM Provider®) Health Insurance Association Database (Japan)

Database Contact Data

Medical Data Vision Co., Ltd.
Sumitomo Fudosan Kanda Bldg.
7 Kandamitoshirocho 
Chiyoda-ku
Tokyo 101-0053 
JAPAN
Phone: +81 3 5283 6911
Fax: +81 3 5283 6811
Email: ebm_sales@mdv.co.jp (English acceptable)

Alternate Contact

Please complete the contact form:https://en.mdv.co.jp/application/contactus/form.php

References of Studies Using/Describing Database

N/A

Jun 16, 2021: New database profile from the Netherlands

Managed by the Netherlands Comprehensive Cancer Organisation (IKNL), the Netherlands Cancer Registry is the only oncological hospital registry in the Netherlands with data on all cancer patients. Data are available on national level from 1989 onwards. The Netherlands has about 17,000,000 inhabitants. Annually, there are 116,500 new diagnoses of cancer and 44,000 cancer deaths in the Netherlands.

Netherlands Cancer Registry (Netherlands)

Database Contact Data

Jolanda Sinha
Press Officer
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: j.sinha@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 34 62 02 29

Alternate Contact

Dr. Otto Visser
Head of Cancer Registration
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: o.visser@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 18 41 86 67

References of Studies Using/Describing Database

1. van Maaren MC, Voorham QJM, Wijnen EM, de Munck L, Wesseling J, Visser O, Siesling S. Notification of locoregional breast cancer recurrence based on pathology reports: A nationwide validation study with the Netherlands Cancer Registry. Cancer Epidemiol. 2025 Mar 5;96:102780. doi: 10.1016/j.canep.2025.102780. Epub ahead of print.

2. Kuijper SC, Gehrels AM, van der Geest LG, Verhoeven RHA, Koerkamp BG, Molenaar IQ, Stommel MWJ, de Meijer VE, de Vos-Geelen J, Wumkes ML, Besselink MG, Wilmink JW, van Laarhoven HWM; Dutch Pancreatic Cancer Group. Survival scenarios of patients with localized and metastatic pancreatic adenocarcinoma: A population-based study. Int J Cancer. 2025 May 1;156(9):1726-1735.

3. Darai A, Koëter T, van Erning FN, van Alphen RJ, Verheul HMW, Verheij M, Zimmerman DDE, Vissers PAJ, de Wilt JHW. The role of adjuvant chemotherapy in rectal cancer: A nationwide cohort study from the Netherlands. Colorectal Dis. 2025 Mar;27(3):e70054.

4. Jutten E, van Kempen LCLT, Diercks GFH, van Leeuwen BL, Kruijff S, Wevers KP. Real-World Evidence of the Prevalence of Driver Mutations in Anorectal Melanoma. Mol Diagn Ther. 2025 Mar;29(2):229-238.

5. Galanos LJK, Rijken A, Elferink MAG, Kok NFM, van Erning FN, De Hingh IHJT. Influence of a nationwide colorectal cancer screening program on the incidence of synchronous colorectal peritoneal metastases. Int J Cancer. 2025 Feb 17. doi: 10.1002/ijc.35356. Epub ahead of print.

6. Yildirim H, Richters A, Bins AD, Postema AW, Aarts MJB, van Oijen MGH, Zondervan PJ, Aben KKH. Immunotherapy in metastatic renal cell carcinoma: Insights from a Dutch nationwide cohort. Eur Urol Open Sci. 2025 Feb 10;72:42-45.

7. van Doorn-Wink KCJ, Postmus PE, de Ruysscher D, Damhuis RAM. Ninety-day mortality following curative intent radiotherapy for stage I-III lung cancer in the Netherlands. Radiother Oncol. 2025 Feb;203:110661.

8. van Laarhoven H, Verhoeven R, van Berge Henegouwen M, Mohammad NH, van Hillegersberg R, Slingerland M, Muijs CT, Wijnhoven B, Mostert B, Beerepoot L, Nieuwenhuijzen G, Derks S, van Rossum PSN. Real-world outcomes of the CROSS regimen in patients with resectable esophageal or gastro-esophageal junction adenocarcinoma: a nationwide cohort study in the Netherlands. EClinicalMedicine. 2025 Jan 22;80:103067.

9. Westerveld ASR, Tytgat GAM, van Santen HM, van Noesel MM, Loonen J, de Vries ACH, Louwerens M, Koopman MMW, van der Heiden-van der Loo M, Janssens GO, de Krijger RR, Ronckers CM, van der Pal HJH, Kremer LCM, Teepen JC. Long-Term Risk of Subsequent Neoplasms in 5-Year Survivors of Childhood Neuroblastoma: A Dutch Childhood Cancer Survivor Study-LATER 3 Study. J Clin Oncol. 2025 Jan 10;43(2):154-166.

10. Mülder DT, van de Schootbrugge-Vandermeer HJ, O'Mahony JF, Sun D, Han W, Verhoeven RHA, van Loo M, van de Veerdonk W, Spaander MCW, Lansdorp-Vogelaar I. Gastric Cancer Risk among Immigrants and Socioeconomic Groups in the Netherlands. Cancer Epidemiol Biomarkers Prev. 2025 Jan 9;34(1):85-92.

Subscribe to