Swedish National Parkinson's Disease Patient Registry (PARKreg) (Sweden)
Linnéa Edman-Persson
Forskningssjuksköterska
Koordinator Parkinsonregister
Skånes Universitetssjukhus
Forskningsenhet Neurologi
221 85 Lund
SWEDEN
Email: Linnea.Edman-Persson@skane.se
Phone: +46 175501
Sven Pålhagen
Email: sven.palhagen@karolinska.se
Per Odin
Email: per.odin@med.lu.se
Per Svenningsson
Email: per.svenningsson@karolinska.se
1. Janz C, Timpka J, Rosqvist K, Paul G, Storch A, Odin P. Non-Motor Symptom Management: Insights into Adherence to Treatment Guidelines in Parkinson's Disease Patients. J Parkinsons Dis. 2024;14(2):297-312.
2. Löhle M, Timpka J, Bremer A, Khodakarami H, Gandor F, Horne M, Ebersbach G, Odin P, Storch A. Application of single wrist-wearable accelerometry for objective motor diary assessment in fluctuating Parkinson's disease. NPJ Digit Med. 2023 Oct 17;6(1):194.
3. Rosqvist K, Odin P. Compliance with National and International Guidelines in the Treatment of Nonmotor Symptoms in Late-Stage Parkinson's Disease. Parkinsons Dis. 2023 Oct 10;2023:6667339.
4. von Below D, Wallerstedt SM, Bergquist F. Validation of the Swedish Patient-Reported Outcomes in Parkinson's Disease Scale in Outpatients. Mov Disord. 2023 Sep;38(9):1668-1678.
5. Norlin JM, Kellerborg K, Persson U, Åström DO, Hagell P, Martinez-Martin P, Odin P. Clinical Impression of Severity Index for Parkinson's Disease and Its Association to HealthRelated Quality of Life. Mov Disord Clin Pract. 2023 Jan 20;10(3):392-398.
6. Kellerborg K, Norlin JM, Odin P. The Relationship between PDQ-8 and Costs in Parkinson's Disease-A Swedish Register-Based Study. Mov Disord Clin Pract. 2022 Dec 15;10(2):231-237.
7. Skogar Ö, Nilsson M, Lökk J. Gender differences in diagnostic tools, medication, time to medication, and nonmotor symptoms in Parkinsonian patients. Brain Circ. 2022 Dec 6;8(4):192-199.
8. Åström DO, Simonsen J, Raket LL, Sgarbi S, Hellsten J, Hagell P, Norlin JM, Kellerborg K, Martinez-Martin P, Odin P. High risk of developing dementia in Parkinson's disease: a Swedish registry-based study. Sci Rep. 2022 Oct 6;12(1):16759.
9. Timpka J, Löhle M, Bremer A, Christiansson S, Gandor F, Ebersbach G, Dahlström Ö, Iwarsson S, Nilsson MH, Storch A, Odin P. Objective Observer vs. Patient Motor State Assessments Using the PD Home Diary in Advanced Parkinson's Disease. Front Neurol. 2022 Jul 12;13:935664.
10. Raket LL, Oudin Åström D, Norlin JM, Kellerborg K, Martinez-Martin P, Odin P. Impact of age at onset on symptom profiles, treatment characteristics and health related quality of life in Parkinson's disease. Sci Rep. 2022 Jan 11;12(1):526.