Nurses' Health Study (USA)

Database Contact Data

For individuals seeking general information about the Studies - 
Email: nhs@channing.harvard.edu
Telephone: +1 617-525-2279
Address: 
Nurses Health Study/Harvard Cohorts and Biorepository
Channing Division of Network Medicine
Brigham and Women's Hospital
181 Longwood Avenue
Boston, MA 02115
USA

For researchers interested in collaboration, please see https://nurseshealthstudy.org/researchers

Alternate Contact

Dr. Heather Eliassen
Email: heliasse@hsph.harvard.edu

Dr. Jorge Chavarro
Email: jchavarr@hsph.harvard.edu

Dr. Jaime Hart
Email: jhart@hsph.harvard.edu

Dr. Walter Willett
Email: wwillett@hsph.harvard.edu

References of Studies Using/Describing Database

1. Ha J, Mehta RS, Cao Y, Huang T, Staller K, Chan AT. Assessment of Gastroesophageal Reflux Symptoms and Sleep Quality Among Women in the Nurses' Health Study II. JAMA Netw Open. 2023 Jul 3;6(7):e2324240.

2. Chen Z, Khandpur N, Desjardins C, Wang L, Monteiro CA, Rossato SL, Fung TT, Manson JE, Willett WC, Rimm EB, Hu FB, Sun Q, Drouin-Chartier JP. Ultra-Processed Food Consumption and Risk of Type 2 Diabetes: Three Large Prospective U.S. Cohort Studies. Diabetes Care. 2023 Jul 1;46(7):1335-1344.

3. Denckla CA, Hahn J, Cowden RG, Ho S, Gao K, Espinosa Dice AL, Jha SC, Kang JH, Shear MK. Bereavement, Memorial Attendance, and Mental Health During the COVID-19 Pandemic: Longitudinal Results from the Nurses' Health Study. Am J Geriatr Psychiatry. 2023 Jun 28:S1064-7481(23)00345-7.

4. Yang K, Tabung FK, Whitehead WE, Giovannucci EL, Chan AT, Staller K. Proinflammatory Diet Is Associated With Increased Risk of Fecal Incontinence Among Older Women: Prospective Results From the Nurses' Health Study. Clin Gastroenterol Hepatol. 2023 Jun;21(6):1657-1659.e3.

5. Shafrir AL, Mu F, Eliassen AH, Thombre Kulkarni M, Terry KL, Hankinson SE, Missmer SA. Endogenous Steroid Hormone Concentrations and Risk of Endometriosis in Nurses' Health Study II. Am J Epidemiol. 2023 Apr 6;192(4):573-586.

6. Bozigar M, Huang T, Redline S, Hart JE, Grady ST, Nguyen DD, James P, Nicholas B, Levy JI, Laden F, Peters JL. Associations between Aircraft Noise Exposure and Self-Reported Sleep Duration and Quality in the United States-Based Prospective Nurses' Health Study Cohort. Environ Health Perspect. 2023 Apr;131(4):47010.

7. Cui J, Malspeis S, Choi MY, Lu B, Sparks JA, Yoshida K, Costenbader KH. Risk prediction models for incident systemic lupus erythematosus among women in the Nurses' health study cohorts using genetics, family history, and lifestyle and environmental factors. Semin Arthritis Rheum. 2023 Feb;58:152143.

8. Shan Z, Wang F, Li Y, Baden MY, Bhupathiraju SN, Wang DD, Sun Q, Rexrode KM, Rimm EB, Qi L, Tabung FK, Giovannucci EL, Willett WC, Manson JE, Qi Q, Hu FB. Healthy Eating Patterns and Risk of Total and Cause-Specific Mortality. JAMA Intern Med. 2023 Feb 1;183(2):142-153.

9. Li H, Hart JE, Mahalingaiah S, Nethery RC, James P, Bertone-Johnson E, Eliassen AH, Laden F. Environmental Exposures and Anti-Müllerian Hormone: A Mixture Analysis in the Nurses' Health Study II. Epidemiology. 2023 Jan 1;34(1):150-161.

10. Peng C, Zeleznik OA, Shutta KH, Rosner BA, Kraft P, Clish CB, Stampfer MJ, Willett WC, Tamimi RM, Eliassen AH. A Metabolomics Analysis of Circulating Carotenoids and Breast Cancer Risk. Cancer Epidemiol Biomarkers Prev. 2022 Jan;31(1):85-96. 

Dec 19, 2023: Nominations for the Judith K. Jones Award for Impact on Public Health through Pharmacoepidemiology

Do you know anyone who may qualify for the Judith K. Jones Award for Impact on Public Health through Pharmacoepidemiology? See this link and nominate them by January 31, 2024. (NOTE: You do have to be a member of the International Society for Pharmacoepidemiology to nominate, but the nominee does not have to be one.

Norwegian Multiple Sclerosis Registry & Biobank (Norway) **

Database Contact Data

Kjell-Morten Myhr
Email: kjell-morten.myhr@helse-bergen.no
Phone: +47 55975045

Alternate Contact

Stig Wergeland, Ph.D.
Head of the Norwegian MS-registry and biobank
Phone: (+47) 55 97 60 30
Email: stig.wergeland@helse-bergen.no

References of Studies Using/Describing Database

1. König M, Lorentzen ÅR, Torgauten HM, Tran TT, Schikora-Rustad S, Vaage EB, Mygland Å, Wergeland S, Aarseth J, Aaberge IAS, Torkildsen Ø, Holmøy T, Berge T, Myhr KM, Harbo HF, Andersen JT, Munthe LA, Søraas A, Celius EG, Vaage JT, Lund-Johansen F, Nygaard GO. Humoral immunity to SARS-CoV-2 mRNA vaccination in multiple sclerosis: the relevance of time since last rituximab infusion and first experience from sporadic revaccinations. J Neurol Neurosurg Psychiatry. 2023 Jan;94(1):19-22.

2. Høglund RAA, Meyer HE, Stigum H, Torkildsen Ø, Grytten N, Holmøy T, Nakken O. Association of Body Mass Index in Adolescence and Young Adulthood and Long-term Risk of Multiple Sclerosis: A Population-Based Study. Neurology. 2021 Dec 7;97(23):e2253-e2261.

3. Grytten N, Myhr KM, Celius EG, Benjaminsen E, Kampman MT, Midgard R, Vatne A, Aarseth JH, Riise T, Torkildsen Ø. Incidence of cancer in multiple sclerosis before and after the treatment era- a registry- based cohort study. Mult Scler Relat Disord. 2021 Oct;55:103209.

4. Ahmad I, Wergeland S, Oveland E, Bø L. A higher proportion of ermin-immunopositive oligodendrocytes in areas of remyelination. PLoS One. 2021 Aug 26;16(8):e0256155.

5. Norborg H, Riise T, Myhr KM, Grytten N, Wergeland S. Real-world discontinuation rate of teriflunomide and dimethyl fumarate in multiple sclerosis. Mult Scler J Exp Transl Clin. 2021 Jun 14;7(2):20552173211022027.

6. Karine Eid, Øivind Fredvik Torkildsen, Jan Aarseth, Heidi Øyen Flemmen, Trygve Holmøy, Åslaug Rudjord Lorentzen, Kjell-Morten Myhr, Trond Riise, Cecilia Simonsen, Cecilie Fredvik Torkildsen, Stig Wergeland, Johannes Sverre Willumsen, Nina Øksendal, Nils Erik Gilhus, Marte-Helene Bjørk. Perinatal Depression and Anxiety in Women With Multiple Sclerosis
A Population-Based Cohort Study. Neurology Jun 2021, 96 (23) e2789-e2800;

7. Torgauten HM, Myhr KM, Wergeland S, Bø L, Aarseth JH, Torkildsen Ø. Safety and efficacy of rituximab as first- and second line treatment in multiple sclerosis - A cohort study. Mult Scler J Exp Transl Clin. 2021 Jan 31;7(1):2055217320973049.

8. Grytten N, Myhr KM, Celius EG, Benjaminsen E, Kampman M, Midgard R, Vatne A, Aarseth JH, Riise T, Torkildsen Ø. Risk of cancer among multiple sclerosis patients, siblings, and population controls: A prospective cohort study. Mult Scler. 2020 Oct;26(12):1569-1580.

9. Willumsen JS, Aarseth JH, Myhr KM, Midgard R. High incidence and prevalence of MS in Møre and Romsdal County, Norway, 1950-2018. Neurol Neuroimmunol Neuroinflamm. 2020 Mar 26;7(3):e713.

10. Cortese M, Riise T, Bjørnevik K, Myhr KM; Multiple Sclerosis Conscript Service Database Study Group. Body size and physical exercise, and the risk of multiple sclerosis. Mult Scler. 2018 Mar;24(3):270-278.

Swedish Rheumatology Quality Register (SRQ) (Sweden) **

Database Contact Data

1. Lotta Blom
National Quality Coordinator
Swedish Rheumatology Quality Register (SRQ)
Enheten för klinisk epidemiologi
Institutet för medicin, Karolinska Institutet
T4:01 Karolinska Universitetssjukhuset Solna
171 76 Stockholm
SWEDEN
Phone: +46 (0)72-254 21 55
Email: ann-charlotte.blom@regionstockholm.se

2. Lotta Ljung
Register Holder
Swedish Rheumatology Quality Register (SRQ)
Enheten för klinisk epidemiologi
Institutet för medicin, Karolinska Institutet
T4:01 Karolinska Universitetssjukhuset Solna
171 76 Stockholm
SWEDEN
Email: lotta.ljung@regionstockholm.se

Alternate Contact

Thomas Bergman
Klinisk epidemiologi, Institutionen för medicin
T4:01 Karolinska Universitetssjukhuset Solna
171 76 Stockholm
SWEDEN
Phone: +46 (0)8-524 815 59
Email: thomas.bergman@ki.se

References of Studies Using/Describing Database

1. Exarchou S, Wallman JK, Di Giuseppe D, Klingberg E, Sigurdardottir V, Wedrén S, Lindström U, Turesson C, Jacobsson LTH, Askling J. The National Prevalence of Clinically Diagnosed Psoriatic Arthritis in Sweden in 2017. J Rheumatol. 2023 Jun;50(6):781-788.

2. Secher AEP, Granath F, Glintborg B, Rom A, Hetland ML, Hellgren K. Risk of pre-eclampsia and impact of disease activity and antirheumatic treatment in women with rheumatoid arthritis, axial spondylarthritis and psoriatic arthritis: a collaborative matched cohort study from Sweden and Denmark. RMD Open. 2022 Nov;8(2):e002445.

3. Barbulescu A, Askling J, Saevarsdottir S, Kim SC, Frisell T. Combined Conventional Synthetic Disease Modifying Therapy vs. Infliximab for Rheumatoid Arthritis: Emulating a Randomized Trial in Observational Data. Clin Pharmacol Ther. 2022 Oct;112(4):836-845.

4. Hellgren K, Secher AE, Glintborg B, Rom AL, Gudbjornsson B, Michelsen B, Granath F, Hetland ML. Pregnancy outcomes in relation to disease activity and anti-rheumatic treatment strategies in women with rheumatoid arthritis: a matched cohort study from Sweden and Denmark. Rheumatology (Oxford). 2022 Aug 30;61(9):3711-3722.

5. Hedenstierna L, Hedström AK, Klareskog L, Di Giuseppe D, Alfredsson L, Askling J, Ernestam S, Saevarsdottir S, Ljung L. Neither low social support nor low decision latitude at work is associated with disease remission among patients with rheumatoid arthritis: results from the Swedish EIRA study. Arthritis Res Ther. 2022 Aug 23;24(1):203.

6. Delcoigne B, Ljung L, Provan SA, Glintborg B, Hetland ML, Grøn KL, Peltomaa R, Relas H, Turesson C, Gudbjornsson B, Michelsen B, Askling J. Short-term, intermediate-term and long-term risks of acute coronary syndrome in cohorts of patients with RA starting biologic DMARDs: results from four Nordic countries. Ann Rheum Dis. 2022 Jun;81(6):789-797.

7. Glintborg B, Lindström U, Giuseppe DD, Provan SA, Gudbjornsson B, Hetland ML, Michelsen B, Wallman JK, Aaltonen K, Hokkanen AM, Nordström D, Jørgensen TS, Hansen RL, Geirsson AJ, Grøn KL, Krogh NS, Askling J, Kristensen LE, Jacobsson LTH; Danish Rheumatology Database (DANBIO), Anti-Rheumatic Therapy in Sweden/Swedish Rheumatology Quality (ARTIS/SRQ), Center for Rheumatology Research (ICEBIO), Finnish Register of Biological Treatment (ROB-FIN), and Norwegian Antirheumatic Drug Register (NOR-DMARD) registries. One-Year Treatment Outcomes of Secukinumab Versus Tumor Necrosis Factor Inhibitors in Spondyloarthritis: Results From Five Nordic Biologic Registries Including More Than 10,000 Treatment Courses. Arthritis Care Res (Hoboken). 2022 May;74(5):748-758.

8. Hellgren K, Ballegaard C, Delcoigne B, Cordtz R, Nordström D, Aaltonen K, Gudbjornsson B, Love TJ, Aarrestad Provan S, Sexton J, Zobbe K, Kristensen LE, Askling J, Dreyer L. Risk of solid cancers overall and by subtypes in patients with psoriatic arthritis treated with TNF inhibitors - a Nordic cohort study. Rheumatology (Oxford). 2021 Aug 2;60(8):3656-3668.

9. Morin M, Hellgren K, Frisell T. Familial aggregation and heritability of ankylosing spondylitis - a Swedish nested case-control study. Rheumatology (Oxford). 2020 Jul 1;59(7):1695-1702.

10. Wagman P, Ahlstrand I, Björk M, Håkansson C. Occupational balance and its association with life satisfaction in men and women with rheumatoid arthritis. Musculoskeletal Care. 2020 Jun;18(2):187-194.

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