ICEBIO is an Icelandic nationwide database on patients treated with biologic disease-modifying antirheumatic drugs (DMARDs) due to inflammatory joint diseases; including RA (rheumatoid arthritis), AS (ankylosing spondylitis), and PsA (psoriatic arthritis). The database is based on the Danish Registry for Biologic Therapies in Rheumatology, DANBIO. ICEBIO started collecting data in 2007 and contains comprehensive patient characteristics, along with disease activity scores and information on treatment.
What's new
We are presenting a second poster at ICPE in August, co-authored with the Wound Care Collaborative Community (WCCC) titled “Comprehensive Landscape Analysis for Usable Real-World Wound Care Data.”
Our poster titled “Landscape of Public Health Data Dashboards: Comparison of Key Features for Epidemiology Research” will be presented at ISPE's 41st Annual Meeting, scheduled for August 22-26 at the Walter E. Washington Convention Center in Washington DC.
With data starting in 1977, NACSA is the primary database for collecting data on adult cardiac surgery in the United Kingdom, including information from NHS and private hospitals. This audit, part of the National Cardiac Audit Programme (NCAP), provides an overview of the state of cardiac surgery in the UK, including activity trends and quality measures.
DGI will present two innovative posters at ISPE’s 41st Annual Meeting in Washington D.C.:
A big thank you to the Japan Medical Data Center for helping us profile 4 of their databases for B.R.I.D.G.E. TO DATA®. We truly appreciate their help adding the:
With data starting in 2010, the BNDMR (Banque Nationale de Données Maladies Rares) is a French National Rare Disease Data Registry offering healthcare professionals the ability to collect a minimum data set (MDS) common for all patients in addition to other different complementary data collections for specific care purposes via the BaMaRa application.
With data starting in 2014, the DeSC Healthcare database is a joint venture between DeNA Co., Ltd. and Sumitomo Corporation. The DeSC Database is a Longitudinal and Cross-sectional population database containing insurer-based Japanese insurance claims data for all therapeutic areas and all ages.
Exciting news from the world of wound care research! Our March 2025 newsletter highlights our latest publication in the journal WOUNDS, co-authored with the Wound Care Collaborative Community.
Starting in 2011, the Victorian Lung Cancer Registry (VLCR) is a clinical quality registry which collects and reports on data relating to 24 clinical quality indicators (CQIs) from Victoria and Tasmania. Data are reported from 9 participating health services, including 51 hospitals, with the aim of capturing all patients newly diagnosed with a primary lung cancer in stakeholder hospitals.