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The Manitoba Population Health Research Data Cardiac Surgical Database (Canada) was created to describe the cardiac surgery population and to provide individual reports for each surgeon informing them of patient population characteristics and post-operative complication rates. Starting in April 1995, information includes detailed surgical data, i.e., patient admission, history, and diagnosis data.

As of Aug 2022 the HCEI/RWD (Health, Clinic, and Education Information Evaluation Institute / Real World Data Co., Ltd) database contains the records of 25 million patients from 229 medical institutions across Japan. The stored information includes demographic data, diagnoses, prescriptions, procedures, and laboratory results from both outpatient and inpatient services.

The Canadian Neonatal Network (CNN) is a group of Canadian researchers who collaborate on research issues related to neonatal care. The CNN maintains a standardized neonatal intensive care unit (NICU) database which provides opportunities for collaborative research among provinces and internationally. The research focuses on clinical, epidemiological, outcomes, health services, health policy and informatics perspectives aimed at improving efficacy and efficiency of neonatal care.

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How Dr. Judith K. Jones will be honored at the upcoming 38th ICPE
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What have we been up to & what’s next at DGI?

The National Cancer Registry (NCR) commenced operations in January 2016. Accurate nationwide data obtained from NCR contribute to the planning and evaluation of cancer control in Japan. This database is utilized in evaluating the quality of medical care for cancer patients, in assessing the accuracy of cancer screening, and in follow-up surveys in nationwide cohort studies.

Active since 2001, the Swedish MS Registry (SMSreg) is a government-funded quality register designed to ensure optimal health care for patients with multiple sclerosis (MS). All Swedish neurology departments are users and providers of data, and currently more than 14,000 patients with MS have been registered.

Initiated in 2001, the Japan Nurses’ Health Study (JNHS) is a prospective cohort investigation of the effects of lifestyle and healthcare on women’s health.

The PatientsMap is a longitudinal, cross-sectional physician-survey database capturing the patient population size of 1,000 conditions in major countries including Japan, since 2011.