Netherlands Cancer Registry (Netherlands)

Database Contact Data

Jolanda Sinha
Press Officer
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: j.sinha@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 34 62 02 29

Alternate Contact

Dr. Otto Visser
Head of Cancer Registration
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: o.visser@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 18 41 86 67

References of Studies Using/Describing Database

1. Galanos LJK, Rijken A, Elferink MAG, Kok NFM, van Erning FN, De Hingh IHJT. Influence of a nationwide colorectal cancer screening program on the incidence of synchronous colorectal peritoneal metastases. Int J Cancer. 2025 Jul 15;157(2):232-238.

2. van Maaren MC, Voorham QJM, Wijnen EM, de Munck L, Wesseling J, Visser O, Siesling S. Notification of locoregional breast cancer recurrence based on pathology reports: A nationwide validation study with the Netherlands Cancer Registry. Cancer Epidemiol. 2025 Jun;96:102780. 

3. Kuijper SC, Gehrels AM, van der Geest LG, Verhoeven RHA, Koerkamp BG, Molenaar IQ, Stommel MWJ, de Meijer VE, de Vos-Geelen J, Wumkes ML, Besselink MG, Wilmink JW, van Laarhoven HWM; Dutch Pancreatic Cancer Group. Survival scenarios of patients with localized and metastatic pancreatic adenocarcinoma: A population-based study. Int J Cancer. 2025 May 1;156(9):1726-1735.

4. Darai A, Koëter T, van Erning FN, van Alphen RJ, Verheul HMW, Verheij M, Zimmerman DDE, Vissers PAJ, de Wilt JHW. The role of adjuvant chemotherapy in rectal cancer: A nationwide cohort study from the Netherlands. Colorectal Dis. 2025 Mar;27(3):e70054.

5. Jutten E, van Kempen LCLT, Diercks GFH, van Leeuwen BL, Kruijff S, Wevers KP. Real-World Evidence of the Prevalence of Driver Mutations in Anorectal Melanoma. Mol Diagn Ther. 2025 Mar;29(2):229-238.

6. Yildirim H, Richters A, Bins AD, Postema AW, Aarts MJB, van Oijen MGH, Zondervan PJ, Aben KKH. Immunotherapy in metastatic renal cell carcinoma: Insights from a Dutch nationwide cohort. Eur Urol Open Sci. 2025 Feb 10;72:42-45.

7. van Doorn-Wink KCJ, Postmus PE, de Ruysscher D, Damhuis RAM. Ninety-day mortality following curative intent radiotherapy for stage I-III lung cancer in the Netherlands. Radiother Oncol. 2025 Feb;203:110661.

8. van Laarhoven H, Verhoeven R, van Berge Henegouwen M, Mohammad NH, van Hillegersberg R, Slingerland M, Muijs CT, Wijnhoven B, Mostert B, Beerepoot L, Nieuwenhuijzen G, Derks S, van Rossum PSN. Real-world outcomes of the CROSS regimen in patients with resectable esophageal or gastro-esophageal junction adenocarcinoma: a nationwide cohort study in the Netherlands. EClinicalMedicine. 2025 Jan 22;80:103067.

9. Westerveld ASR, Tytgat GAM, van Santen HM, van Noesel MM, Loonen J, de Vries ACH, Louwerens M, Koopman MMW, van der Heiden-van der Loo M, Janssens GO, de Krijger RR, Ronckers CM, van der Pal HJH, Kremer LCM, Teepen JC. Long-Term Risk of Subsequent Neoplasms in 5-Year Survivors of Childhood Neuroblastoma: A Dutch Childhood Cancer Survivor Study-LATER 3 Study. J Clin Oncol. 2025 Jan 10;43(2):154-166.

10. Mülder DT, van de Schootbrugge-Vandermeer HJ, O'Mahony JF, Sun D, Han W, Verhoeven RHA, van Loo M, van de Veerdonk W, Spaander MCW, Lansdorp-Vogelaar I. Gastric Cancer Risk among Immigrants and Socioeconomic Groups in the Netherlands. Cancer Epidemiol Biomarkers Prev. 2025 Jan 9;34(1):85-92.

Hospital Episode Statistics (HES) Database (United Kingdom)

Database Contact Data

Hospital Episode Statistics (HES)
NHS England Digital - https://digital.nhs.uk/services/hospital-episode-statistics

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Valsamis EM, Sayers A, Ma J, Dhiman P, Gwilym SE, Rees JL. Evaluation of comorbidity measures for predicting mortality and revision surgery after elective primary shoulder replacement surgery based on data from the National Joint Registry and Hospital Episode Statistics for England: population based cohort study. BMJ Med. 2025 Aug 10;4(1):e001283.

2. Kong D, Linton S, Stapleton E. The incidence and epidemiology of necrotising otitis externa in England before, during and after the coronavirus disease 2019 pandemic: an updated analysis of Hospital Episode Statistics data 2002-2024. J Laryngol Otol. 2025 Jul 30:1-7.

3. Reid JP, Beech T, Muzaffar J. Return to theatre for post-tonsillectomy haemorrhage in children has not fallen with increased use of plasma ablation tonsillectomy: a retrospective analysis of 359,241 tonsillectomies in 15 years of United Kingdom Hospital Episode Statistics. PLoS One. 2025 Jul 28;20(7):e0328251.

4. Hall S, Gaastra B, Ewbank F, Birks J, Bulters D. Identifying elective treatment of unruptured intracranial aneurysms using the Hospital Episode Statistics database. Br J Neurosurg. 2025 Jul 2:1-6. doi: 10.1080/02688697.2025.2516025. Epub ahead of print.

5. O'Malley O, Davies A, Rangan A, Sabharwal S, Reilly P. Reverse shoulder arthroplasty for acute trauma vs. trauma sequalae following failed conservative management: a cohort study using data from the National Joint Registry and Hospital Episode Statistics for England. J Shoulder Elbow Surg. 2025 Jun 26:S1058-2746(25)00485-9. doi: 10.1016/j.jse.2025.05.016. Epub ahead of print.

6. Kruger E, Giblin S. Investigating the Secondary Care System Burden of Glycogen Storage Disease Type Ia (GSDIa) Using the Hospital Episode Statistics Database. J Health Econ Outcomes Res. 2025 May 28;12(1):201-206.

7. Matthews AH, Evans JP, Evans JT, Lamb S, Price AJ, Gray W, Briggs T, Toms AD. What is the impact of longer patient travel distances and times on perioperative outcomes following revision knee replacement: a retrospective observational study using data for England from Hospital Episode Statistics. BMJ Open. 2025 May 6;15(5):e085201.

8. Vella-Baldacchino M, Bottle A, Cobb J, Liddle AD. Outcomes of patellofemoral joint arthroplasty compared with total knee arthroplasty for osteoarthritis : a population-based cohort study using data from the National Joint Registry and Hospital Episode Statistics for England. Bone Joint J. 2025 May 1;107-B(5):514-521.

9. Heining C, Clark M. Surgical arrest of post-tonsillectomy haemorrhage: hospital episode statistics 2016-2022. Ann R Coll Surg Engl. 2025 Mar;107(3):206-210.

10. Jangan A, Watts E, Pankhania M. Coin-cidence? Have cashless payments reduced the incidence of upper aerodigestive foreign body insertion? A study of UK Hospital Episode Statistics. Ann R Coll Surg Engl. 2025 Feb;107(2):125-129.

Apr 29, 2021: The German Centre for Cancer Registry Data (ZfKD) marks the 340th database profile

With data starting from 1999 and around 500,000 cancer patients being added each year, the population-based cancer registries in each German federal state transfer data to the German Centre for Cancer Registry Data (ZfKD). ZfKD estimates national cancer incidence, prevalence and survival rates after assessing the completeness of the data recorded in the individual registries. The basic method is that the data are first checked for completeness of incidence and of vital status.

German Centre for Cancer Registry Data (ZfKD) (Germany)

Database Contact Data

Klaus Kraywinkel, MD, MSc (Epidemiology)
Robert Koch Institute
Center for Cancer Registry Data
Nordufer 20
13353 Berlin
GERMANY
Phone: +49-30187543170
Email: k.kraywinkel@rki.de

Alternate Contact

If you cannot reach the database manager, you may contact them by completing the contact form at: https://www.krebsdaten.de/Krebs/DE/Service/Kontakt/Integrator.html?nn=2640354

References of Studies Using/Describing Database

1. Weidl D, Capper D, Onken J, Liu I, Glaser D, Orben F, Eberle K, Coburger J, Bullinger L. Epidemiology of WHO grade 2 and grade 3 gliomas from 2009 to 2021 in Germany. J Neurooncol. 2025 Sep;174(2):391-400.

2. Volkheimer K, Butt Y, Meyer JE. Morphological variability and its impact on survival in sinonasal malignancies: a 13-year analysis. Eur Arch Otorhinolaryngol. 2025 Feb;282(2):827-835.

3. Nachtsheim L, Möller L, Oesterling F, Kajueter H, Stang A, Hieggelke L, Abing H, Sharma JS, Klussmann JP, Mayer M, Wolber P. Cancer of the paranasal sinuses in Germany: Data on incidence and survival from a population-based cancer registry. Cancer Epidemiol. 2024 Dec;93:102684.

4. Voeltz D, Baginski K, Hornberg C, Hoyer A. Trends in incidence and mortality of early-onset cancer in Germany between 1999 and 2019. Eur J Epidemiol. 2024 Jul;39(7):827-837.

5. Grieger P, Eisemann N, Hammersen F, Rudolph C, Katalinic A, Waldmann A. Initial Evidence of a Possible Effect of HPV Vaccination on Cancer Incidence in Germany—Focus on Cervical Cancer. Dtsch Arztebl Int. 2024 Jun 28;121(13):415-421.

6. Gerber TS, Strobl S, Marx A, Roth W, Porubsky S. Epidemiology of thymomas and thymic carcinomas in the United States and Germany, 1999-2019. Front Oncol. 2024 Jan 9;13:1308989.

7. Vahl JM, Nagel G, Abou Kors T, Brand M, von Witzleben A, Sonntag M, Grages A, Theodoraki MN, Greve J, Denkinger M, Dallmeier D, Idel C, Stilgenbauer S, Hoffmann TK, Laban S. Regional outcome disparities in German head and neck cancer patients: Shorter survival in Eastern Germany. Cancer Med. 2023 Dec;12(23):21426-21435.

8. Vahl JM, Nagel G, Grages A, Brand M, von Witzleben A, Sonntag M, Theodoraki MN, Greve J, Aboukors T, Denkinger M, Dallmeier D, Idel C, Hoffmann TK, Laban S. Demographics and access to head and neck cancer care in rural areas compared to urban areas in Germany. Cancer Med. 2023 Sep;12(18):18826-18836.

9. Neumeyer S, Tanaka LF, Liang LA, Klug SJ. Epidemiology of cervical cancer in elderly women: Analysis of incidence, treatment, and survival using German registry data. Cancer Medicine. 2023 Aug;12(16):17284-95.

10. Kraywinkel K, Flegar L, Huber J, Groeben C. Krebsregister in Deutschland: Was bringt die Zukunft für die Urologie? [Cancer registries in Germany: what does the future hold for urology?]. Aktuelle Urol. 2023 Jun;54(3):208-212. German. 

Apr 13, 2021: Our first database profile from Egypt

The Egypt National Population-based Cancer Registry (NPCR) was established in 2007 and is the only source for cancer incidence in the whole of Egypt. It routinely collects patient data from peripheral population-based registries in the cancer centers of the 5 governorates. Data include patient demographics, primary tumor site, tumor morphology, stage at diagnosis, and follow-up for vital status from over one million patients.

Egypt National Population-based Cancer Registry (NPCR) (Egypt)

Database Contact Data

Amal Ibrahim, MD, DrPH
Emeritus Professor of Epidemiology
National Cancer Institute, Cairo University
Director National Cancer Registry Program 
13, Street 207 Maadi, 
Cairo 11728
EGYPT
Phone: +2 01006030480
Email: ibrahimamalsamy@gmail.com

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Ibrahim AS, Mikhail NN, Khaled H. Current and future incidence of childhood cancer in Egypt: results of the national population-based cancer registry. J Cancer PrevCurr Res. 2018;9(6):316-21.

2. Ibrahim AS, Nazmi N. Cancer: the growing monster in Egypt. J Cancer Prev Curr Res. 2016;6(4):217.

3. Ibrahim AS, Mikhail NN. The evolution of cancer registration in Egypt: From proportions to population-based incidence rates. SECI Oncology. 2015; 3(1):23-43.

4. Azim HA, Ibrahim AS. Breast cancer in Egypt, China and Chinese: statistics and beyond. J Thorac Dis. 2014 Jul;6(7):864-6. 

5. Ibrahim AS, Khaled HM, Mikhail NN, Baraka H, Kamel H. Cancer incidence in egypt: results of the national population-based cancer registry program. J Cancer Epidemiol. 2014;2014:437971. 

6. Alieldin NH, Abo-Elazm OM, Bilal D, Salem SE, Gouda E, Elmongy M, Ibrahim AS. Age at diagnosis in women with non-metastatic breast cancer: Is it related to prognosis?. Journal of the Egyptian National Cancer Institute. 2014 Mar 1;26(1):23-30.

7. Soliman AS, Banerjee M, Lo AC, Ismail K, Hablas A, Seifeldin IA, Ramadan M, Omar HG, Fokuda A, Harford JB, Merajver SD. High proportion of inflammatory breast cancer in the Population-based Cancer Registry of Gharbiah, Egypt. Breast J. 2009 Jul-Aug;15(4):432-4. 

8. Barchana M, Ibrahim AS, Mikhail N. MOS Epidemiology Group Special report: cancer incidence in Mediterranean populations. Mediterranean Oncology Society Web site. 2009.

9. Ibrahim AS, Ismail K, Hablas A, Hussein H, Elhamzawy H, Ramadan M. Cancer in Egypt, Gharbiah. Triennial Report of 2000–2002. Gharbiah Population-Based Cancer Registry. 2007.

10. Ibrahim AS. Descriptive statistics of urogenital cancer in Egypt and Asian area. Tunis Med. 2005 Dec;83 Suppl 12:15-7. 

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