Feb 7, 2023: Our latest profile addition from Estonia
With data since 1987, the Estonian Tuberculosis (TB) Register is a population-based, centralized national register with standardized registration of all TB cases in Estonia. This TB Register is an electronic, person-based one with unique personal Estonian ID-codes, linking data with the Estonian Population Register, TB reference laboratory database, and Causes of Death Register. All data are cross-checked with health care providers.
Estonian Tuberculosis Register (Estonia)
Estonian Tuberculosis Register
National Institute for Health Development
Hiiu 42
Tallinn 11619
ESTONIA
Email: tuberkuloosiregister@tai.ee
Phone: +372 659 39 17
Email: tai@tai.ee
Phone: +372 659 39 00
1. Campbell JR, Chan ED, Falzon D, Trajman A, Keshavjee S, Leung CC, Miller AC, Monedero-Recuero I, Rodrigues DS, Seo H, Baghaei P, Udwadia Z, Viiklepp P, Bastos M, Menzies D. Low Body Mass Index at Treatment Initiation and Rifampicin-Resistant Tuberculosis Treatment Outcomes: An Individual Participant Data Meta-Analysis. Clin Infect Dis. 2022 Dec 19;75(12):2201-2210.
2. Cegielski JP, Chan PC, Lan Z, Udwadia ZF, Viiklepp P, Yim JJ, Menzies D. Aminoglycosides and Capreomycin in the Treatment of Multidrug-resistant Tuberculosis: Individual Patient Data Meta-analysis of 12 030 Patients From 25 Countries, 2009-2016. Clin Infect Dis. 2021 Dec 6;73(11):e3929-e3936.
3. Rahu K, Viiklepp P, Villand K, Pehme L, Rahu M. Respiratory tuberculosis incidence and mortality in Estonia: 30-year trends and sociodemographic determinants. Int J Tuberc Lung Dis. 2019 Jan 1;23(1):112-118.
4. Blöndal K, Rahu K, Altraja A, Viiklepp P, Rahu M. Overall and cause-specific mortality among patients with tuberculosis and multidrug-resistant tuberculosis. Int J Tuberc Lung Dis. 2013 Jul;17(7):961-8.
Jan 31, 2023: Three new profiles added
We are getting the new year off to a good start by adding three new profiles. We hope to keep adding more profiles each month going forward.
Icelandic Hospital Discharge Register (Iceland)
Arna Harðardóttir
Specialist, Health Information
Directorate of Health
Katrínartún 2
IS-105 Reykjavík
ICELAND
Phone: +354 510 1900
Email: arna.hardardottir@landlaeknir.is
N/A
Extensive use of data from the registry; recent studies being conducted with the focus on COVID19, but no references yet.
Malta National Cancer Registry (MNCR) (Malta)
Dr. Miriam Azzopardi
Consultant Public Health Medicine
Department for Policy in Health
Health Information and Research
Email: miriam.j.azzopardi@gov.mt
Phone: +356 25599208
Ms. Rita Micallef
Email: rita.t.micallef@gov.mt
1. Mercieca L, Aquilina S, Calleja N, Boffa MJ. Cutaneous Melanoma More Likely to Be Invasive in Fairer Skin Phototypes: A Retrospective Observational Study. Skinmed. 2021 Aug 1;19(4):280-283.
2. Cuschieri S, Pallari E, Terzic N, Alkerwi A, Sigurvinsdottir R, Sigfusdottir ID, Devleesschauwer B. Conducting national burden of disease studies in small countries in Europe- a feasible challenge? Arch Public Health. 2021 May 11;79(1):73.
3. Fidler MM, Bray F, Vaccarella S, Soerjomataram I. Assessing global transitions in human development and colorectal cancer incidence. Int J Cancer. 2017 Jun 15;140(12):2709-2715.
4. Gauci D, Allemani C, Woods L. Population-level cure of colorectal cancer in Malta: An analysis of patients diagnosed between 1995 and 2004. Cancer Epidemiol. 2016 Jun;42:32-8.
5. Gauci D, Woods L. Trends in survival of colorectal cancer in Malta for patients diagnosed from 1995 to 2009 followed up to 2010. Eur J Public Health, Volume 24, Issue suppl_2, October 2014, cku165-078 (https://doi.org/10.1093/eurpub/cku165.078)
6. Znaor A, van den Hurk C, Primic-Zakelj M, Agius D, Coza D, Demetriou A, Dimitrova N, Eser S, Karakilinc H, Zivkovic S, Bray F, Coebergh JW. Cancer incidence and mortality patterns in South Eastern Europe in the last decade: gaps persist compared with the rest of Europe. Eur J Cancer. 2013 May;49(7):1683-91.
Malta Rare Disease Register (Malta)
Dr. Francis Agius
Health Information & Research
95, G'Mangia Hill
G'Mangia, PTA 1313
MALTA
Email: francis.agius@gov.mt
Phone 1: +356 2559 9341
Phone 2: +356 2559 9000
Email: healthinfo@gov.mt
There are no publications to date. Please contact database manager for any abstracts, posters, or other reports.