Norwegian Cardiovascular Disease Registry (Norway)

Database Contact Data

Norwegian Institute of Public Health
Postboks 973 Sentrum
5808 Bergen
NORWAY
Phone number: +47 21 07 70 00 
Email: Folkehelseinstituttet@fhi.no

Alternate Contact

Ingvild Eide Graff
Director, Division of Health Data and Digitalisation
Postboks 973 Sentrum
5808 Bergen
NORWAY

References of Studies Using/Describing Database

1. Tverdal A, Magnus P. Mortality in Norwegian men and women with an incident myocardial infarction. European Journal of Preventive Cardiology. 2023 Nov;30(16):e72-3.

2. Forster RB, Kjellstadli C, Myklebust TÅ, Egeland G, Sulo G, Bjørge T, Bønaa KH, Juliusson PB, Kvåle R. Treatment and 30-day mortality after myocardial infarction in prostate cancer patients: A population-based study from Norway. Cardiology. 2023 Feb 28;148(1):83-92.

3. Gynnild MN, Hageman SHJ, Dorresteijn JAN, Spigset O, Lydersen S, Wethal T, Saltvedt I, Visseren FLJ, Ellekjær H. Risk Stratification in Patients with Ischemic Stroke and Residual Cardiovascular Risk with Current Secondary Prevention. Clin Epidemiol. 2021 Sep 17;13:813-823.

4. Ildstad F, Ellekjær H, Wethal T, Lydersen S, Fjærtoft H, Indredavik B. ABCD3-I and ABCD2 Scores in a TIA Population with Low Stroke Risk. Stroke Res Treat. 2021 Feb 25;2021:8845898.

5. Johannessen TR, Atar D, Vallersnes OM, Larstorp ACK, Mdala I, Halvorsen S. Comparison of a single high-sensitivity cardiac troponin T measurement with the HEART score for rapid rule-out of acute myocardial infarction in a primary care emergency setting: a cohort study. BMJ Open. 2021 Feb 24;11(2):e046024.

6. Brustugun OT. Cancer and coronavirus risk. Tidsskr Nor Laegeforen. 2021 Feb 1;141(2).

7. Mohamed Ali A, Wasim D, Løland KH, Rotevatn S, Bleie Ø, Saeed S. Impact of transcatheter aortic valve implantation on left ventricular function recovery, mass regression and outcome in patients with aortic stenosis: protocol of the TAVI-NOR prospective study. BMJ Open. 2021 Jan 20;11(1):e039961.

8. Kvåle R, Bønaa KH, Forster R, Gravningen K, Júlíusson PB, Myklebust TÅ. Does a history of cardiovascular disease or cancer affect mortality after SARS-CoV-2 infection? Tidsskr Nor Laegeforen. 2020 Dec 29;140(2).

9. Rostami S, Hoff M, Dalen H, Hveem K, Videm V. Genetic risk score associations for myocardial infarction are comparable in persons with and without rheumatoid arthritis: the population-based HUNT study. Scientific Reports. 2020 Nov 24;10(1):1-9.

10. Johannessen TR, Vallersnes OM, Halvorsen S, Larstorp AC, Mdala I, Atar D. Pre-hospital one-hour troponin in a low-prevalence population of acute coronary syndrome: OUT-ACS study. Open Heart. 2020 Jul 1;7(2):e001296.

Icelandic Coronary Event Register (Iceland)

Database Contact Data

Holtasmári 1, 2. floor
201 Kópavogur
ICELAND
Phone: +354 535-1800
Fax: +354 535-1801
Email: afgreidsla@hjarta.is

Alternate Contact

Email: johannag@hjarta.is

References of Studies Using/Describing Database

1. Aspelund T, Thorgeirsson G, Sigurdsson G, Gudnason V. Estimation of 10-year risk of fatal cardiovascular disease and coronary heart disease in Iceland with results comparable with those of the Systematic Coronary Risk Evaluation project. Eur J Cardiovasc Prev Rehabil. 2007 Dec;14(6):761-8. 

2. Aspelund T, Gudnason V, Magnusdottir BT, Andersen K, Sigurdsson G, Thorsson B, Steingrimsdottir L, Critchley J, Bennett K, O'Flaherty M, Capewell S. Analysing the large decline in coronary heart disease mortality in the Icelandic population aged 25-74 between the years 1981 and 2006. PLoS One. 2010 Nov 12;5(11):e13957. 

3. Andresdottir MB, Sigfusson N, Sigvaldason H, Gudnason V. Erythrocyte sedimentation rate, an independent predictor of coronary heart disease in men and women: The Reykjavik Study. Am J Epidemiol. 2003 Nov 1;158(9):844-51. 

4. Sigfusson N, Sigurdsson G, Agnarsson U, Gudmundsdottir II, Stefansdottir I, Sigvaldason H, Gudnason V. Declining coronary heart disease mortality in Iceland: contribution by incidence, recurrence and case fatality rate. Scand Cardiovasc J. 2002 Dec;36(6):337-41.

5. Tunstall-Pedoe H, Kuulasmaa K, Amouyel P, Arveiler D, Rajakangas AM, Pajak A. Myocardial infarction and coronary deaths in the World Health Organization MONICA Project. Registration procedures, event rates, and case-fatality rates in 38 populations from 21 countries in four continents. Circulation. 1994 Jul;90(1):583-612. 

Feb 14, 2023: We now have the Estonian Drug Treatment Register profile for you

The Estonian Drug Treatment Register was established in 2020. All health care providers treating drug dependence are required to send notification to the Register when starting or finishing a treatment episode. Each record contains personal identifiers (name and unique ID-code assigned to all residents of Estonia), socio-demographic characteristics, drugs used, date and code of diagnosis (ICD-10), as well as data on treatment episode.

Feb 9, 2023: Our 14th profile from Sweden has been uploaded

The Registry for Monitoring Fetal Damage and Chromosomal Abnormalities contains information on birth defects since 1964. Data from the Swedish Medical Birth Register are available since 1973, and data from the Swedish Patient Register are available since 1987. This specific register contains information on newborns, live births and stillborn children, who have a gestational age of at least 22 completed weeks of pregnancy and who have congenital malformations, deformities and chromosomal abnormalities.

Registry for Monitoring Fetal Damage and Chromosomal Abnormalities (Sweden)

Database Contact Data

Carina Gustafsson
Programme Officer, Phd
SOCIALSTYRELSEN
The National Board of Health and Welfare
Department of Registers and Statistics 
SE-106 30 Stockholm
SWEDEN
Phone: +46 75 247 30 00
Email: carina.gustafsson@socialstyrelsen.se

Alternate Contact

Mona Heurgren
SOCIALSTYRELSEN
The National Board of Health and Welfare
Department of Registers and statistics 
SE-106 30 Stockholm
SWEDEN
Email: mona.heurgren@socialstyrelsen.se

References of Studies Using/Describing Database

1. Nikkilä A, Källén B, Marsál K. Fetal growth and congenital malformations. Ultrasound Obstet Gynecol. 2007 Mar;29(3):289-95. 

2. Wennerholm UB, Bergh C, Hamberger L, Lundin K, Nilsson L, Wikland M, Källén B. Incidence of congenital malformations in children born after ICSI. Hum Reprod. 2000 Apr;15(4):944-8.

3. Kälién B, Robert E, Harris J. Associated malformations in infants and fetuses with upper or lower neural tube defects. Teratology. 1998 Feb;57(2):56-63.

4. Milerad J, Larson O, Hagberg C, Ideberg M. Associated malformations in infants with cleft lip and palate: a prospective, population-based study. Pediatrics. 1997 Aug;100(2 Pt 1):180-6.

5. Pradat P. Noncardiac malformations at major congenital heart defects. Pediatr Cardiol. 1997 Jan-Feb;18(1):11-8

6. Källén B, Harris J, Robert E. The epidemiology of orofacial clefts. 2. Associated malformations. J Craniofac Genet Dev Biol. 1996 Oct-Dec;16(4):242-8.

7. Pradat P. Epidemiology of major congenital heart defects in Sweden, 1981-1986. J Epidemiol Community Health. 1992 Jun;46(3):211-5.

8. Pradat P, Robert E. Is trisomy 18 increasing in Sweden? An analysis of the syndrome during a ten year period and a comparison with a French registry. Hereditas. 1991;114(1):97-102. 

9. Goel N, Morris JK, Tucker D, de Walle HEK, Bakker MK, Kancherla V, Marengo L, Canfield MA, Kallen K, Lelong N, Camelo JL, Stallings EB, Jones AM, Nance A, Huynh MP, Martínez-Fernández ML, Sipek A, Pierini A, Nembhard WN, Goetz D, Rissmann A, Groisman B, Luna-Muñoz L, Szabova E, Lapchenko S, Zarante I, Hurtado-Villa P, Martinez LE, Tagliabue G, Landau D, Gatt M, Dastgiri S, Morgan M. Trisomy 13 and 18-Prevalence and mortality-A multi-registry population based analysis. Am J Med Genet A. 2019 Dec;179(12):2382-2392.

10. Sabeti Rad Z, Friberg B, Henic E, Rylander L, Ståhl O, Källén B, Lingman G. Congenital malformations in offspring of women with a history of malignancy. Birth Defects Res. 2017 Feb 15;109(3):224-233. 

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