National Longitudinal Study of Adolescent to Adult Health (Add Health) (USA)

Database Contact Data

Sarah Dean, JD
Project Manager
Add Health
Carolina Population Center
University of North Carolina at Chapel Hill
CB# 8120 Carolina Square, Suite 210
123 West Franklin Street
Chapel Hill, NC 27516
USA
Phone: +1 919-962-6090
Email: deansa@email.unc.edu

Alternate Contact

1. Sydney Will, MPH-PAPH
Data Dissemination Coordinator
Carolina Population Center
University of North Carolina at Chapel Hill
CB #2164-H Carolina Square, Suite 210
123 West Franklin Street
Chapel Hill, NC 27516
USA
Phone: +1 (919) 445-6955 
Email: sydneylw@email.unc.edu

2. You may also complete the "contact us" form on this page: https://addhealth.cpc.unc.edu/about/contact-us/
Please refer to the list of resources on the page, so you can contact the appropriate department.

References of Studies Using/Describing Database

1. Chiang SC, Bai S, Linden-Carmichael AN. Timing of Adolescent Alcohol Initiation and Mental Health Problems in Adulthood: The Role of Parent-Adolescent Closeness. Psychol Rep. 2025 Jul 7:332941251358489. doi: 10.1177/00332941251358489. Epub ahead of print.

2. Assaraf N, Factor R. Delinquency among children of incarcerated parents: The role of pre-incarceration parental attachment. Journal of Criminal Justice. 2025 Jul 1;99:102456.

3. Bulczak G. Intragenerational Household Net Worth Mobility and Mental Health Outcomes in the United States. Social Science Quarterly. 2025 Jul;106(4):e70056.

4. Alua M, Rinat K, Dulatovich KM, Sovetovna SI, Talgatovna SZ, Beaver KM. The Neuropsychological Consequences of being Arrested and Incarcerated. American Journal of Criminal Justice. 2025 Jun 5:1-9.

5. Bernardi F, Ghirardi G. Socioeconomic Status, Genotype, and the Differential Effects of Parental Separation on Educational Attainment. Demography. 2025 Jun 1;62(3):1109-1136.

6. Chen J, Weng A. The effects of adolescent depression and attention-deficit/hyperactivity disorder on educational attainment in adulthood. Econ Hum Biol. 2025 May 29;58:101498. doi: 10.1016/j.ehb.2025.101498. Epub ahead of print.

7. Chen S, Koning S, Polos J, Lam P, Hargrove T, Ebner N, Aronoff J, McDade T. Teacher unfairness in adolescence, educational attainment, and adult Health: The role of school-and individual-level perceptions tested in a national cohort study. SSM-Population Health. 2025 Apr 25:101810.

8. Aiello AE, Momkus J, Stebbins RC, Zhang YS, Martin CL, Yang YC, Gaydosh L, Hargrove T, Al Hazzouri AZ, Harris KM. Risk factors for Alzheimer's disease and cognitive function before middle age in a U.S. representative population-based study. Lancet Reg Health Am. 2025 Apr 5;45:101087.

9. Chae YJ, Chernoff W. Self-Control in Context: How Hopelessness Shapes the Effect of Self-Control on Adolescent Delinquency. Deviant Behavior. 2025 Mar 28:1-7.

10. Baltabekovna MS, Bekmuratovna OA, Zhakslykkyzy ZA, Karibayevna AS, Beaver KM. Adolescent sports, violent delinquency, and being processed through the criminal justice system: A longitudinal analysis of males. Journal of Criminal Justice. 2025 Mar 1;97:102381.

Medical Data Vision (EBM Provider®) Health Insurance Association Database (Japan)

Database Contact Data

Medical Data Vision Co., Ltd.
Sumitomo Fudosan Kanda Bldg.
7 Kandamitoshirocho 
Chiyoda-ku
Tokyo 101-0053 
JAPAN
Phone: +81 3 5283 6911
Fax: +81 3 5283 6811
Email: ebm_sales@mdv.co.jp (English acceptable)

Alternate Contact

Please complete the contact form:https://en.mdv.co.jp/application/contactus/form.php

References of Studies Using/Describing Database

N/A

Jun 16, 2021: New database profile from the Netherlands

Managed by the Netherlands Comprehensive Cancer Organisation (IKNL), the Netherlands Cancer Registry is the only oncological hospital registry in the Netherlands with data on all cancer patients. Data are available on national level from 1989 onwards. The Netherlands has about 17,000,000 inhabitants. Annually, there are 116,500 new diagnoses of cancer and 44,000 cancer deaths in the Netherlands.

Netherlands Cancer Registry (Netherlands)

Database Contact Data

Jolanda Sinha
Press Officer
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: j.sinha@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 34 62 02 29

Alternate Contact

Dr. Otto Visser
Head of Cancer Registration
Postbus 19079, 3501 DB
Utrecht
THE NETHERLANDS
Email: o.visser@iknl.nl
Phone: + 31 88 234 60 00
Mobile: +31 6 18 41 86 67

References of Studies Using/Describing Database

1. Galanos LJK, Rijken A, Elferink MAG, Kok NFM, van Erning FN, De Hingh IHJT. Influence of a nationwide colorectal cancer screening program on the incidence of synchronous colorectal peritoneal metastases. Int J Cancer. 2025 Jul 15;157(2):232-238.

2. van Maaren MC, Voorham QJM, Wijnen EM, de Munck L, Wesseling J, Visser O, Siesling S. Notification of locoregional breast cancer recurrence based on pathology reports: A nationwide validation study with the Netherlands Cancer Registry. Cancer Epidemiol. 2025 Jun;96:102780. 

3. Kuijper SC, Gehrels AM, van der Geest LG, Verhoeven RHA, Koerkamp BG, Molenaar IQ, Stommel MWJ, de Meijer VE, de Vos-Geelen J, Wumkes ML, Besselink MG, Wilmink JW, van Laarhoven HWM; Dutch Pancreatic Cancer Group. Survival scenarios of patients with localized and metastatic pancreatic adenocarcinoma: A population-based study. Int J Cancer. 2025 May 1;156(9):1726-1735.

4. Darai A, Koëter T, van Erning FN, van Alphen RJ, Verheul HMW, Verheij M, Zimmerman DDE, Vissers PAJ, de Wilt JHW. The role of adjuvant chemotherapy in rectal cancer: A nationwide cohort study from the Netherlands. Colorectal Dis. 2025 Mar;27(3):e70054.

5. Jutten E, van Kempen LCLT, Diercks GFH, van Leeuwen BL, Kruijff S, Wevers KP. Real-World Evidence of the Prevalence of Driver Mutations in Anorectal Melanoma. Mol Diagn Ther. 2025 Mar;29(2):229-238.

6. Yildirim H, Richters A, Bins AD, Postema AW, Aarts MJB, van Oijen MGH, Zondervan PJ, Aben KKH. Immunotherapy in metastatic renal cell carcinoma: Insights from a Dutch nationwide cohort. Eur Urol Open Sci. 2025 Feb 10;72:42-45.

7. van Doorn-Wink KCJ, Postmus PE, de Ruysscher D, Damhuis RAM. Ninety-day mortality following curative intent radiotherapy for stage I-III lung cancer in the Netherlands. Radiother Oncol. 2025 Feb;203:110661.

8. van Laarhoven H, Verhoeven R, van Berge Henegouwen M, Mohammad NH, van Hillegersberg R, Slingerland M, Muijs CT, Wijnhoven B, Mostert B, Beerepoot L, Nieuwenhuijzen G, Derks S, van Rossum PSN. Real-world outcomes of the CROSS regimen in patients with resectable esophageal or gastro-esophageal junction adenocarcinoma: a nationwide cohort study in the Netherlands. EClinicalMedicine. 2025 Jan 22;80:103067.

9. Westerveld ASR, Tytgat GAM, van Santen HM, van Noesel MM, Loonen J, de Vries ACH, Louwerens M, Koopman MMW, van der Heiden-van der Loo M, Janssens GO, de Krijger RR, Ronckers CM, van der Pal HJH, Kremer LCM, Teepen JC. Long-Term Risk of Subsequent Neoplasms in 5-Year Survivors of Childhood Neuroblastoma: A Dutch Childhood Cancer Survivor Study-LATER 3 Study. J Clin Oncol. 2025 Jan 10;43(2):154-166.

10. Mülder DT, van de Schootbrugge-Vandermeer HJ, O'Mahony JF, Sun D, Han W, Verhoeven RHA, van Loo M, van de Veerdonk W, Spaander MCW, Lansdorp-Vogelaar I. Gastric Cancer Risk among Immigrants and Socioeconomic Groups in the Netherlands. Cancer Epidemiol Biomarkers Prev. 2025 Jan 9;34(1):85-92.

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