Have you ever wanted to try our nonprofit resource, www.bridgetodata.org, to conduct a search and find the right database or registry for your project or research work? If so, this would be a great time, because new users get 10% off – but only through the end of September.
The Estonian Abortion Registry is run by the National Institute for Health Development. Information about all induced abortions is collected in the central digital Abortion Registry since 1996. Data are collected from an Abortion Card which is filled in for every abortion that has taken place in a health care institution by all health care institutions (incl. private doctors) who do abortions or provide medical care to women who have had an abortion.
Kärt Allvee
Head of Estonian Abortion Registry
National Institute for Health Development
Paldiski road 80
10617, Tallinn
ESTONIA
Phone: +372 5198 7407
Email 1: kart.allvee@tai.ee
Email 2: tai@tai.ee
Viktoria Serkina
Estonia Hiiu 42
11619 Tallinn
ESTONIA
Email: viktoria.serkina@tai.ee
Phone: +372 659 3993
1. Süüden EL, Muru K, Põder K, Rull K. The prevalence of congenital anomalies: nationwide study in 2020 in Estonia. J Matern Fetal Neonatal Med. 2023 Dec;36(2):2259050.
2. Haldre K, Rahu M, Allvee K, Rahu K. Trends in teenage delivery and abortion rates in Estonia over more than two decades: a nationwide register-based study. Eur J Public Health. 2021 Oct 11;31(4):790-796.
3. Lubi K, Uibu M, Koppel K, Mets-Oja S. The rising impact of civic activism on health policy: The analysis of the closure of smaller obstetric units in Estonia. Health Policy. 2020 Nov 1;124(11):1239-44.
4. Veerus P. Induced abortions in Estonia, 1992-2017: registry-based study. European Journal of Public Health. 2019 Nov 1;29(Supplement_4):ckz186-114.
5. Allvee K, Rahu M, Haldre K, Karro H, Rahu K. Quality of IVF status registration in the Estonian Medical Birth Registry: a national record linkage study. Reproductive health. 2018 Dec;15(1):1-7.
6. Blondel B, Cuttini M, Hindori‐Mohangoo AD, Gissler M, Loghi M, Prunet C, Heino A, Smith L, van der Pal‐de Bruin K, Macfarlane A, Zeitlin J. How do late terminations of pregnancy affect comparisons of stillbirth rates in Europe? Analyses of aggregated routine data from the Euro‐Peristat Project. BJOG: An International Journal of Obstetrics & Gynaecology. 2018 Jan;125(2):226-34.
7. Postoev VA, Grjibovski AM, Odland JO. Population-based medical birth registries as tools for birth defects surveillance and investigation of their risk factors. Ekologiya cheloveka (Human Ecology). 2017 Dec 15(1):52-62.
8. Mõtus K, Emanuelson U. Risk factors for on-farm mortality in beef suckler cows under extensive keeping management. Res Vet Sci. 2017 Aug;113:5-12.
9. Jakimaviciene EM, Tutkuviene J, Isakova J, Morkuniene R, Drazdiene N, Basys V. Changes in Total Number of Births and Birth Size during the 1995-2013: The Reflection of Socio-Economic Fluctuations in Lithuania?. Collegium antropologicum. 2017 Jul 2;41(2):97-107.
10. Oja L. Why is a “good abortion law” not enough? The case of Estonia. Health and human rights. 2017 Jun;19(1):161.
The Rheumatology Informatics System for Effectiveness (RISE) registry is a Qualified Clinical Data Registry (QCDR) developed by the American College of Rheumatology to help clinicians and researchers. RISE is the first and largest electronic health record (EHR)-enabled rheumatology registry collecting 2.6 Million records in the United States since 2014. It is a rheumatology-specific registry and includes patients with all medical conditions seen by a rheumatologist and all insurance types.
Tracy Johansson, MS
Sr. Director, Registry
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 105
Email: tjohansson@rheumatology.org
Tom Tack
Director, Registry Analytics
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: +1 404-633-3777, ext. 137
Email: ttack@rheumatology.org
1. Li J, Baker R, Stovall R, Curtis JR, Xie F, Yazdany J, Schmajuk G. Agreement of Medication Information Derived From EHR Data Compared to Medicare Insurance Claims: An Analysis of Biologic Disease-Modifying Antirheumatic Drugs. Pharmacoepidemiol Drug Saf. 2024 Oct;33(10):e70020.
2. Palmowski A, Roberts ET, Li J, Kersey E, Stovall R, Buttgereit F, Yazdany J, Schmajuk G. Initiation of glucocorticoids before entering rheumatology care associates with long-term glucocorticoid use in older adults with early rheumatoid arthritis: A joint analysis of Medicare and the Rheumatology Informatics System for Effectiveness (RISE) data. Semin Arthritis Rheum. 2024 Oct;68:152535.
3. Clowse MEB, Li J, Snyderman A, Schmajuk G. Alignment of contraception use with the ACR reproductive health guidelines in women with systemic lupus erythematosus within the RISE registry. Lupus Sci Med. 2024 Aug 24;11(2):e001192.
4. Kersey E, Li J, Kay J, Adler-Milstein J, Yazdany J, Schmajuk G. Development and application of Breadth-Depth-Context (BDC), a conceptual framework for measuring technology engagement with a qualified clinical data registry. JAMIA Open. 2024 Jul 26;7(3):ooae061.
5. Roberts ET, Schmajuk G, Li J, Murrill M, Yazdany J. Latent Tuberculosis Screening Among New Users of a Biologic or Targeted Synthetic Disease-Modifying Antirheumatic Drug: Gaps in Screening Overall and Among Janus Kinase Inhibitors. Arthritis Care Res (Hoboken). 2024 Jul;76(7):1037-1044.
6. Bridges JM, Li J, Mannion ML, Clowse MEB, Schmajuk G, Singh JA. Contraception Care Patterns for Adult Females With Juvenile Idiopathic Arthritis on Teratogens in the Rheumatology Informatics System for Effectiveness (RISE) Registry. J Rheumatol. 2024 May 1;51(5):542-545.
7. Holladay EE, Mudano AS, Xie F, Zhang J, Mikuls TR, LaMoreaux B, Padnick-Silver L, Curtis JR. Urate-lowering therapy, serum urate, inflammatory biomarkers, and renal function in patients with gout following pegloticase discontinuation. Arthritis Res Ther. 2024 Apr 12;26(1):86.
8. Sattui SE, Xie F, Wan Z, Clinton C, Domsic RT, Curtis JR. Treatment of Polymyalgia Rheumatica by Rheumatology Providers: Analysis from the American College of Rheumatology RISE Registry. Arthritis Care Res (Hoboken). 2024 Feb;76(2):259-264.
9. Hammam N, Li J, Kay J, Izadi Z, Yazdany J, Schmajuk G. Monitoring and Achievement of Target Serum Urate Among Gout Patients Receiving Long-Term Urate-Lowering Therapy in the American College of Rheumatology RISE Registry. Arthritis Care Res (Hoboken). 2023 Jul;75(7):1544-1552.
10. Hammam N, Evans M, Bell CF, Gairy K, Yazdany J, Schmajuk G. Evaluating the Use of Glucocorticoids Among Belimumab‐Treated Patients With Systemic Lupus Erythematosus in Real‐World Settings Using the Rheumatology Informatics System for Effectiveness Registry. ACR open rheumatology. 2022 Oct;4(10):883-9.
