Surveillance, Epidemiology, and End Results (SEER): CAHPS - Consumer Assessment of Healthcare Providers and Systems (USA)

Database Contact Data

For more information or additional guidance on SEER-CAHPS, please contact the SEER-CAHPS staff at NCISEERCAHPS@mail.nih.gov.

Alternate Contact

You may also contact the SEER-CAHPS staff by completing this contact form at https://healthcaredelivery.cancer.gov/seer-cahps/contact.html

References of Studies Using/Describing Database

1. Pandit AA, Patil NN, Mostafa M, Kamel M, Halpern MT, Li C. Rural-Urban Disparities in Patient Care Experiences among Prostate Cancer Survivors: A SEER-CAHPS Study. Cancers (Basel). 2023 Mar 23;15(7):1939.

2. Arevalo M, Pickering TA, Vernon SW, Fujimoto K, Peskin MF, Farias AJ. Do breast cancer survivors with a recent history of clinical depression report worse experiences with care? A retrospective cohort study using SEER-CAHPS data. Cancer Med. 2023 Jan;12(2):1949-1960.

3. Pandit AA, Gressler LE, Halpern MT, Kamel M, Payakachat N, Li C. Racial/Ethnic Disparities in Patient Care Experiences among Prostate Cancer Survivors: A SEER-CAHPS Study. Curr Oncol. 2022 Nov 1;29(11):8357-8373.

4. Wardrop RC, Cass AL, Quinn SA, Wercholuk AN, Parikh AA, Snyder RA. Racial and ethnic differences in patient ratings of colorectal and non-small-cell lung cancer care: A SEER-CAHPS study. Cancer Causes Control. 2022 Sep;33(9):1125-1133. 

5. Navarro S, Hu X, Mejia A, Ochoa CY, Pickering TA, Ballas L, Farias AJ. Racial/ethnic disparities in patient experiences with care and Gleason score at diagnosis of prostate cancer: a SEER-CAHPS study. Cancer Causes Control. 2022 Apr;33(4):601-612. 

6. DiMartino LD, Kirschner J, Jackson GL, Mollica MA, Lines LM. Are care experiences associated with survival among cancer patients? An analysis of the SEER-CAHPS data resource. Cancer Causes Control. 2021 Sep;32(9):977-987.

7. Mohan CS, Rotter JS, Tan HJ, Kent E, Bjurlin MA, Basch E, Samuel C, Nielsen M, Smith AB. The association between patient experience and healthcare outcomes using SEER-CAHPS patient experience and outcomes among cancer survivors. J Geriatr Oncol. 2021 May;12(4):623-631.

8. Mollica MA, Buckenmaier SS, Halpern MT, McNeel TS, Weaver SJ, Doose M, Kent EE. Perceptions of care coordination among older adult cancer survivors: A SEER-CAHPS study. J Geriatr Oncol. 2021 Apr;12(3):446-452. 

9. Farias AJ, Toledo G, Ochoa CY, Hamilton AS. Racial/Ethnic Disparities in Patient Experiences With Health Care in Association With Earlier Stage at Colorectal Cancer Diagnosis: Findings From the SEER-CAHPS Data. Med Care. 2021 Apr 1;59(4):295-303.

10. Lines LM, Cohen J, Kirschner J, Halpern MT, Kent EE, Mollica MA, Smith AW. Random survival forests using linked data to measure illness burden among individuals before or after a cancer diagnosis: Development and internal validation of the SEER-CAHPS illness burden index. Int J Med Inform. 2021 Jan;145:104305. 

May 10, 2023: B.R.I.D.G.E. TO DATA services for your database-related projects

In addition to our online compendium of healthcare database profiles, the B.R.I.D.G.E. TO DATA® team also provides assistance for your database-related projects. Whether it's conducting comprehensive database searches, identifying data sources, communicating with data vendors, or developing a customized searchable database repository, our team is ready to help.

Mariam Shokralla, MPH

B.R.I.D.G.E. TO DATA is a unique one-stop for all databases you might need for any research purpose. A unique user-friendly directory to search for databases from all over the world, you can easily grasp what each database can offer you without wasting time on each one.

Apr 28, 2023: View our latest newsletter looking back at what we accomplished in 2022

2022 had us busy profiling databases from around the world (currently 400), including the first ones from six countries. We made several enhancements and also lowered the “global” subscription rate to make our resource more affordable to locate databases of interest. Would you complete our 2-minute survey regarding how you could benefit from B.R.I.D.G.E.?

Norwegian Surveillance System for Communicable Diseases (Norway)

Database Contact Data

Christina Bergland
Executive Director, Division of Health Data and Digitalisation
Norwegian Institute of Public Health
NORWAY
Email: Christine.Bergland@fhi.no

Alternate Contact

For data access, send an email to datatilgang@fhi.no

General contact information for MSIS -
Phone: (+47) 2107 7000

References of Studies Using/Describing Database

1. Tipu JH, Sivertsen A, Afset JE, Sandven L, Brekke H, Lund HM, Elburg LS, Gaustad P, Lier T, Tverelv LR, Johansen ØH. Cryptosporidium species and subtypes in Norway: predominance of C. parvum and emergence of C. mortiferum. Emerging Microbes & Infections. 2024 Dec 31;13(1):2412624.

2. Tunheim G, Fossum E, Robertson AH, Rø GØ, Chopra A, Vaage JT, Vikse EL, Kran AM, Magnus P, Trogstad L, Mjaaland S. Characterization of the SARS-CoV-2 antibody landscape in Norway in the late summer of 2022: high seroprevalence in all age groups with patterns of primary Omicron infection in children and hybrid immunity in adults. BMC Infectious Diseases. 2024 Aug 20;24(1):841.

3. Trinh NT, Houghtaling J, Bernal FL, Hayati S, Maglanoc LA, Lupattelli A, Halvorsen L, Nordeng HM. Harmonizing Norwegian registries onto OMOP common data model: Mapping challenges and opportunities for pregnancy and COVID-19 research. International Journal of Medical Informatics. 2024 Aug 14:105602.

4. Salamanca BV, Cyr PR, Bentdal YE, Watle SV, Wester AL, Strand ÅM, Bøås H. Increase in invasive group A streptococcal infections (iGAS) in children and older adults, Norway, 2022 to 2024. Eurosurveillance. 2024 May 16;29(20):2400242.

5. Jore S, Viljugrein H, Hjertqvist M, Dub T, Mäkelä H. Outdoor recreation, tick borne encephalitis incidence and seasonality in Finland, Norway and Sweden during the COVID-19 pandemic (2020/2021). Infection Ecology & Epidemiology. 2023 Dec 31;13(1):2281055.

6. Hetlevik Ø, Wensaas KA, Baste V, Emberland KE, Özgümüs T, Håberg SE, Rortveit G. Prevalence and predictors of post-COVID-19 symptoms in general practice-a registry-based nationwide study. BMC Infectious Diseases. 2023 Oct 25;23(1):721.

7. Gravningen K, Nymark P, Wyller TB, Kacelnik O. A new automated national register-based surveillance system for outbreaks in long-term care facilities in Norway detected three times more severe acute respiratory coronavirus virus 2 (SARS-CoV-2) clusters than traditional methods. Infection Control & Hospital Epidemiology. 2023 Sep;44(9):1451-7.

8. Whittaker R, Toikkanen S, Dean K, Lyngstad TM, Buanes EA, Kløvstad H, Paulsen TH, Seppälä E. A comparison of two registry-based systems for the surveillance of persons hospitalised with COVID-19 in Norway, February 2020 to May 2022. Eurosurveillance. 2023 Aug 17;28(33):2200888.

9. Caspersen IH, Trogstad L, Galanti MR, Karvonen S, Peña S, Shaaban AN, Håberg SE, Magnus P. Current tobacco use and SARS-CoV-2 infection in two Norwegian population-based cohorts. BMC Public Health. 2023 May 10;23(1):846.

10. Skagseth H, Jørgensen SB, Reilly J, Kacelnik O. A new method for near real-time, nationwide surveillance of nosocomial COVID-19 in Norway: providing data at all levels of the healthcare system, March 2020 to March 2022. Eurosurveillance. 2023 Mar 23;28(12):2200493.

Apr 26, 2023: Learn all about the Icelandic Register of Communicable Diseases

Starting in 1997, the Icelandic Register of Communicable Diseases includes diseases, agents causing diseases and events, immunisations, and use of antimicrobial drugs, and is intended to be of use in preventive measures and in epidemiological research. Notifiable communicable diseases which can pose a threat to public welfare are subject to registration.

Icelandic Register of Communicable Diseases (Iceland)

Database Contact Data

Sigríður Haralds Elínardóttir
Head of Division, Health Information
Directorate of Health
Katrínartún 2 
IS – 105 Reykjavík
ICELAND
Phone: +354 510 1900
Email: sigridur.haraldsd.elinardottir@landlaeknir.is

Alternate Contact

Directorate of Health
Katrínartún 2
105 Reykjavík
Kt. 710169-5009
ICELAND
Tel: + 354 510 1900
E-mail: mottaka@landlaeknir.is

References of Studies Using/Describing Database

N/A

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