May 31, 2023: The Norwegian Cause of Death Registry profile has just been added

This registry collects data on deaths by age, sex, cause, place of death, and place of residence for Norway. It contains digitized cause of death data dating back to 1951. Electronic death certificates were introduced in 2018, and electronic delivery is mandatory since January 1, 2022. The registry collects death certificates for all deaths that occur in the country, including deceased who are not registered as inhabitants of Norway. It also registers the deaths of Norwegians who die abroad.

Norwegian Cause of Death Registry (Norway)

Database Contact Data

Silje Rognsvåg Reistad
Produkteier Dødsårsaksregisteret
Avdeling for helseregistre
Folkehelseinstituttet
NORWAY
Postadresse: Folkehelseinstituttet, Postboks 973 Sentrum, 5808 Bergen, Norway
Besøksadresse: Zander Kaaes gate 7, 5015 Bergen, Norway 
Phone: +47 21 07 70 63
Email: Silje.Rognsvag.Reistad@fhi.no

Alternate Contact

You can email datatilgang@fhi.no for enquiries about health registries at NIPH; they will be directed to the correct person depending on the registry and topic

References of Studies Using/Describing Database

1. Eng HM, Sveen KA, Fagerås SJ, Strøm MS, Diep LM, Juliusson PB, Alfsen GC. Introduction of electronic death notification in Norway-Impact on diabetes mortality registration. PLoS One. 2024 Dec 2;19(12):e0311106.

2. Kristensen JH, Baravelli CM, Leino T, Pallesen S, Griffiths MD, Erevik EK. Association between gambling disorder and suicide mortality: a comparative cohort study using Norwegian health registry data. Lancet Reg Health Eur. 2024 Nov 11;48:101127.

3. Nilsson A, Emilsson L, Kepp KP, Knudsen AKS, Forthun I, Madsen C, Björk J, Lallukka T. Cause-specific excess mortality in Denmark, Finland, Norway, and Sweden during the COVID-19 pandemic 2020-2022: a study using nationwide population data. Eur J Epidemiol. 2024 Sep;39(9):1037-1050.

4. Kostovski E, Hamina A, Hjellvik V, Clausen T, Skurtveit S. Increased cancer incidence and mortality among people with opioid use-related disorders: A nation-wide cohort study. Addiction. 2024 Sep;119(9):1575-1584.

5. Aune D, Vardaxis I, Lindqvist BH, Brumpton BM, Strand LB, Horn JW, Bakken IJ, Romundstad PR, Mukamal KJ, Ljung R, Janszky I, Sen A. Dispensed prescription medications and short-term risk of pulmonary embolism in Norway and Sweden. Sci Rep. 2024 Aug 29;14(1):20054.

6. Michel YA, Aas E, Augestad LA, Burger E, Thoresen L, Bjørnelv GMW. Healthcare use and costs in the last six months of life by level of care and cause of death. BMC Health Serv Res. 2024 May 30;24(1):688.

7. Bjørnelv GW, Aas E, Aaltonen M, Hagen TP, Thoresen L, Forma L. Place of living at end-of-life according to cause of death: a comparative analysis of all decedents 70 years or older in 2009-2013 in Finland and Norway. Ann Palliat Med. 2024 May;13(3):496-512.

8. Wyatt S, Kvalvik LG, Singh A, Klungsøyr K, Østbye T, Skjærven R. Heterogeneity in the risk of cardiovascular disease mortality after the hypertensive disorders of pregnancy across mothers' lifetime reproductive history. Paediatr Perinat Epidemiol. 2024 Mar;38(3):230-237.

9. Strømme MF, Bartz-Johannessen C, Kjelby E, Mehlum L, Mykletun A, Kroken RA, Johnsen E, Gjestad R. Risk factors for mortality in patients admitted to a psychiatric acute ward: A prospective cohort study. Acta Psychiatr Scand. 2024 Mar;149(3):244-255.

10. Raknes G, Fagerås SJ, Sveen KA, Júlíusson PB, Strøm MS. Excess non-COVID-19 mortality in Norway 2020-2022. BMC Public Health. 2024 Jan 22;24(1):244.

May 30, 2023: Our 5th healthcare database profile from Sweden

Part of Riks-Stroke (RS), the Swedish Stroke Register established in 1994, a national register for acute stroke care; all Swedish hospitals admitting acute stroke and TIA (Transient Ischemic Attacks) patients participate. The Transient Ischemic Attacks (TIA) Registry contains more than 100,000 total TIA events recorded. This makes RS one of the world’s largest TIA registers.

Transient Ischemic Attacks (TIA) Registry (Sweden)

Database Contact Data

Mia von Euler
Professor of Neurology 
Örebro University
SWEDEN
Email: mia.von-euler@oru.se

Alternate Contact Email: riksstroke@regionvasterbotten.se

Alternate Contact

Marie Eriksson
Professor 
Umeå University
SWEDEN
Email: marie.eriksson@umu.se

References of Studies Using/Describing Database

1. Mavridis A, Abzhandadze T, Viktorisson A, Sunnerhagen KS. Physical activity modification following a Transient Ischemic Attack in individuals with diabetes. Cardiovasc Diabetol. 2024 Aug 7;23(1):288.

2. Ullberg T, Von Euler M, Wester P, Arnberg F, Norrving B, Andersson T, Wassélius J. Endovascular thrombectomy for anterior circulation stroke beyond 6 hours of onset in Sweden 2015 to 2020: rates and outcomes in a nationwide register-based study. Journal of neurointerventional surgery. 2023 Apr 1;15(4):330-5.

3. Mellander H, Bengtsson P, Fransson V, Ramgren B, Undrén P, Drake M, Ydström K, Lätt J, Hilal A, Wassélius J, Ullberg T. Virtual monoenergetic images by spectral detector computed tomography may improve image quality and diagnostic ability for ischemic lesions in acute ischemic stroke. Acta Radiologica. 2023 Apr;64(4):1631-40.

4. Hillal A, Sultani G, Ramgren B, Norrving B, Wassélius J, Ullberg T. Accuracy of automated intracerebral hemorrhage volume measurement on non-contrast computed tomography: a Swedish Stroke Register cohort study. Neuroradiology. 2023 Mar;65(3):479-88.

5. Drescher C, Buchwald F, Ullberg T, Pihlsgård M, Norrving B, Petersson J. Epidemiology of First and Recurrent Ischemic Stroke in Sweden 2010–2019: A Riksstroke Study. Neuroepidemiology. 2023 Feb 17;56(6):433-42.

6. Broberg E, Hjalmarsson C, Setalani M, Milenkoski R, Andersson B. Sex Differences in Treatment and Prognosis of Acute Intracerebral Hemorrhage. Journal of Women's Health. 2023 Jan 1;32(1):102-8.

7. Apostolaki‐Hansson T, Ullberg T, Norrving B, Petersson J. Patient factors associated with receiving reversal therapy in oral anticoagulant‐related intracerebral hemorrhage. Acta Neurologica Scandinavica. 2022 Nov;146(5):590-7.

8. Oldgren J, Åsberg S, Hijazi Z, Wester P, Bertilsson M, Norrving B, National TIMING Collaborators. Early versus delayed non–vitamin k antagonist oral anticoagulant therapy after acute ischemic stroke in atrial fibrillation (TIMING): a registry-based randomized controlled noninferiority study. Circulation. 2022 Oct 4;146(14):1056-66.

9. Rydell M, Wester P, Laska AC, Rudberg AS. Maintained acute stroke admission during the first wave COVID-19 pandemic in Sweden, a register-based study. Journal of Stroke and Cerebrovascular Diseases. 2022 Oct 1;31(10):106686.

10. Rydell M, Wester P, Laska AC, Rudberg AS. Maintained acute stroke admission during the first wave COVID-19 pandemic in Sweden, a register-based study. J Stroke Cerebrovasc Dis. 2022 Oct;31(10):106686.

May 24, 2023: Compare SEER’s Consumer Assessment of Healthcare Providers and Systems (CAHPS) with other healthcare databases.

SEER-CAHPS is a resource for quality of cancer care research based on a linkage between the NCI's Surveillance, Epidemiology and End Results (SEER) cancer registry data and the Centers for Medicare & Medicaid Services' (CMS) Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS®) patient surveys. The SEER Program works to provide information on cancer statistics in an effort to reduce the burden of cancer among the U.S. population.

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