Next Steps (formerly Longitudinal Study of Young People in England - LSYPE) (United Kingdom)

Database Contact Data

Centre for Longitudinal Studies
UCL Social Research Institute
20 Bedford Way
London WC1H 0AL
UNITED KINGDOM
Phone: +44 020 7612 6875
Email: clsdata@ucl.ac.uk

Alternate Contact

1. If you cannot reach the database manager, you may contact the company by completing the contact form at: https://cls.ucl.ac.uk/contact/

2. To access Next Steps data, apply to:
UK Data Service 
University of Essex
Wivenhoe Park
Colchester
Essex, CO4 3SQ
UNITED KINGDOM
Phone: +44 (0)1206 872143
Website: https://cls.ucl.ac.uk/data-access-training/data-access/

References of Studies Using/Describing Database

1. Martínez-Jiménez M, Hollingsworth B, Zucchelli E. Austerity and waiting times: Evidence on reproductive health care delays among young millennials in deprived areas. Public Health. 2025 May 1;242:111-6.

2. Shaw RJ, Hamilton OK, Rhead R, Silverwood RJ, Wels J, Zhu J, Di Gessa G, Bowyer RC, Moltrecht B, Green MJ, Demou E. Associations between different measures of SARS-CoV-2 infection status and subsequent economic inactivity: A pooled analysis of five longitudinal surveys linked to healthcare records. Plos one. 2025 Apr 9;20(4):e0321201.

3. Gittins M, Wels J, Rhodes S, Demou E, Shaw RJ, Hamilton OK, Zhu J, Wielgoszewska B, Stevenson A, Badrick E, Rhead R. COVID-19 risk by work-related factors: pooled analysis of individual linked data from 14 cohorts. Occupational and environmental medicine. 2024 Dec 1;81(11):564-73.

4. Narayanan MK, Dodgeon B, Katsoulis M, Ploubidis GB, Silverwood RJ. How to mitigate selection bias in COVID-19 surveys: evidence from five national cohorts. European Journal of Epidemiology. 2024 Nov;39(11):1221-7.

5. Rhead R, Wels J, Moltrecht B, Shaw RJ, Silverwood R, Zhu J, Hughes A, Chaturvedi N, Demou E, Katikireddi SV, Ploubidis G. Long COVID and financial outcomes: evidence from four longitudinal population surveys. J Epidemiol Community Health. 2024 Jul 1;78(7):458-65.

6. Mansfield R, Henderson M, Richards M, Ploubidis GB, Patalay P. Lifecourse trajectories and cross-generational trends in social isolation: findings from five successive British birth cohort studies. Advances in Life Course Research. 2024 Jun 1;60:100613.

7. Rouxel P, Chandola T. No substitute for in-person interaction: changing modes of social contact during the coronavirus pandemic and effects on the mental health of adults in the UK. Sociology. 2024 Apr;58(2):330-50.

8. Kaye N. The cumulative impact of socioeconomic disadvantage on educational attainment during austerity: a comparative cross-cohort approach. Oxford Review of Education. 2024 Mar 3;50(2):186-206.

9. Moreno-Agostino D, Woodhead C, Ploubidis GB, Das-Munshi J. A quantitative approach to the intersectional study of mental health inequalities during the COVID-19 pandemic in UK young adults. Social Psychiatry and Psychiatric Epidemiology. 2024 Mar;59(3):417-29.

10. Burger K, Becker M, Schoon I. Mental health and educational attainment: How developmental stage matters. Developmental psychology. 2024 Jan;60(1):108.

9/28/20: Announcing our 12th profile from Australia

The Victorian Cancer Registry was established in 1939.  This Registry is the longest running comprehensive cancer registry in Australia and among the oldest continuously operating registries in the world. Currently, about 240 hospitals and 30 pathology laboratories notify the Registry of cancer cases. The Registry folks can work with researchers to recruit patients with cancer for research projects. They support research which fosters improvements and innovations in cancer prevention, clinical practice and cancer service delivery.

Victorian Cancer Registry (Australia)

Database Contact Data

Professor Sue Evans
Director, Victorian Cancer Registry
200 Victoria Parade
East Melbourne VIC 3002
AUSTRALIA
Email: sue.evans@cancervic.org.au
Phone: +61(0) 3 9514 6236
Fax: +61 (0) 3 9514 6751

Alternate Contact

Dr. Catherine Shang
Deputy Director, Victorian Cancer Registry
200 Victoria Parade
East Melbourne VIC 3002
AUSTRALIA
Email: catherine.shang@cancervic.org.au
Phone: +61(0) 3 9514 6236
Fax: +61(0) 3 9514 6751

General Enquiries:
Email: vcr@cancervic.org.au
Phone: +61(0) 3 9514 6236
Fax: +61(0) 3 9514 6751
Mail: 200 Victoria Parade, East Melbourne VIC 3002, AUSTRALIA

References of Studies Using/Describing Database

1. Bechelli ML, Ivanova K, Tan SS, Kumar B, Swiatek D, Arulananda S, Evans SM. ImpACT Project: Improving Access to Clinical Trials in Victoria, an Artificial Intelligence-Based Approach. JCO Clin Cancer Inform. 2025 Jan;9:e2400137.

2. Yang O, Zhang Y, To YH, M J IJzerman M, Liu J, Gibbs P, Trapani K, Pearson SA, Franchini F; PRIMCAT Group. Effects of clinical and socioeconomic factors on Medicare and patient costs for colorectal cancer in Australia: a retrospective multivariate regression analysis. BMJ Open. 2024 Dec 9;14(12):e081483.

3. de Boer J, Barnett R, Cardin A, Cimoli M, Davies L, Delany C, Dixon BJ, Evans SM, Findlay MW, Fox C, Ftanou M, Hart CD, Howard M, Iseli TA, Jackson A, Kranz S, Le BH, Lekgabe E, Lennox R, McLean LS, Neeson PJ, Ng SP, O'Reilly LA, Ramakrishnan A, Rowe D, Service C, Singh A, Thai AA, Tiong A, Yap T, Wiesenfeld D. Optimising Patient Outcomes in Tongue Cancer: A Multidisciplinary Approach. Cancers (Basel). 2024 Mar 26;16(7):1277.

4. Afshar N, Dashti SG, Mar V, Te Marvelde L, Evans S, Milne RL, English DR. Do age at diagnosis, tumour thickness and tumour site explain sex differences in melanoma survival? A causal mediation analysis using cancer registry data. Int J Cancer. 2024 Mar 1;154(5):793-800.  

5. McPhail S, Barclay ME, Johnson SA, Swann R, Alvi R, Barisic A, Bucher O, Creighton N, Denny CA, Dewar RA, Donnelly DW, Dowden JJ, Downie L, Finn N, Gavin AT, Habbous S, Huws DW, May L, McClure CA, Møller B, Musto G, Nilssen Y, Saint-Jacques N, Sarker S, Shack L, Tian X, Thomas RJS, Thomson CS, Wang H, Woods RR, You H, Lyratzopoulos G; ICBP Module 9 Chemotherapy Group. Use of chemotherapy in patients with oesophageal, stomach, colon, rectal, liver, pancreatic, lung, and ovarian cancer: an International Cancer Benchmarking Partnership (ICBP) population-based study. Lancet Oncol. 2024 Mar;25(3):338-351.  

6. Gao L, Ugalde A, Livingston PM, White V, Watts JJ, Jongebloed H, McCaffrey N, Menzies D, Robinson S. Simulating the healthcare workforce impact and capacity for pancreatic cancer care in Victoria: a model-based analysis. BMC Health Serv Res. 2024 Feb 23;24(1):239.

7. Evans SM, Ivanova K, Cossio D, Pilgrim CHC, Croagh D, Zalcberg J, Giffard D, Golobic N, Di Muzio B, McLean C C, McLean K, Miller GC, Nicosia S, O'Rourke N, Parikh S, Standish R, Te Marvelde L. Registry-derived stage (RD-Stage) for capturing stage at diagnosis for pancreatic carcinoma in Australia. PLoS One. 2024 Jan 2;19(1):e0294443.

8. Pilgrim CHC, Finn N, Stuart E, Philip J, Steel S, Croagh D, Lee B, Tebbutt NC. Changing patterns of care for pancreas cancer in Victoria: the 2022 Pancreas Tumour Summit. ANZ J Surg. 2023 Nov;93(11):2638-2647.

9. Sung N, Muthusamy A, Finn N, Stuart E, Fox J, Yeo B. Surgical management of breast cancer in Victoria: A state-wide audit. Asia Pac J Clin Oncol. 2023 Aug;19(4):499-506.

10. Kang TMJ, Ratnayake G, Wada M, Phillips C, Ruben J, Senthi S, Foroudi F, Millar J, Ong WL. Real-world data on patterns and outcomes of radiation therapy for brain metastases in a population-based cohort of lung cancer patients in Victoria. J Med Imaging Radiat Oncol. 2023 Aug;67(5):546-555.

9/25/20: Finally we have our 325th profile...

The COTA database is sourced from electronic health records (EHR) of contributing academic, for-profit, and community oncologist provider sites and hospital systems. COTA contains detailed demographic, diagnostic, molecular and genomic testing, treatment, and outcome data. As of June 2020, COTA’s database is a geographically and genetically diverse set, comprised of rich longitudinal patient records collected from >40 unique locations across North America.

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