11/17/20 Our 25th profile from the UK: Next Steps

Formerly known as the Longitudinal Study of Young People in England (LSYPE), Next Steps is a longitudinal study which followed a sample of around 16,000 people born in 1989/1990. Participants were interviewed annually for seven waves until they were aged 19/20 in 2010, and then again in Wave 8 at the age of 25. The information collected during Waves 1–7 of the study covered family background and parents’ employment status, young person’s characteristics, attitudes, experiences and behaviours, education and schooling.

Next Steps (formerly Longitudinal Study of Young People in England - LSYPE) (United Kingdom)

Database Contact Data

Centre for Longitudinal Studies
UCL Social Research Institute
20 Bedford Way
London WC1H 0AL
UNITED KINGDOM
Phone: +44 020 7612 6875
Email: clsdata@ucl.ac.uk

Alternate Contact

1. If you cannot reach the database manager, you may contact the company by completing the contact form at: https://cls.ucl.ac.uk/contact/

2. To access Next Steps data, apply to:
UK Data Service 
University of Essex
Wivenhoe Park
Colchester
Essex, CO4 3SQ
UNITED KINGDOM
Phone: +44 (0)1206 872143
Website: https://cls.ucl.ac.uk/data-access-training/data-access/

References of Studies Using/Describing Database

1. Jacques Wels, Booth C, Wielgoszewska B, Green MJ, Di Gessa G, Huggins CF, Griffith GJ, Kwong ASF, Bowyer RCE, Maddock J, Patalay P, Silverwood RJ, Fitzsimons E, Shaw R, Thompson EJ, Steptoe A, Hughes A, Chaturvedi N, Steves CJ, Katikireddi SV, Ploubidis GB. Mental and social wellbeing and the UK coronavirus job retention scheme: Evidence from nine longitudinal studies. Soc Sci Med. 2022 Jul 20;308:115226.

2. Kanazawa S. Personality and early susceptibility to COVID‐19 in the United Kingdom. Journal of community & applied social psychology. 2022 Jul;32(4):786-95.

3. Thompson EJ, Williams DM, Walker AJ, Mitchell RE, Niedzwiedz CL, Yang TC, Huggins CF, Kwong ASF, Silverwood RJ, Di Gessa G, Bowyer RCE, Northstone K, Hou B, Green MJ, Dodgeon B, Doores KJ, Duncan EL, Williams FMK; OpenSAFELY Collaborative, Steptoe A, Porteous DJ, McEachan RRC, Tomlinson L, Goldacre B, Patalay P, Ploubidis GB, Katikireddi SV, Tilling K, Rentsch CT, Timpson NJ, Chaturvedi N, Steves CJ. Long COVID burden and risk factors in 10 UK longitudinal studies and electronic health records. Nat Commun. 2022 Jun 28;13(1):3528.

4. Patel K, Robertson E, Kwong ASF, Griffith GJ, Willan K, Green MJ, Di Gessa G, Huggins CF, McElroy E, Thompson EJ, Maddock J, Niedzwiedz CL, Henderson M, Richards M, Steptoe A, Ploubidis GB, Moltrecht B, Booth C, Fitzsimons E, Silverwood R, Patalay P, Porteous D, Katikireddi SV. Psychological Distress Before and During the COVID-19 Pandemic Among Adults in the United Kingdom Based on Coordinated Analyses of 11 Longitudinal Studies. JAMA Netw Open. 2022 Apr 1;5(4):e227629. 

5. De Gayardon A, Callender C, DesJardins SL. Does student loan debt structure young people’s housing tenure? Evidence from England. Journal of Social Policy. 2022 Apr;51(2):221-41.

6. Di Gessa G, Maddock J, Green MJ, Thompson EJ, McElroy E, Davies HL, Mundy J, Stevenson AJ, Kwong ASF, Griffith GJ, Katikireddi SV, Niedzwiedz CL, Ploubidis GB, Fitzsimons E, Henderson M, Silverwood RJ, Chaturvedi N, Breen G, Steves CJ, Steptoe A, Porteous DJ, Patalay P. Pre-pandemic mental health and disruptions to healthcare, economic and housing outcomes during the COVID-19 pandemic: evidence from 12 UK longitudinal studies. Br J Psychiatry. 2022 Jan;220(1):21-30.

7. Bann D, Villadsen A, Maddock J, Hughes A, Ploubidis GB, Silverwood R, Patalay P. Changes in the behavioural determinants of health during the COVID-19 pandemic: gender, socioeconomic and ethnic inequalities in five British cohort studies. J Epidemiol Community Health. 2021 Dec;75(12):1136-1142.

8. Guan M. Could the Associations of Changes in Living Arrangement with Mental Disorders Be Moderated or Mediated During COVID-19 Pandemic? Psychol Res Behav Manag. 2021 Jun 16;14:769-779. 

9. Gagné T, Brown J. Socio-economic distribution of e-cigarette use among recent former regular smokers and current smokers at ages 25-26 in England. Addiction. 2021 Jun;116(6):1548-1557.

10. Schoon I, Burger K, Cook R. Making it against the odds: How individual and parental co-agency predict educational mobility. J Adolesc. 2021 Jun;89:74-83.

9/28/20: Announcing our 12th profile from Australia

The Victorian Cancer Registry was established in 1939.  This Registry is the longest running comprehensive cancer registry in Australia and among the oldest continuously operating registries in the world. Currently, about 240 hospitals and 30 pathology laboratories notify the Registry of cancer cases. The Registry folks can work with researchers to recruit patients with cancer for research projects. They support research which fosters improvements and innovations in cancer prevention, clinical practice and cancer service delivery.

Victorian Cancer Registry (Australia)

Database Contact Data

Professor Sue Evans
Director, Victorian Cancer Registry
200 Victoria Parade
East Melbourne VIC 3002
AUSTRALIA
Email: sue.evans@cancervic.org.au
Phone: +61(0) 3 9514 6236
Fax: +61 (0) 3 9514 6751

Alternate Contact

Dr. Catherine Shang
Deputy Director, Victorian Cancer Registry
200 Victoria Parade
East Melbourne VIC 3002
AUSTRALIA
Email: catherine.shang@cancervic.org.au
Phone: +61(0) 3 9514 6236
Fax: +61(0) 3 9514 6751

General Enquiries:
Email: vcr@cancervic.org.au
Phone: +61(0) 3 9514 6236
Fax: +61(0) 3 9514 6751
Mail: 200 Victoria Parade, East Melbourne VIC 3002, AUSTRALIA

References of Studies Using/Describing Database

1. Afshar N, Dashti SG, Mar V, Te Marvelde L, Evans S, Milne RL, English DR. Do age at diagnosis, tumour thickness and tumour site explain sex differences in melanoma survival? A causal mediation analysis using cancer registry data. Int J Cancer. 2024 Mar 1;154(5):793-800.  

2. McPhail S, Barclay ME, Johnson SA, Swann R, Alvi R, Barisic A, Bucher O, Creighton N, Denny CA, Dewar RA, Donnelly DW, Dowden JJ, Downie L, Finn N, Gavin AT, Habbous S, Huws DW, May L, McClure CA, Møller B, Musto G, Nilssen Y, Saint-Jacques N, Sarker S, Shack L, Tian X, Thomas RJS, Thomson CS, Wang H, Woods RR, You H, Lyratzopoulos G; ICBP Module 9 Chemotherapy Group. Use of chemotherapy in patients with oesophageal, stomach, colon, rectal, liver, pancreatic, lung, and ovarian cancer: an International Cancer Benchmarking Partnership (ICBP) population-based study. Lancet Oncol. 2024 Mar;25(3):338-351.  

3. Gao L, Ugalde A, Livingston PM, White V, Watts JJ, Jongebloed H, McCaffrey N, Menzies D, Robinson S. Simulating the healthcare workforce impact and capacity for pancreatic cancer care in Victoria: a model-based analysis. BMC Health Serv Res. 2024 Feb 23;24(1):239.

4. Evans SM, Ivanova K, Cossio D, Pilgrim CHC, Croagh D, Zalcberg J, Giffard D, Golobic N, Di Muzio B, McLean C C, McLean K, Miller GC, Nicosia S, O'Rourke N, Parikh S, Standish R, Te Marvelde L. Registry-derived stage (RD-Stage) for capturing stage at diagnosis for pancreatic carcinoma in Australia. PLoS One. 2024 Jan 2;19(1):e0294443.

5. Pilgrim CHC, Finn N, Stuart E, Philip J, Steel S, Croagh D, Lee B, Tebbutt NC. Changing patterns of care for pancreas cancer in Victoria: the 2022 Pancreas Tumour Summit. ANZ J Surg. 2023 Nov;93(11):2638-2647.

6. Sung N, Muthusamy A, Finn N, Stuart E, Fox J, Yeo B. Surgical management of breast cancer in Victoria: A state-wide audit. Asia Pac J Clin Oncol. 2023 Aug;19(4):499-506.

7. Kang TMJ, Ratnayake G, Wada M, Phillips C, Ruben J, Senthi S, Foroudi F, Millar J, Ong WL. Real-world data on patterns and outcomes of radiation therapy for brain metastases in a population-based cohort of lung cancer patients in Victoria. J Med Imaging Radiat Oncol. 2023 Aug;67(5):546-555.

8. Stuart GW, Chamberlain JA, Te Marvelde L. The contribution of prognostic factors to socio-demographic inequalities in breast cancer survival in Victoria, Australia. Cancer Med. 2023 Jul;12(14):15371-15383.

9. Lindström S, Wang L, Feng H, Majumdar A, Huo S, Macdonald J, Harrison T, Turman C, Chen H, Mancuso N, Bammler T. Genome-wide analyses characterize shared heritability among cancers and identify novel cancer susceptibility regions. JNCI: Journal of the National Cancer Institute. 2023 Jun 1;115(6):712-32.

10. Mnatzaganian G, MacLachlan JH, Allard N, Brown C, Rowe S, Cowie BC. Missed opportunities for diagnosis of hepatitis B and C in individuals diagnosed with decompensated cirrhosis or hepatocellular carcinoma. J Gastroenterol Hepatol. 2023 Jun;38(6):976-983.

9/25/20: Finally we have our 325th profile...

The COTA database is sourced from electronic health records (EHR) of contributing academic, for-profit, and community oncologist provider sites and hospital systems. COTA contains detailed demographic, diagnostic, molecular and genomic testing, treatment, and outcome data. As of June 2020, COTA’s database is a geographically and genetically diverse set, comprised of rich longitudinal patient records collected from >40 unique locations across North America.

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