May 31, 2023: The Norwegian Cause of Death Registry profile has just been added

This registry collects data on deaths by age, sex, cause, place of death, and place of residence for Norway. It contains digitized cause of death data dating back to 1951. Electronic death certificates were introduced in 2018, and electronic delivery is mandatory since January 1, 2022. The registry collects death certificates for all deaths that occur in the country, including deceased who are not registered as inhabitants of Norway. It also registers the deaths of Norwegians who die abroad.

Norwegian Cause of Death Registry (Norway)

Database Contact Data

Silje Rognsvåg Reistad
Produkteier Dødsårsaksregisteret
Avdeling for helseregistre
Folkehelseinstituttet
NORWAY
Postadresse: Folkehelseinstituttet, Postboks 973 Sentrum, 5808 Bergen, Norway
Besøksadresse: Zander Kaaes gate 7, 5015 Bergen, Norway 
Phone: +47 21 07 70 63
Email: Silje.Rognsvag.Reistad@fhi.no

Alternate Contact

You can email datatilgang@fhi.no for enquiries about health registries at NIPH; they will be directed to the correct person depending on the registry and topic

References of Studies Using/Describing Database

1. Eng HM, Sveen KA, Fagerås SJ, Strøm MS, Diep LM, Juliusson PB, Alfsen GC. Introduction of electronic death notification in Norway-Impact on diabetes mortality registration. PLoS One. 2024 Dec 2;19(12):e0311106.

2. Kristensen JH, Baravelli CM, Leino T, Pallesen S, Griffiths MD, Erevik EK. Association between gambling disorder and suicide mortality: a comparative cohort study using Norwegian health registry data. Lancet Reg Health Eur. 2024 Nov 11;48:101127.

3. Nilsson A, Emilsson L, Kepp KP, Knudsen AKS, Forthun I, Madsen C, Björk J, Lallukka T. Cause-specific excess mortality in Denmark, Finland, Norway, and Sweden during the COVID-19 pandemic 2020-2022: a study using nationwide population data. Eur J Epidemiol. 2024 Sep;39(9):1037-1050.

4. Kostovski E, Hamina A, Hjellvik V, Clausen T, Skurtveit S. Increased cancer incidence and mortality among people with opioid use-related disorders: A nation-wide cohort study. Addiction. 2024 Sep;119(9):1575-1584.

5. Aune D, Vardaxis I, Lindqvist BH, Brumpton BM, Strand LB, Horn JW, Bakken IJ, Romundstad PR, Mukamal KJ, Ljung R, Janszky I, Sen A. Dispensed prescription medications and short-term risk of pulmonary embolism in Norway and Sweden. Sci Rep. 2024 Aug 29;14(1):20054.

6. Michel YA, Aas E, Augestad LA, Burger E, Thoresen L, Bjørnelv GMW. Healthcare use and costs in the last six months of life by level of care and cause of death. BMC Health Serv Res. 2024 May 30;24(1):688.

7. Bjørnelv GW, Aas E, Aaltonen M, Hagen TP, Thoresen L, Forma L. Place of living at end-of-life according to cause of death: a comparative analysis of all decedents 70 years or older in 2009-2013 in Finland and Norway. Ann Palliat Med. 2024 May;13(3):496-512.

8. Wyatt S, Kvalvik LG, Singh A, Klungsøyr K, Østbye T, Skjærven R. Heterogeneity in the risk of cardiovascular disease mortality after the hypertensive disorders of pregnancy across mothers' lifetime reproductive history. Paediatr Perinat Epidemiol. 2024 Mar;38(3):230-237.

9. Strømme MF, Bartz-Johannessen C, Kjelby E, Mehlum L, Mykletun A, Kroken RA, Johnsen E, Gjestad R. Risk factors for mortality in patients admitted to a psychiatric acute ward: A prospective cohort study. Acta Psychiatr Scand. 2024 Mar;149(3):244-255.

10. Raknes G, Fagerås SJ, Sveen KA, Júlíusson PB, Strøm MS. Excess non-COVID-19 mortality in Norway 2020-2022. BMC Public Health. 2024 Jan 22;24(1):244.

May 30, 2023: Our 5th healthcare database profile from Sweden

Part of Riks-Stroke (RS), the Swedish Stroke Register established in 1994, a national register for acute stroke care; all Swedish hospitals admitting acute stroke and TIA (Transient Ischemic Attacks) patients participate. The Transient Ischemic Attacks (TIA) Registry contains more than 100,000 total TIA events recorded. This makes RS one of the world’s largest TIA registers.

Transient Ischemic Attacks (TIA) Registry (Sweden)

Database Contact Data

Mia von Euler
Registry holder and Steering Committee Chair
Professor and Vice-Chancellor
Sophiahemmet University
Stockholm, SWEDEN
Email: mia.voneuler@shh.se

Registry office: support.rcnorr@regionvasterbotten.se
Source: https://riksstroke.rcnorr.se/om-oss/team/

Alternate Contact

Marie Eriksson
Professor 
Umeå University
SWEDEN
Email: marie.eriksson@umu.se

References of Studies Using/Describing Database

1. Johnsson M, et al. Changes in long-term survival after stroke between 2013 and 2020: a nationwide cohort study from the Swedish Stroke Register. Int J Stroke. 2026.

2. Drescher C, et al. Temporal changes in functional outcome and case-fatality after ischaemic stroke and intracerebral haemorrhage in Sweden 2010–2019. Eur Stroke J. 2026.

3. Beharry J, et al. Mortality in ischaemic stroke patients without standard modifiable risk factors: an analysis of the Riksstroke registry. Eur Stroke J. 2025;10(3):813–821.

4. Sultani G, et al. Diagnostic accuracy and radiological validation of intracerebral hemorrhage diagnosis in Riksstroke. Eur J Neurol. 2024;31(10):e16413.

5. Hall E, et al. Incidence of intracranial hemorrhagic complications after anterior circulation endovascular thrombectomy. J Neurointerv Surg. 2024;16:1088–1093.

6. Lindmark A, et al. Socioeconomic differences in patient-reported outcomes 3 months after stroke. Stroke. 2024;55:2055–2065.

7. Mavridis A, et al. Predictors of functional outcome after stroke: sex differences in older individuals. J Am Geriatr Soc. 2024;72:2100–2110.

8. Ennab Vogel N, et al. Optimized density and locations of stroke centers. J Neurointerv Surg. 2024;16:156–162.

9. Angerbjorn M, et al. Ischemic stroke in adults with congenital heart disease. J Am Heart Assoc. 2024;13:e034206.

10. Abzhandadze T, et al. COVID-19 pandemic and stroke care in patients with dementia. J Am Med Dir Assoc. 2024;25:105011.

May 24, 2023: Compare SEER’s Consumer Assessment of Healthcare Providers and Systems (CAHPS) with other healthcare databases.

SEER-CAHPS is a resource for quality of cancer care research based on a linkage between the NCI's Surveillance, Epidemiology and End Results (SEER) cancer registry data and the Centers for Medicare & Medicaid Services' (CMS) Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS®) patient surveys. The SEER Program works to provide information on cancer statistics in an effort to reduce the burden of cancer among the U.S. population.

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