Norwegian Population Register (Norway) **

Database Contact Data

For ways on contacting regarding the National Population Register please visit https://www.skatteetaten.no/en/contact/ (Options include postal mail, phone calls, chats, but no emails.)

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Wyatt S, Skjærven R, Vatten L, Wilcox AJ, Singh A, Klungsøyr K, Carmichael SL, Morken NH, Lie RT, Kvalvik LG. Hypertensive Disorders of Pregnancy, Preterm Delivery, and Infant Size: Which Mothers Have Highest Cardiovascular Disease Mortality? Paediatr Perinat Epidemiol. 2025 Jun 5. doi: 10.1111/ppe.70033. Epub ahead of print.

2. AarØ LE, Knapstad M, Nilsen T, Skogen JC, Nes RB, Leino T, Riise IA, Johansen R, GrØtvedt L, Vedaa Ø, Stigen OT, Reneflot A, Gulseth HL, Klepp KI. The Norwegian Counties Public Health Survey (NCPHS): a design study. Scand J Public Health. 2024 Oct 22:14034948241287853.

3. Boskovic M, Jortveit J, Haraldsen MB, Berge T, Engdahl J, Løchen ML, Schuster P, Sandberg EL, Grimsmo J, Atar D, Anfinsen OG, Pripp AH, Grenne BL, Halvorsen S. The NORwegian atrial fibrillation self-SCREENing (NORSCREEN) trial: rationale and design of a randomized controlled trial. Europace. 2024 Oct 3;26(10):euae228.

4. Nybru Gleditsch R, Skogset Ofitserova T, Aubrey White R, Karoline Råberg Kjøllesdal M, Dvergsdal E, Hansen BT, Askeland Winje B. Vaccine coverage among children born to immigrant parents in Norway, 2000-2020. Vaccine. 2024 Apr 30;42(12):3049-3056.

5. Sigmo GD, Hauge S, Hufthammer KO, Wallenius M, Salvesen KÅ, Daltveit AKN, Bakland G, Fevang BS. Male patients with inflammatory joint diseases are less likely than controls to be childless: results from a Norwegian population-based cohort study of 10 865 patients. Ann Rheum Dis. 2024 Mar 12;83(4):457-463.

6. Wyatt S, Kvalvik LG, Singh A, Klungsøyr K, Østbye T, Skjærven R. Heterogeneity in the risk of cardiovascular disease mortality after the hypertensive disorders of pregnancy across mothers' lifetime reproductive history. Paediatr Perinat Epidemiol. 2024 Mar;38(3):230-237.

7. Aarø LE, Ohm E, Skogen JC, Nilsen T, Knapstad M, Vedaa Ø, Nes RB, Clarsen B, Klepp KI. A cross-sectional study of the relationship between injuries and quality of life, psychological distress, sleeping problems, and global subjective health in adults from three Norwegian counties. Health Qual Life Outcomes. 2023 Nov 3;21(1):120.

8. Lerdal A, Gay C, Bonsaksen T, Ekeberg Ø, Grimholt T, Heir T, Kottorp A, Lee KA, Skogstad L, Schou-Bredal I. Validation of a short version of the Lee fatigue scale in adults living in Norway: a cross-sectional population survey. BMC Public Health. 2023 Oct 31;23(1):2132.

9. Åsberg RE, Nilsen M, Hjermstad MJ, Reinertsen KV, Karlsen J, Giskeødegård GF, Reidunsdatter RJ. Norwegian general population normative data for the European Organization for Research and Treatment of Cancer questionnaires: the Quality of Life Questionnaire-Core 30, the Sexual Health Questionnaire QLQ-SHQ22 and the sexual domains of the QLQ-BR23/BR45. Eur J Cancer. 2023 Sep;190:112943.

10. Mansoor SM, Rabben T, Hisdal J, Jørgensen JJ. Eleven-Year Outcomes of a Screening Project for Abdominal Aortic Aneurysm (AAA) in 65-Year-Old Men. Vasc Health Risk Manag. 2023 Jul 17;19:459-467.

Finnish Register of Congenital Malformations (Finland) **

Database Contact Data

Dr. Sonja Kiuru-Kuhlefelt
Chief Physician
National Institute for Health and Welfare, Finland (THL)
Information Services
Register of Congenital Malformations
P.O. Box 30
00271 Helsinki
FINLAND
Email: sonja.kiuru-kuhlefelt@thl.fi
Phone: +358 29 524 7524

Alternate Contact

National Institute for Health and Welfare, Finland (THL)
PO Box 30
Mannerheimintie 166
FI-00271 Helsinki
FINLAND
Phone: +358 29 524 6000

References of Studies Using/Describing Database

1. Björkstedt SM, Koponen H, Kautiainen H, Gissler M M, Pennanen P, Eriksson JG, Laine MK. Maternal mental disorders, psychotropic drugs, socioeconomic status, and offspring congenital anomalies. J Int Med Res. 2025 Jan;53(1):3000605241306902.

2. Elfving P, Kariniemi S, Kautiainen H, Rantalaiho V, Virta LJ, Puolakka K, Laine MK. Pregnancies in patients with systemic lupus erythematosus during 2000-2018 in Finland: a case-control study. Rheumatol Int. 2024 Jun;44(6):1101-1109.

3. Heiskanen S, Helenius I, Syvänen J, Kemppainen T, Löyttyniemi E, Ahonen M, Gissler M, Raitio A. Maternal risk factors for congenital vertebral formation and mixed defects: A population-based case-control study. J Child Orthop. 2024 Mar 20;18(3):340-345.

4. Leppänen M, Pape B, Ripatti L, Karukivi M, Haataja L, Rautava P. Burden of mental, behavioral, and neurodevelopmental disorders in the Finnish most preterm children: a national register study. Eur Child Adolesc Psychiatry. 2024 Feb;33(2):431-438.

5. Cohen JM, Alvestad S, Suarez EA, Schaffer A, Selmer RM, Havard A, Bateman BT, Cesta CE, Zoega H, Odsbu I, Huybrechts KF, Kjerpeseth LJ, Straub L, Leinonen MK, Bjørk MH, Nørgaard M, Gissler M, Ulrichsen SP, Hernandez-Diaz S, Tomson T, Furu K. Comparative Risk of Major Congenital Malformations With Antiseizure Medication Combinations vs Valproate Monotherapy in Pregnancy. Neurology. 2024 Jan 23;102(2):e207996.

6. Kinnunen J, Nikkinen H, Keikkala E, Mustaniemi S, Gissler M, Laivuori H, Eriksson JG, Kaaja R, Pouta A, Kajantie E, Vääräsmäki M. Gestational diabetes is associated with the risk of offspring's congenital anomalies: a register-based cohort study. BMC Pregnancy Childbirth. 2023 Oct 3;23(1):708.

7. Kjerpeseth LJ, Cesta CE, Furu K, Engeland A, Gissler M, Gulseth HL, Karlstad Ø, Leinonen MK, Pazzagli L, Zoega H, Cohen JM. Metformin Versus Insulin and Risk of Major Congenital Malformations in Pregnancies With Type 2 Diabetes: A Nordic Register-Based Cohort Study. Diabetes Care. 2023 Aug 1;46(8):1556-1564.

8. Claridge H, Tan J, Loane M, Garne E, Barisic I, Cavero-Carbonell C, Dias C, Gatt M, Jordan S, Khoshnood B, Kiuru-Kuhlefelt S, Klungsoyr K, Mokoroa Carollo O, Nelen V, Neville AJ, Pierini A, Randrianaivo H, Rissmann A, Tucker D, de Walle H, Wertelecki W, Morris JK. Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies. BMJ Open. 2023 Jul 27;13(7):e071687.

9. Raitio A, Heiskanen S, Syvänen J, Leinonen MK, Kemppainen T, Löyttyniemi E, Ahonen M, Gissler M, Helenius I. Maternal Risk Factors for Congenital Vertebral Anomalies: A Population-Based Study. J Bone Joint Surg Am. 2023 Jul 19;105(14):1087-1092.

10. Cohen JM, Alvestad S, Cesta CE, Bjørk MH, Leinonen MK, Nørgaard M, Einarsdóttir K, Engeland A, Gissler M, Karlstad Ø, Klungsøyr K, Odsbu I, Reutfors J, Selmer RM, Tomson T, Ulrichsen SP, Zoega H, Furu K. Comparative Safety of Antiseizure Medication Monotherapy for Major Malformations. Ann Neurol. 2023 Mar;93(3):551-562.

Medical Birth Register of Denmark (Denmark)

Database Contact Data

The Danish Health Data Agency
Ørestads Boulevard 5
2300 Copenhagen S
DENMARK
Email: forskerservice@sundhedsdata.dk   
Phone: +45 3218 3900 [9.30 AM -12.00 AM CET (UTC+1)]

Alternate Contact

If you have any technical or data-related questions, please contact the LPR team.
Email: LPRdata@sundhedsdata.dk

References of Studies Using/Describing Database

1. Acker S, Hoffmann CH, Hansen LK, Glavind J, Jeppegaard M, Krebs L. Risk of Spontaneous Preterm Birth in a Subsequent Pregnancy After Full Dilatation Caesarean Birth: A Nationwide Cohort Study. BJOG. 2025 Oct;132(11):1585-1593.

2. Broe A, Pottegård A, Munk-Olsen T, Hallas J, Bliddal M, Petersen I, Damkier P. Prescription Drugs in Pregnancy and Congenital Malformations: A Population-Based Safety Screening Study. Pharmacoepidemiol Drug Saf. 2025 Sep;34(9):e70211.

3. Yin C, Adenekan TA, Deng C, Hansen J, Iwundu CN, Heck JE. Application of an obstetric comorbidity index to predict childhood cancer risk: a population based case-control study in Denmark. Br J Cancer. 2025 Jul 21. doi: 10.1038/s41416-025-03120-3. Epub ahead of print.

4. Andersen M, Matthiesen NB, Murra M, Nielsen SY, Henriksen TB. Early-Onset Neonatal Infection and Epilepsy in Children. JAMA Netw Open. 2025 Jul 1;8(7):e2519090.

5. Kildegaard H, Jensen A, Andersen PHS, Dalby T, Gram MA, Lidegaard Ø, Stensballe LG. Safety of pertussis vaccination in pregnancy and effectiveness in infants: a Danish national cohort study 2019-2023. Clin Microbiol Infect. 2025 Jun;31(6):995-1002.

6. Sejbaek CS, Nørtoft Frankel H, Flachs EM, Hougaard KS, Mehlum IS, Soegaard Toettenborg S, Madsen IEH, Bonde JPE, Begtrup LM. Physical workload during pregnancy and adverse pregnancy outcomes: results from a Danish nationwide occupational register-based pregnancy cohort (DOC*X-Generation). Occup Environ Med. 2025 Apr 16;82(2):53-60.

7. Brandt S, Thorsen J, Rasmussen MA, Chawes B, Bønnelykke K, Blaser MJ, Sevelsted A, Stokholm J. Use of antibiotics in early life and development of diseases in childhood: nationwide registry study. BMJ Med. 2025 Mar 11;4(1):e001064.

8. Pasanen TP, Tiittanen P, Roswall N, Persson Waye K, Selander J, Sanchez Martinez N, Sjöström M, Vincens N, Ögren M, Aasvang GM, Evandt J, Krog NH, Weyde KV, Khan J, Gissler M, Lindstrøm JC, Poulsen AH, Pershagen G, Sorensen M, Lanki T. Occupational noise exposure and maternal pregnancy complications: register-based cohort from urban areas in four Nordic countries. Occup Environ Med. 2025 Feb 12;81(12):603-609.

9. Vegrim HM, Dreier JW, Igland J, Alvestad S, Gilhus NE, Gissler M, Leinonen MK, Tomson T, Zoega H, Christensen J, Bjørk MH. High-dose folic acid use and cancer risk in women who have given birth: A register-based cohort study. Epilepsia. 2025 Jan;66(1):75-88.

10. Wiegers HMG, Körmendiné Farkas D, Horváth-Puhó E, Middeldorp S, van Es N, Sørensen HT. Incidence and prognosis of superficial vein thrombosis during pregnancy and the post-partum period: a Danish nationwide cohort study. Lancet Haematol. 2023 May;10(5):e359-e366.

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