Icelandic Register of Nursing Home Pre-Admission Assessments (Iceland)

Database Contact Data

Sigríður Haralds Elínardóttir
Head of Division, Health Information
Directorate of Health
Katrínartún 2 
IS – 105 Reykjavík
ICELAND
Phone: +354 510 1900
Email: sigridur.haraldsd.elinardottir@landlaeknir.is

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Sigurdardottir AS, Geirsdottir OG, Ramel A, Arnadottir IB. Cross-sectional study of oral health care service, oral health beliefs and oral health care education of caregivers in nursing homes. Geriatr Nurs. 2022 Jan-Feb;43:138-145. 

2. Gunnarsdottir TJ, Vilhjalmsson R, Hjaltadottir I. Use of complementary therapies in nursing homes: Descriptive study. Complement Ther Clin Pract. 2018 Aug;32:65-69. 

3. Emilsdóttir AL, Gústafsdóttir M. End of life in an Icelandic nursing home: an ethnographic study. Int J Palliat Nurs. 2011 Aug;17(8):405-11.

4. Jónsson A, Bernhöft I, Bernhardsson K, Jónsson PV. [Retrospective analysis of health variables in a Reykjavík nursing home 1983-2002 (corrected)]. Laeknabladid. 2005 Feb;91(2):153-160. PMID: 16155311.

5. Hjaltadóttir, I., Hallberg, I.R., Ekwall, A.K. et al. Predicting mortality of residents at admission to nursing home: A longitudinal cohort study. BMC Health Serv Res 11, 86 (2011). https://doi.org/10.1186/1472-6963-11-86.

6. Kjartansson H, Jonsson PV. [Psychotropic use in nursing and residential homes in the Greater Reykjavík area in 1996.]. Laeknabladid. 1999 Sep;85(9):681-90. Icelandic. 

7. Miel W. Ribbe, Gunnar Ljunggren, Knight Steel, EVA Topinkova, Catherine Hawes, Naoki Ikegami, Jean-Claude Henrard, Palmi V JÓNnson, Nursing Homes in 10 Nations: A Comparison Between Countries and Settings, Age and Ageing, Volume 26, Issue suppl_2, 1997, Pages 3–12.

UK Renal Registry (United Kingdom) **

Database Contact Data

Dr. Retha Steenkamp
Head of Operations
UK Renal Registry
Brandon House, Building 20a1
Southmead Road
Bristol BS34 7RR
UNITED KINGDOM
Email: retha.steenkamp@renalregistry.nhs.uk

Alternate Contact

1. John Feehally
UKKA Archivist
The UK Kidney Association
Brandon House
Building 20a1
Southmead Road
Bristol, BS34 7RR
UNITED KINGDOM
Email: jf27@le.ac.uk

2. You may complete a CONTACT form at https://ukkidney.org/contact-us

References of Studies Using/Describing Database

1. Graham-Brown MPM, Casula A, Savino M, Humphrey T, Pyart R, Amaran M, Williams J, Crowe K, Medcalf JF; NEPHwork consortium collaborators. All involved in data collection and or local project setup and supervision. A National audit of the care of patients with acute kidney injury in England and Wales in 2019 and the association with patient outcomes. Clin Med (Lond). 2024 Feb 20;24(2):100028. doi: 10.1016/j.clinme.2024.100028. Epub ahead of print. PMID: 38387536.

2. Birnie K, Tomson C, Caskey FJ, Ben-Shlomo Y, Nitsch D, Casula A, Murray EJ, Sterne JAC. Comparative Effectiveness of Dynamic Treatment Strategies for Medication Use and Dosage: Emulating a Target Trial Using Observational Data. Epidemiology. 2023 Nov 1;34(6):879-887.

3. Taal MW, Lucas B, Roderick P, Cockwell P, Wheeler DC, Saleem MA, Fraser SDS, Banks RE, Johnson T, Hale LJ, Andag U, Skroblin P, Bayerlova M, Unwin R, Vuilleumier N, Dusaulcy R, Robertson F, Colby E, Pitcher D, Braddon F, Benavente M, Davies E, Nation M, Kalra PA. Associations with age and glomerular filtration rate in a referred population with chronic kidney disease: methods and baseline data from a UK multicentre cohort study (NURTuRE-CKD). Nephrol Dial Transplant. 2023 Oct 31;38(11):2617-2626.

4. Zheng B, Campbell J, Carr EJ, Tazare J, Nab L, Mahalingasivam V, Mehrkar A, Santhakumaran S, Steenkamp R, Loud F, Lyon S, Scanlon M, Hulme WJ, Green ACA, Curtis HJ, Fisher L, Parker E, Goldacre B, Douglas I, Evans S, MacKenna B, Bell S, Tomlinson LA, Nitsch D; OpenSAFELY Collaborative and LH&W NCS (or CONVALESCENCE) Collaborative. Comparative effectiveness of sotrovimab and molnupiravir for preventing severe COVID-19 outcomes in patients on kidney replacement therapy: observational study using the OpenSAFELY-UKRR and SRR databases. Clin Kidney J. 2023 Aug 29;16(11):2048-2058.

5. Santhakumaran S, Savino M, Benoy-Deeney F, Steenkamp R, Medcalf J, Nitsch D. What data collection methods work best for COVID19 outbreak surveillance for people with end stage kidney disease? An observational cohort study using the UK Renal Registry. BMC Nephrol. 2023 May 8;24(1):130.

6. OpenSAFELY Collaborative; Parker EPK, Horne EMF, Hulme WJ, Tazare J, Zheng B, Carr EJ, Loud F, Lyon S, Mahalingasivam V, MacKenna B, Mehrkar A, Scanlon M, Santhakumaran S, Steenkamp R, Goldacre B, Sterne JAC, Nitsch D, Tomlinson LA; LH&W NCS (or CONVALESCENCE) Collaborative. Comparative effectiveness of two- and three-dose COVID-19 vaccination schedules involving AZD1222 and BNT162b2 in people with kidney disease: a linked OpenSAFELY and UK Renal Registry cohort study. Lancet Reg Health Eur. 2023 May 3;30:100636. doi: 10.1016/j.lanepe.2023.100636. Epub ahead of print. PMID: 37363796; PMCID: PMC10155829.

7. Haapio M, van Diepen M, Steenkamp R, Helve J, Dekker FW, Caskey F, Finne P. Predicting mortality after start of long-term dialysis-International validation of one- and two-year prediction models. PLoS One. 2023 Feb 22;18(2):e0280831.

8. OpenSAFELY Collaborative; Parker EP, Tazare J, Hulme WJ, Bates C, Carr EJ, Cockburn J, Curtis HJ, Fisher L, Green AC, Harper S, Hester F, Horne EM, Loud F, Lyon S, Mahalingasivam V, Mehrkar A, Nab L, Parry J, Santhakumaran S, Steenkamp R, Sterne JA, Walker AJ, Williamson EJ, Willicombe M, Zheng B, Goldacre B, Nitsch D, Tomlinson LA. Factors associated with COVID-19 vaccine uptake in people with kidney disease: an OpenSAFELY cohort study. BMJ Open. 2023 Jan 31;13(1):e066164.

9. Savino M, Plumb L, Casula A, Evans K, Wong E, Kolhe N, Medcalf JF, Nitsch D. Acute kidney injury identification for pharmacoepidemiologic studies: Use of laboratory electronic acute kidney injury alerts versus electronic health records in Hospital Episode Statistics. Pharmacoepidemiol Drug Saf. 2021 Dec;30(12):1687-1695.

10. McKinley JM, Mueller U, Atkinson PM, Ofterdinger U, Cox SF, Doherty R, Fogarty D, Egozcue JJ, Pawlowsky-Glahn V. Chronic kidney disease of unknown origin is associated with environmental urbanisation in Belfast, UK. Environ Geochem Health. 2021 Jul;43(7):2597-2614.

Cross Fact Health Insurance Claims Database (Japan)

Database Contact Data

Email: irw-info@intage.com

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Machida T, Obara T, Miyazaki M, Inoue J, Mano N. Trends in drug prescriptions for type 2 diabetes, hypertension, and dyslipidemia among adults with non-alcoholic fatty liver disease. Ann Hepatol. 2022;27(4):100699.

2. Hozawa S, Maeda S, Kikuchi A, Koinuma M. Exploratory research on asthma exacerbation risk factors using the Japanese claims database and machine learning: a retrospective cohort study. J Asthma. 2022;59(7):1328-1337.

3. Maeda S, Kobayashi S, Takahashi K, Miyata S. Association of comorbidities and medications with risk of asthma exacerbation in pediatric patients: a retrospective study using Japanese claims data. Sci Rep. 2022;12(1):5509.

4. Yokoyama A, Okazaki H, Makita N, Fukui A, Piao Y, Arita Y, Itoh Y, Tashiro N. Regional differences in the incidence of asthma exacerbations in Japan: A heat map analysis of healthcare insurance claims data. Allergol Int. 2022;71(1):47-54.

5. Kubota K, Kelly T, Sato T, Pratt N, Roughead E, Yamaguchi T. A novel weighting method to remove bias from within-subject exposure dependency in case-crossover studies. BMC Med Res Methodol. 2021;21(1):214.

Sep 15, 2022: Wow, B.R.I.D.G.E. TO DATA® now has 375 database profiles from 48 countries!!

Since the 1980s, we have continued (in one form or another) our mission to improve healthcare research through the dissemination of comprehensive information on population health care data sources. From the original RAD-AR handbooks (Risk Assessment of Drugs-Analysis & Response) in the 80s, to B.R.I.D.G.E. ON-LINE launched in 2000, to B.R.I.D.G.E. TO DATA® launched in 2009, our nonprofit organization continues to maintain this goal. This month marks a major milestone – we just added our 375th profile!!

Sep 14, 2022: Check out our 28th healthcare database profile from Canada

The Manitoba Population Health Research Data Cardiac Surgical Database (Canada) was created to describe the cardiac surgery population and to provide individual reports for each surgeon informing them of patient population characteristics and post-operative complication rates. Starting in April 1995, information includes detailed surgical data, i.e., patient admission, history, and diagnosis data.

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