Mar 22, 2023: Why are some databases not currently profiled on B.R.I.D.G.E. TO DATA®?

The main goal of B.R.I.D.G.E. is to profile databases from around the world with the most current information. Therefore, B.R.I.D.G.E. profiles databases as new ones are created. We usually work with each database manager to ensure their database profile is complete and accurate. Although we try to include as many profiles on our web site as possible, we unfortunately cannot profile every database.

Mar 14, 2023: Read about our 8th healthcare database profile from Estonia

Established in January 2015, the Estonian Cancer Screening Register records data on the 3 available population-based cancer screenings in Estonia: breast, cervical and colorectal cancer. While the breast cancer screening started in 2003, and the cervical cancer screening in 2006, the data have been added to ECSR only since 2015, while colorectal cancer screening data in Estonia were added to the register in 2016.

National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) (United Kingdom)

Database Contact Data

For requests for data which sit under the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS) suite of products, please email ndrsenquiries@nhs.net.

To discuss any aspect of DARS or an existing application call the team on +44 (0)300 303 5678 or email enquiries@nhsdigital.nhs.uk.

Alternate Contact

Danielle Martin
National Senior Data Analyst 
National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) 
Public Health England
Wellington House
133-155 Waterloo Road
London, England SE1 8UG
UNITED KINGDOM
Email: danielle.martin@phe.gov.uk  
Phone: +44 (0)191 242 6003
Mobile: +44 (0) 7554111236

References of Studies Using/Describing Database

1. Odingo M, Rutter M, Bowley J, Peach EJ, Lanyon PC, Grainge MJ, Stillwell P, McPhail S, Bythell M, Aston J, Stevens S. The incidence of Kawasaki disease using hospital admissions data for England 2006–2021. Rheumatology. 2023 Jan 30:kead051.

2. Moss C, Roked F, Davis PJ, Khan M, Tyler C, Ibbs S, Ewer AK. Birth incidence and outcome of harlequin ichthyosis and collodion membrane in the UK and Ireland: a national 2-year prospective surveillance study. British Journal of Dermatology. 2023 Jan;188(1):139-40.

3. Aldridge N, Pandya P, Rankin J, Miller N, Broughan J, Permalloo N, McHugh A, Stevens S. Detection rates of a national fetal anomaly screening programme: A national cohort study. BJOG: An International Journal of Obstetrics & Gynaecology. 2023 Jan;130(1):51-8.

4. Aslam AA, Baksh RA, Pape SE, Strydom A, Gulliford MC, Chan LF, Go-DS21 Consortium, Herault Yann Strydom Andre Chan Li Potier Marie-Claude Beckers Johannes Liò Pietro Dierssen Mara. Diabetes and obesity in Down Syndrome across the lifespan: a retrospective cohort study using UK electronic health records. Diabetes care. 2022 Dec;45(12):2892-9.

5. West J, Stilwell P, Liu H, Ban L, Bythell M, Card T, Lanyon P, Nanduri V, Rankin J, Bishton M, Crooks C. Factors Influencing 1-Year Survival in Haemphagocytic Lymphohistiocytosis: A National Cohort Study in England. Blood. 2022 Nov 15;140(Supplement 1):5469-70.

6. Bishton M, Crooks C, Liu H, Ban L, Bythell M, Card T, Lanyon P, Nanduri V, Rankin J, Stilwell P, West J. Haemphagocytic Lymphohistiocytosis in an English Nationwide Cohort Confirms Increasing Incidence and Variation in Trigger Factors. Blood. 2022 Nov 15;140(Supplement 1):2599-600.

7. Rutter M, Lanyon PC, Grainge MJ, Hubbard R, Peach E, Bythell M, Stilwell P, Aston J, Stevens S, Pearce FA. COVID-19 infection, admission and death among people with rare autoimmune rheumatic disease in England: results from the RECORDER project. Rheumatology. 2022 Aug;61(8):3161-71.

8. Hill M, Ellard S, Fisher J, Fulop N, Knight M, Kroese M, Ledger J, Leeson-Beevers K, McEwan A, McMullan D, Mellis R. Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service [version 2; peer review: 2 approved]. NIHR open research. 2022 Jul 18;2:10.

9. Murray CS, Walsh T, Bannister T, Metryka A, Davies K, Lin YL, Williamson P, Callery P, O’Brien K, Shaw W, Bruce I. Does Sleep Position Influence Sleep-Disordered Breathing in Infants With Cleft Palate: A Feasibility Study?. The Cleft Palate-Craniofacial Journal. 2022 Feb;59(2):254-61.

10. Hannah JR, Gordon PA, Galloway J, Rutter M, Peach EJ, Rooney M, Stilwell P, Grainge MJ, Lanyon PC, Bythell M, Pearce FA. Validation of methods to identify people with idiopathic inflammatory myopathies using hospital episode statistics. Rheumatology Advances in Practice. 2022;6(3):rkac102.

Estonian Cancer Screening Register (Estonia)

Database Contact Data

The Estonian Cancer Screening Register
National Institute for Health Development
Hiiu 42
Tallinn
ESTONIA
Phone: +372 6593992
Email: soeluuring@tai.ee

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Changes in the quality of care of colorectal cancer in Estonia: a population-based high-resolution study.  Reima, Heigo; Soplepmann, Jaan; Elme, Anneli; Lõhmus, Mari; Tiigi, Rena; Uksov, Denis; Innos, Kaire             
BMJ Open, 10 (10), e035556. 

2. Analysis of selected quality indicators in the Estonian cervical cancer screening program in 2016. Anion, E; Veerus, P. Master thesis. Defended 2018.

3. Cervical cancer screening history among women diagnosed with cervical cancer in Estonia 2017-18.  Orumaa, M.; Innos, K.; Suurna, M.; Veerus, P. European Journal of Public Health. DOI: 10.1093/eurpub/ckac176. 

4. Mammography use and mode of detection among breast cancer patients in Estonia.  Innos, K; Valvere, V; Padrik, P; Eelma, E; Kütner, R; Lehtsaar, J; Tekkel, M. Women & Health, 56 (2), 129−140.

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