Established in 2010, the National Registry of Rare Kidney Diseases (RaDaR) is an initiative by the UK Kidney Association. Its purpose is to gather longitudinal data on patients diagnosed with specific rare kidney diseases. With 33,000 patients enrolled from 109 sites throughout the UK, RaDaR stands as the largest rare kidney disease registry globally.
The Danish Multiple Sclerosis Registry is one of the oldest and largest MS registries globally, housing nationwide prospective data on all Danish residents diagnosed with MS from 1948 to the present. The registry undergoes a new build approximately every month, during which data are extracted, checked, and cleaned.
We are excited to announce the recent enhancements and upgrades in our tutorial - How to Create Collections on B.R.I.D.G.E. TO DATA®. This updated video demonstrates how to narrow down search results, save collections for future use, and leverage new features for even better profile comparisons.
Professor Danny Gale
Director
RaDaR Team
UNITED KINGDOM
Email: d.gale@ucl.ac.uk
Dr. Zoe Plummer
Senior Project Manager
RaDaR Team
UNITED KINGDOM
Email: zoe.plummer@ukkidney.org
1. Pitcher D, Braddon F, Hendry B, Mercer A, Osmaston K, Saleem MA, Steenkamp R, Wong K, Turner AN, Wang K, Gale DP, Barratt J. Long-Term Outcomes in IgA Nephropathy. Clin J Am Soc Nephrol. 2023 Jun 1;18(6):727-738.
2. Wong K, Pitcher D, Braddon F, Downward L, Steenkamp R, Masoud S, Annear N, Barratt J, Bingham C, Coward RJ, Chrysochou T. Description and Cross-Sectional Analyses of 25,880 Adults and Children in the UK National Registry of Rare Kidney Diseases Cohort. Kidney International Reports. 2024 May 9; 2067–2083.
3. Wong K, Pitcher D, Braddon F, Downward L, Steenkamp R, Annear N, Barratt J, Bingham C, Chrysochou C, Coward RJ, Game D, Griffin S, Hall M, Johnson S, Kanigicherla D, Karet Frankl F, Kavanagh D, Kerecuk L, Maher ER, Moochhala S, Pinney J, Sayer JA, Simms R, Sinha S, Srivastava S, Tam FWK, Turner AN, Walsh SB, Waters A, Wilson P, Wong E, Taylor CM, Nitsch D, Saleem M, Bockenhauer D, Bramham K, Gale DP; RaDaR consortium. Effects of rare kidney diseases on kidney failure: a longitudinal analysis of the UK National Registry of Rare Kidney Diseases (RaDaR) cohort. Lancet. 2024 Mar 30;403(10433):1279-1289.
4. Masoud S, Wong K, Downward L, Pitcher D, Webb NJ, Proudfoot C, RaDaR Consortium, Wong EK, Gale DP. Clinical Predictors of Long-term Outcomes in C3 Glomerulopathy and Immune-Complex Membranoproliferative Glomerulonephritis within the UK RaDaR Registry. medRxiv. 2024:2024-02.
Melinda Magyari, MD, PhD
Associate Professor
Danish Multiple Sclerosis Center
Copenhagen University Hospital
Rigshospitalet Glostrup
Valdemar Hansens Vej 2, Entrance 8, Second floor
DK-2600 Glostrup
DENMARK
Email: melinda.magyari.01@regionh.dk
Cell: + 45 21 68 98 25
Bahar Öztürk
Research Administrator
The Danish Multiple Sclerosis Registry
Department of Neurology
Copenhagen University Hospital – Rigshospitalet
Valdemar Hansens Vej 2, Entrance 8, Second floor
DK-2600 Glostrup
DENMARK
Email: bahar.oeztuerk.01@regionh.dk
Phone: +45 38 63 27 50
Jenni Dalsgaard
Research Administrator
The Danish Multiple Sclerosis Registry
Department of Neurology
Rigshospitalet Glostrup
Valdemar Hansens Vej 2, Entrance 8, Second floor
DK-2600 Glostrup
DENMARK
E-mail 1: jenni.lilian.dalsgaard@regionh.dk
Email 2: scleroseregisteret.rigshospitalet@regionh.dk
Phone: +45 38 63 27 50
1. Joensen H, Framke E, Pontieri L, Magyari M. Diagnoses of Multiple Sclerosis and Related Disorders and Disease-Modifying Therapies: A Comparison of the Danish Multiple Sclerosis Registry With Other Danish Health Registries. Brain Behav. 2026 Feb;16(2):e71235.
2. Maersk-Moller C, Pontieri L, Stilund MLM, Christensen JR, Storr LK, Hansen V, et al. A National Danish Effectiveness Study of Ocrelizumab Versus Natalizumab in Multiple Sclerosis. Eur J Neurol. 2026 Feb;33(2):e70507.
3. Swane V, Magyari M, Højsgaard Chow H, Jensen PEH, Sørensen PS, Søndergaard HB, et al. Significance and stability of cerebrospinal fluid oligoclonal band patterns in multiple sclerosis. Mult Scler Relat Disord. 2026 Feb;106:106893.
4. Mamoei S, Möller F, Frederiksen JL, Svendsen KB, Saleem R, Søndergaard HB, et al. Relapse-related outcomes in the Danish population-based AQP4-antibody seropositive neuromyelitis optica spectrum disorder cohort. Neurol Sci. 2026 Jan 13;47(1):158.
5. Trojano M, Iaffaldano P, Copetti M, Drahota J, Forsberg L, Mouresan EF, et al. Big multiple sclerosis data network: novel modelling approaches for real-world data analysis. J Neurol. 2025 Nov 8;272(12):754.
6. von Kappelgaard L, Framke E, Vassard D, Pinborg A, Schwarze JE, Sabidó M, Magyari M. Relapse activity after assisted reproductive technology treatments in women with multiple sclerosis: a nationwide cohort study in Denmark. J Neurol Neurosurg Psychiatry. 2025 Oct 20;97(1):e336080.
7. Windfeld-Mathiasen J, Horwitz H, Heerfordt IM, Framke E, Magyari M. Medication Use in Multiple Sclerosis: A Population-Based Comparison With the General Danish Population. Ann Clin Transl Neurol. 2025 Jul 31;12(11):2206-2213.
8. Beczek A, Landt EM, Magyari M, Storr LK, Dahl M. Assessing the association between mortality and clinical follow-up visits in multiple sclerosis. Mult Scler. 2025 Jul 7;31(11):1294-1303.
9. von Kappelgaard L, Framke E, Vassard D, Pinborg A, Schwarze JE, Sabidó M, Magyari M. Disease-modifying therapy during pregnancy and postpartum relapse activity in women with multiple sclerosis undergoing assisted reproductive technology treatment: a nationwide cohort study. BMJ Neurol Open. 2025 Jul 3;7(2):e001092.
10. Nielsen NM, Andersson M, Magyari M, Koch-Henriksen N, Stenager E, Koch A. Multiple Sclerosis in the Greenlandic population: a nationwide cohort study. Mult Scler Relat Disord. 2025 Jun 5;101:106543.
Our tutorial “How to Conduct a Search” has been updated to include our latest enhancements, to better serve pharmaceutical companies, database consultants, epidemiologists, and public health professionals. This tutorial offers an improved guide on the basics of searching for database profiles using keywords and/or defined criteria and explains how to save individual searches for future reference.
Started in 2015, the goal of the Utah Parkinson’s Disease Registry is to develop a database of accurate historical and current information for research and public health purposes. The collection of patient data is important for detecting disease incidence, and possible risk factors of PD and other related movement disorders.
Starting in 2003, the Danish National Prescription Registry includes individual-level data on prescriptions filled by Danish residents at community pharmacies. The Danish community pharmacy sector consists of 314 large pharmacies, on average covering about 17,000 residents and serving about 600 customers per day. Data are received from records in the electronic dispensing systems of community pharmacies. The Registry contains 46 variables that characterize each redeemed prescription.
Discover the wealth of global healthcare data at B.R.I.D.G.E. TO DATA®, where we proudly feature >475 database profiles from 65 countries. Our platform is continuously evolving, with new profiles being added and existing ones regularly updated to ensure the most accurate and comprehensive information.
