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The Norwegian Immunisation Registry SYSVAK (national vaccination register) is a nationwide electronic vaccination register established in 1995. Until October 2009, the reporting obligation to SYSVAK only covered vaccines given in the childhood vaccination programme. During the flu pandemic in 2009, reporting was also introduced for the vaccine against pandemic flu. Starting January 2011, the reporting obligation was extended to apply to all vaccinations for all age groups in the population.
Established in October 2011, TURKBIO is the first nationwide biological database contributed by 15 different centers across Turkey. TURKBIO is a registry that allows patients to enter data using electronic touchscreens.
All enquiries regarding the disclosure of health data should be directed to the e-mail address: datatilgang@fhi.no
You may call the registry at (+47) 21 07 70 00, or send an e-mail to folkehelseinstituttet@fhi.no
1. Meijerink H, Shelil M, Jani-Bølstad J, Dvergsdal ET, Madslien EH, Wilberg M, Gundersen RB, Sæbø JI, Thorseng AA, Iversen BG. Does integration with national registers improve the data completeness of local COVID-19 contact tracing tools? A register-based study in Norway, May 2020 - September 2021. BMC Health Serv Res. 2024 Jan 17;24(1):96.
2. Hansen BT, Klungsøyr O, Labberton AS, Sääksvuori L, Rydland KM, Ødeskaug LE, Wisløff T, Meijerink H. Effectiveness of Text Messaging Nudging to Increase Coverage of Influenza Vaccination Among Older Adults in Norway (InfluSMS Study): Protocol for a Randomized Controlled Trial. JMIR Res Protoc. 2025 Feb 25;14:e63938.
3. Buer S, Hagen BI, Søraas A, White RA, Bø R, Ellingjord-Dale M, Istre MS, Brunvoll SH, Lerdal A, Landrø NI, Nygaard AB, Stubberud J. Executive deficits after SARS-CoV-2 infection: A cross-sectional population study. Brain Behav Immun Health. 2024 Sep 10;41:100857.
4. Rykkelid M, Wennberg HM, Richardsen E, Sørbye SW. Post-Conization HPV Vaccination and Its Impact on Viral Status: A Retrospective Cohort Study in Troms and Finnmark, 2022. Pathogens. 2024 May 2;13(5):381.
5. Dong L, Nygård M, Støer NC, Klungsøyr O, Hansen BT. Real‐world effectiveness of HPV vaccination against cervical neoplasia among birth cohorts ineligible for routine vaccination. International Journal of Cancer. 2023 Jul 15;153(2):399-406.
6. Nilsen TS, Gulseth HL, Daae A, Indseth T. Coronavirus immunisation abroad among foreign-born persons in Norway. Tidsskr Nor Laegeforen. 2022 Jun 27;142(10). English, Norwegian.
7. Hagerup-Jenssen M, Kongsrud S, Riise ØR. Suboptimal MMR2 vaccine coverage in six counties in Norway detected through the national immunisation registry, April 2014 to April 2017. Euro Surveill. 2017 Apr 27;22(17):30518.
8. Riise ØR, Laake I, Bergsaker MA, Nøkleby H, Haugen IL, Storsæter J. Monitoring of timely and delayed vaccinations: a nation-wide registry-based study of Norwegian children aged < 2 years. BMC Pediatr. 2015 Nov 13;15:180.
9. Riise O. 1066: Delay in the Norwegian Immunisation Programme. Open Forum Infect Dis. 2014 Dec;1(Suppl 1):S312–3.
10. Steens A, Bergsaker MA, Aaberge IS, Rønning K, Vestrheim DF. Prompt effect of replacing the 7-valent pneumococcal conjugate vaccine with the 13-valent vaccine on the epidemiology of invasive pneumococcal disease in Norway. Vaccine. 2013 Dec 16;31(52):6232-8.
Fatoş Önen
Division of Rheumatology
Dokuz Eylül University School of Medicine
İzmir
TURKEY
Email: Fatos.onen@gmail.com
TÜRK ROMATOLOJİ VERİTABANI "TÜRKBİO"
Dokuz Eylül Üniversitesi Tıp Fakültesi Hastanesi
İç Hastalıkları Ana Bilim Dalı
Romatoloji Bilim Dalı
Balçova
İzmir
TURKEY
Phone: +90 2324123721
Email: turkbio@zitelab.eu
1. Uslu S, Gülle S, Sen G, Capar S, Senel S, Dalkılıc E, Akar S, Koca SS, Tufan A, Yazici A, Yilmaz S, Inanc N, Birlik M, Solmaz D, Cefle A, Goker B, Direskeneli H, Yolbas S, Steen Krogh N, Yilmaz N, Erten S, Bes C, Soysal Gündüz O, Oztürk MA, Haznedaroglu S, Yavuz S, Onen F, Sari I. Efficacy and Safety of CT-P13 as First- and Second-Line Treatment in Patients with Ankylosing Spondylitis. J Clin Med. 2024 Nov 29;13(23):7266.
2. Ørnbjerg LM, Brahe CH, Linde L, Jacobsson L, Nissen MJ, Kristianslund EK, Santos MJ, Nordström D, Rotar Z, Gudbjornsson B, Onen F, Codreanu C, Lindström U, Möller B, Kvien TK, Barcelos A, Eklund KK, Tomšič M, Love TJ, Can G, Ionescu R, Loft AG, Mann H, Pavelka K, van de Sande M, van der Horst-Bruinsma IE, Suarez MP, Sánchez-Piedra C, Macfarlane GJ, Iannone F, Michelsen B, Hyldstrup LH, Krogh NS, Østergaard M, Hetland ML. Drug effectiveness of 2nd and 3rd TNF inhibitors in psoriatic arthritis - relationship with the reason for withdrawal from the previous treatment. Joint Bone Spine. 2024 Jul;91(4):105729.
3. Uslu S, Gulle S, Sen G, Cefle A, Yilmaz S, Kocaer SB, Yuce Inel T, Koca SS, Yolbas S, Ozturk MA, Senel S, Inanc N, Dalkilic HE, Soysal Gunduz O, Tufan A, Akar S, Birlik AM, Sari I, Akkoc N, Onen F. Assessing safety and efficacy of TNFi treatment in late onset ankylosing spondylitis: a TURKBIO registry study. Sci Rep. 2024 Jun 20;14(1):14194.
4. Karakaş A, Gulle S, Can G, Dalkılıc E, Akar S, Koca SS, Pehlivan Y, Senel S, Tufan A, Ozturk MA, Yilmaz S, Yazici A, Cefle A, Yüce İnel T, Erez Y, Sari I, Birlik M, Direskeneli H, Akkoc N, Onen F. Does obesity affect treatment response to secukinumab and survival in ankylosing spondylitis? Real-life data from the TURKBIO Registry. Mod Rheumatol. 2024 Mar 28;34(3):584-591.
5. Uslu S, Gülle S, Urak Ö, Şen G, Dalkılıç E, Şenel S, Akar S, İnanç N, Cefle A, Köken Avşar A, Yolbaş S, Yılmaz S, Soysal Gündüz Ö, Sarı İ, Birlik M, Akkoç N, Önen F. Biological treatment in elderly and young patients with ankylosing spondylitis: TURKBIO real-life data results. Arch Rheumatol. 2024 Mar 20;39(2):232-241.
6. Inanc N, Abacar KY, Ozturk MA, Tufan A, Karadeniz H, Sari I, Can G, Erez Y, Pehlivan Y, Dalkilic HE, Ocak T, Cefle A, Yazici A, Senel AS, Akar S, Durak-Ediboğlu E, Koca SS, Piskin-Sagir R, Yilmaz S, Gulcemal S, Soysal-Gunduz O, Basibuyuk CS, Alkan S, Cesur TY, Onen F. Unintentional Monotherapy in Rheumatoid Arthritis Patients Receiving Tofacitinib and Drug Survival Rate of Tofacitinib. J Clin Rheumatol. 2023 Dec 1;29(8):365-369.
7. Tuğsal HY, Artin GK, Can G, Çapar S, Zengin B, Akar S, Dalkiliç HE, Şenel AS, Koca SS, Göker B, Yazici A, İnanç GN, Ellidokuz H, Akkoç N, Önen F. The impact of smoking on response to tumor necrosis factor-α inhibitor treatment in patients with ankylosing spondylitis. Turk J Med Sci. 2023 Aug;53(4):970-978.
8. Karataş A, Pişkin Sağir R, Koca SS, Dalkiliç E, Can G, Pehlivan Y, Yazici A, Inanç N, Cefle A, Ertürk Z, Akar S, Şenel S, Birlik M, Akkoç N, Önen F. Body mass index does not affect response of rituximab in patients with rheumatoid arthritis: results from the TURKBİO registry. Turk J Med Sci. 2023 Jun 21;53(5):1321-1329.
9. Yazici A, Özdemir Işık Ö, Dalkılıç E, Koca SS, Pehlivan Y, Şenel S, Inanc N, Akar S, Yılmaz S, Soysal Gündüz Ö, Cefle A, Karakaş ÖF, Onen F. A national, multicenter, secondary data use study evaluating efficacy and retention of first-line biologic treatment with tocilizumab in patients with rheumatoid arthritis in real-life setting: results from TURKBIO registry. Sci Rep. 2022 Dec 20;12(1):21972.
10. Önen F, Can G, Çapar S, Dalkılıç E, Pehlivan Y, Şenel S, Akar S, Koca SS, Tufan A, Yazıcı A, Yılmaz S, İnanç N, Sarı İ, Birlik M, Solmaz D, Cefle A, Öztürk MA, Yolbaş S, Krogh NS, Yılmaz N, Erten Ş, Bes C, Gündüz ÖS, Göker B, Haznedaroğlu S, Yavuz Ş, Yildirim Çetin G, Yıldız F, Direskeneli H, Akkoç N. A real-life analysis of patients with rheumatologic diseases on biological treatments: Data from TURKBIO Registry. Eur J Rheumatol. 2022 Apr;9(2):82-87.
Launched April 1, 2015, the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records information on people with congenital abnormalities and rare diseases across the whole of England. NCARDRS includes information from the following registries, which individually collected data in the past:
- Congenital Anomaly Register for Oxfordshire, Berkshire and Buckinghamshire (CAROBB)
The National Cancer Registry of Ireland (NCRI) was established in 1991 and has been collecting comprehensive cancer information for the population of the Republic of Ireland since 1994. This information is used in research into the causes of cancer, in education and information programmes, and in the planning and management of cancer services to deliver the best cancer care to the whole population.
National Cancer Registry Ireland
Building 6800 Cork Airport Business Park
Cork, T12CDF7
IRELAND
Phone: +353 (0) 21 4310814
Email: ncr_info@ncri.ie
National Cancer Registry Ireland
Building 6800 Cork Airport Business Park
Cork, T12CDF7
Phone: +353 (0) 21 4310814
Email via Contact Form: https://www.ncri.ie/contact
1. White P, Brennan A, McDevitt J, Murray D, Mohan CM, Fitzpatrick P, Mooney T, Smith A, Mullooly M, Bambury N. Screen-detected breast cancer and cancer stage by area-level deprivation: a descriptive analysis using data from the National Cancer Registry Ireland. Eur J Public Health. 2025 Apr 1;35(2):347-352.
2. Millar SR, Mohamed MB, Mykytiv V, McMorrow R, Donnelly C, O'Leary E, Orfali N, Murphy P, Browne PV, Quinn J, O'Gorman P, Ryan MF, Clifford R, Hassadi EE, O'Shea D, Gilligan O, Krawczyk J, O'Dwyer ME, Szegezdi E, Cahill MR. Blood Cancer Network Ireland (BCNI) and National Cancer Registry Ireland (NCRI) collaboration: challenges and utility of an Enhanced Blood Cancer Outcomes Registry (EBCOR) pilot. Ir J Med Sci. 2024 Dec;193(6):2615-2623.
3. Sexton GP, Crotty TJ, Staunton SM, Healy ML, O'Neill JP, Timon C, Kinsella JB, Lennon P, Fitzgerald CW. Thyroid cancer epidemiology in Ireland from 1994 to 2019 - Rising diagnoses without mortality benefit. Surgeon. 2024 Oct 7:S1479-666X(24)00122-7.
4. Zhang M, Kelly C, McCarthy T, Tierney P, Brennan A, Burke L, McGrath C, Mullooly M, Murray D, Bennett K. Examining the COVID-19 impact on cancer surgery in Ireland using three national data sources. Glob Epidemiol. 2024 Aug 3;8:100159.
5. Keogh RJ, Barr MP, Keogh A, McMahon D, Baird AM, Cotter S, Breen D, Fitzmaurice GJ, Fitzpatrick D, O’Brien C, Finn SP. Lung Cancer in the Republic of Ireland. Journal of Thoracic Oncology. 2023 Jul 1;18(7):851-7.
6. Conlon E, Fitzgerald C, Hintze J, Elhassan EA, Sexton DJ, O'Leary E, O'Kelly P, O'Neill JO, Egan J, Houlihan DD, Murray D. High frequency and mortality of head and neck malignancy in organ transplant recipients in Ireland–A national cohort study. American Journal of Otolaryngology. 2023 Jul 1;44(4):103827.
7. Sexton GP, Walsh P, Moriarty F, Lennon P, O’Neill JP. Survival in an era of organ preservation: an update on laryngeal cancer in Ireland. European Archives of Oto-Rhino-Laryngology. 2023 Jun 16:1-9.
8. Crealey GE, Hackett C, Harkin K, Heckmann P, Kelleher F, Lyng Á, McCarthy T, McEnery M, Meaney C, Roche D, Tobin AM. Melanoma-related costs by disease stage and phase of management in Ireland. Journal of Public Health. 2023 May 11:fdac154.
9. Dundon NA, Al Ghazwi AH, Davey MG, Joyce WP. Rectal cancer surgery: does low volume imply worse outcome—a single surgeon experience. Irish Journal of Medical Science (1971-). 2023 May 8:1-7.
10. Killian M, Mahony DO, Murphy K, Connor DO, Bird B, Murphy CG. Breast cancer outcomes in a private hospital appear better than national outcomes in a country with a mixed public/private healthcare model. Irish Journal of Medical Science (1971-). 2023 Apr;192(2):527-31.
We are excited to add three new profiles from Denmark and Sweden to our resource of over 400 healthcare database profiles.
