Feb 14, 2023: We now have the Estonian Drug Treatment Register profile for you

The Estonian Drug Treatment Register was established in 2020. All health care providers treating drug dependence are required to send notification to the Register when starting or finishing a treatment episode. Each record contains personal identifiers (name and unique ID-code assigned to all residents of Estonia), socio-demographic characteristics, drugs used, date and code of diagnosis (ICD-10), as well as data on treatment episode.

Feb 9, 2023: Our 14th profile from Sweden has been uploaded

The Registry for Monitoring Fetal Damage and Chromosomal Abnormalities contains information on birth defects since 1964. Data from the Swedish Medical Birth Register are available since 1973, and data from the Swedish Patient Register are available since 1987. This specific register contains information on newborns, live births and stillborn children, who have a gestational age of at least 22 completed weeks of pregnancy and who have congenital malformations, deformities and chromosomal abnormalities.

Registry for Monitoring Fetal Damage and Chromosomal Abnormalities (Sweden)

Database Contact Data

Carina Gustafsson
Programme Officer, Phd
The National Board of Health and Welfare
Department of Registers and Statistics 
SE-106 30 Stockholm
Phone: +46 75 247 30 00
Email: carina.gustafsson@socialstyrelsen.se

Alternate Contact

Mona Heurgren
The National Board of Health and Welfare
Department of Registers and statistics 
SE-106 30 Stockholm
Email: mona.heurgren@socialstyrelsen.se

References of Studies Using/Describing Database

1. Nikkilä A, Källén B, Marsál K. Fetal growth and congenital malformations. Ultrasound Obstet Gynecol. 2007 Mar;29(3):289-95. 

2. Wennerholm UB, Bergh C, Hamberger L, Lundin K, Nilsson L, Wikland M, Källén B. Incidence of congenital malformations in children born after ICSI. Hum Reprod. 2000 Apr;15(4):944-8.

3. Kälién B, Robert E, Harris J. Associated malformations in infants and fetuses with upper or lower neural tube defects. Teratology. 1998 Feb;57(2):56-63.

4. Milerad J, Larson O, Hagberg C, Ideberg M. Associated malformations in infants with cleft lip and palate: a prospective, population-based study. Pediatrics. 1997 Aug;100(2 Pt 1):180-6.

5. Pradat P. Noncardiac malformations at major congenital heart defects. Pediatr Cardiol. 1997 Jan-Feb;18(1):11-8

6. Källén B, Harris J, Robert E. The epidemiology of orofacial clefts. 2. Associated malformations. J Craniofac Genet Dev Biol. 1996 Oct-Dec;16(4):242-8.

7. Pradat P. Epidemiology of major congenital heart defects in Sweden, 1981-1986. J Epidemiol Community Health. 1992 Jun;46(3):211-5.

8. Pradat P, Robert E. Is trisomy 18 increasing in Sweden? An analysis of the syndrome during a ten year period and a comparison with a French registry. Hereditas. 1991;114(1):97-102. 

9. Goel N, Morris JK, Tucker D, de Walle HEK, Bakker MK, Kancherla V, Marengo L, Canfield MA, Kallen K, Lelong N, Camelo JL, Stallings EB, Jones AM, Nance A, Huynh MP, Martínez-Fernández ML, Sipek A, Pierini A, Nembhard WN, Goetz D, Rissmann A, Groisman B, Luna-Muñoz L, Szabova E, Lapchenko S, Zarante I, Hurtado-Villa P, Martinez LE, Tagliabue G, Landau D, Gatt M, Dastgiri S, Morgan M. Trisomy 13 and 18-Prevalence and mortality-A multi-registry population based analysis. Am J Med Genet A. 2019 Dec;179(12):2382-2392.

10. Sabeti Rad Z, Friberg B, Henic E, Rylander L, Ståhl O, Källén B, Lingman G. Congenital malformations in offspring of women with a history of malignancy. Birth Defects Res. 2017 Feb 15;109(3):224-233. 

Feb 7, 2023: Our latest profile addition from Estonia

With data since 1987, the Estonian Tuberculosis (TB) Register is a population-based, centralized national register with standardized registration of all TB cases in Estonia. This TB Register is an electronic, person-based one with unique personal Estonian ID-codes, linking data with the Estonian Population Register, TB reference laboratory database, and Causes of Death Register. All data are cross-checked with health care providers.

Estonian Tuberculosis Register (Estonia)

Database Contact Data

Estonian Tuberculosis Register
National Institute for Health Development
Hiiu 42
Tallinn 11619
Email: tuberkuloosiregister@tai.ee
Phone: +372 659 39 17

Alternate Contact

Email: tai@tai.ee
Phone: +372 659 39 00

References of Studies Using/Describing Database

1. Campbell JR, Chan ED, Falzon D, Trajman A, Keshavjee S, Leung CC, Miller AC, Monedero-Recuero I, Rodrigues DS, Seo H, Baghaei P, Udwadia Z, Viiklepp P, Bastos M, Menzies D. Low Body Mass Index at Treatment Initiation and Rifampicin-Resistant Tuberculosis Treatment Outcomes: An Individual Participant Data Meta-Analysis. Clin Infect Dis. 2022 Dec 19;75(12):2201-2210.

2. Cegielski JP, Chan PC, Lan Z, Udwadia ZF, Viiklepp P, Yim JJ, Menzies D. Aminoglycosides and Capreomycin in the Treatment of Multidrug-resistant Tuberculosis: Individual Patient Data Meta-analysis of 12 030 Patients From 25 Countries, 2009-2016. Clin Infect Dis. 2021 Dec 6;73(11):e3929-e3936.

3. Rahu K, Viiklepp P, Villand K, Pehme L, Rahu M. Respiratory tuberculosis incidence and mortality in Estonia: 30-year trends and sociodemographic determinants. Int J Tuberc Lung Dis. 2019 Jan 1;23(1):112-118.

4. Blöndal K, Rahu K, Altraja A, Viiklepp P, Rahu M. Overall and cause-specific mortality among patients with tuberculosis and multidrug-resistant tuberculosis. Int J Tuberc Lung Dis. 2013 Jul;17(7):961-8.

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