Japan Medical Data Center® (JMDC): Hospital Database (Japan)

Database Contact Data

JMDC Inc.
Sumitomo Shibadaimon Bldg 12F 
2-5-5, Shibadaimon
Minato-ku
Tokyo 105-0012
JAPAN
Phone: +81-03-5733-5010 
Email: info@jmdc.co.jp

Alternate Contact

You may also contact the company by completing the contact form at: https://www.jmdc.co.jp/en/inquiry/

References of Studies Using/Describing Database

1. Miyairi I, Miyazawa S, Takahashi Y, Kojima S, Kitanishi Y, Ogura E. Incidence of severe illness in pediatric influenza outpatients treated with baloxavir or neuraminidase inhibitors. J Infect Chemother. 2025 Mar;31(3):102606.

2. Miyazato K, Ohtsu H, Shimomura A, Yonemoto N, Shimizu C, Sase K, Ueda S. Impact of adjuvant trastuzumab therapy and its discontinuation on cardiac function and mortality in patients with early-stage breast cancer: An analysis based on the Japanese Receipt Claim Database. Breast. 2025 Feb;79:103871.

3. Nagashima R, Kato H, Matsuzaki T, Nagahama T, Goto R. Utilisation of outpatient care immediately before emergency admission for ambulatory care-sensitive conditions in Japan: a retrospective observational study. BMJ Open. 2025 Jan 8;15(1):e086714.

4. Kusama T, Tamada Y, Osaka K, Takeuch K. Periodontal Care Is Associated With a Lower Risk of Dialysis Initiation in Middle-Aged Patients With Type 2 Diabetes Mellitus: A 6-Year Follow-Up Cohort Study Based on a Nationwide Healthcare Database. J Clin Periodontol. 2025 Jan 5. doi: 10.1111/jcpe.14105. Epub ahead of print.

5. Matsuoka K, Nakajo K, Kawamura S, Zhang Y, Chung H, Wahking B, Tan JY, Qiu H. Persistence of advanced therapies in patients with inflammatory bowel disease: retrospective cohort study using a large healthcare claims database in Japan. Intest Res. 2025 Jan 2. doi: 10.5217/ir.2024.00118. Epub ahead of print.

6. Makiuchi T, Zha L, Kitamura T, Sobue T, Ogawa T. Impact of colorectal cancer screening by primary tumor location in a real-world setting in Japan. Eur J Cancer Prev. 2024 Nov 27. doi: 10.1097/CEJ.0000000000000940. Epub ahead of print.

7. Suzuki Y, Iwagami M, Shimizu S, Goto A. Effects of incentivising dialysis facilities on peripheral arterial disease care in patients undergoing haemodialysis: a claims-based cohort study. Clin Kidney J. 2024 Nov 18;17(12):sfae342.

8. Okada K, Nakayama Y, Xu J, Cheng Y, Tanaka J. A nation-wide medical record database study: Value of hepatitis B surface antigen loss in chronic hepatitis B patients in Japan. Hepatol Res. 2024 Nov;54(11):1004-1015.

9. Sato A, Rodriguez-Molina D, Yoshikawa-Ryan K, Yamashita S, Okami S, Liu F, Farjat A, Oberprieler NG, Kovesdy CP, Kanasaki K, Vizcaya D. Early Clinical Experience of Finerenone in People with Chronic Kidney Disease and Type 2 Diabetes in Japan-A Multi-Cohort Study from the FOUNTAIN (FinerenOne mUltidatabase NeTwork for Evidence generAtIoN) Platform. J Clin Med. 2024 Aug 28;13(17):5107.

10. Kawai K, Ishii M, Kokado Y, Horikawa T, Hoshino J. Outcomes of Early Versus Delayed Anemia Treatment in Nondialysis-Dependent CKD. Kidney Int Rep. 2024 Apr 15;9(7):2056-2066.

Japan Medical Data Center® (JMDC): Local Government Database (Japan)

Database Contact Data

JMDC Inc.
Sumitomo Shibadaimon Bldg 12F 
2-5-5, Shibadaimon
Minato-ku
Tokyo 105-0012
JAPAN
Phone: +81-03-5733-5010 
Email: info@jmdc.co.jp

Alternate Contact

You may also contact the company by completing the contact form at: https://www.jmdc.co.jp/en/inquiry/

References of Studies Using/Describing Database

1. Okubo Y, Ishitsuka K, Goto A. Impact of COVID-19 pandemic on physical health amongst children: Difference-in-differences analyses of nationwide school health checkup database. Pediatr Obes. 2024 Jul;19(7):e13126.

2. Okumura Y, Fujiwara T, Tokumasu H, Kimura T, Hinotsu S. A new electronic medical record database linked to claims data and discharge abstract data (the RWD database) in Japan: Study design and profile. Annals of Clinical Epidemiology. 2024;6(3):58-64.

3. Kanda E, Suzuki A, Makino M, Tsubota H, Kanemata S, Shirakawa K, Yajima T. Machine learning models for prediction of HF and CKD development in early-stage type 2 diabetes patients. Sci Rep. 2022 Nov 21;12(1):20012.

4. Masubuchi R, Noda M, Yoshida S, Kawakami K. Longitudinal study of body mass index and percentage of overweight in Japanese children grouped by maturity. Endocrine Journal. 2022;69(4):451-61.

5. Yoshida S, Kimura T, Noda M, Takeuchi M, Kawakami K. Association of maternal prepregnancy weight and early childhood weight with obesity in adolescence: A population-based longitudinal cohort study in Japan. Pediatr Obes. 2020 Apr;15(4):e12597.

6. Ide K, Yoshida S, Kimura T, Oita Y, Kawakami K. The General Understanding and Perceptions of the Practical Use of School Health Records: A Questionnaire Survey of Parents from Seven Local Municipalities in Japan. School Health. 2020;16:33-42.

Japan Medical Data Center® (JMDC): Electronic Medical Record Database (Japan)

Database Contact Data

JMDC Inc.
Sumitomo Shibadaimon Bldg 12F 
2-5-5, Shibadaimon
Minato-ku
Tokyo 105-0012
JAPAN
Phone: +81-03-5733-5010 
Email: info@jmdc.co.jp

Alternate Contact

You may also contact the company by completing the contact form at: https://www.jmdc.co.jp/en/inquiry/

References of Studies Using/Describing Database

1. Yabuuchi M, Yokoyama K. Safety risks of interstitial lung disease upon real-world usage of Janus kinase inhibitors and biologics for patients with autoimmune diseases: epidemiological study using nationwide electronic medical record database in Japan. Immunol Med. 2024 Sep;47(3):130-141.

2. Hiraga K, Takeuchi M, Kimura T, Yoshida S, Kawakami K. Prediction models for in-hospital deaths of patients with COVID-19 using electronic healthcare data. Curr Med Res Opin. 2023 Nov;39(11):1463-1471. doi: 10.1080/03007995.2023.2270420. Epub 2023 Oct 28. Erratum in: Curr Med Res Opin. 2024 Aug;40(8):1453.

3. Iijima H, Gouda M, Hida H, Mori-Anai K, Takahashi A, Minai R, Ninomiya H, Saito Y, Miyawaki A, Wada J. Renal outcomes with sodium-glucose cotransporter 2 inhibitors in Japanese people with grade 3 chronic kidney disease and type 2 diabetes: Analysis of medical administrative databases. Diabetes Obes Metab. 2024 May;26(5):1615-1623.

4. Kawai K, Ishii M, Kokado Y, Horikawa T, Hoshino J. Outcomes of Early Versus Delayed Anemia Treatment in Nondialysis-Dependent CKD. Kidney Int Rep. 2024 Apr 15;9(7):2056-2066.

5. Hayashi A, Mizuno K, Shinkawa K, Sakoda K, Yoshida S, Takeuchi M, Yanagita M, Kawakami K. Effect of multidisciplinary care on diabetic kidney disease: a retrospective cohort study. BMC nephrology. 2024 Mar 25;25(1):114.

6. Tanaka T, Maruyama S, Chishima N, Akiyama H, Shimamoto K, Inokuchi S, Yokota K, Ozaki A. Population characteristics and diagnosis rate of chronic kidney disease by eGFR and proteinuria in Japanese clinical practice: an observational database study. Sci Rep. 2024 Mar 2;14(1):5172.

7. Inokuchi S, Shimamoto K. Persistent Risk of Developing Autoimmune Diseases Associated With COVID-19: An Observational Study Using an Electronic Medical Record Database in Japan. J Clin Rheumatol. 2024 Mar 1;30(2):65-72.

8. Masaki H, Shimamoto K, Inokuchi S, Ishizaki S. Treatment of Chronic Constipation using Elobixibat in a Real-World Setting: A Retrospective Cohort Study using an Electronic Medical Records Database in Japan. Curr Ther Res Clin Exp. 2023 Oct 28;99:100724.

9. Okumura Y, Kimura T, Inokuchi S, Okamoto M, Takano T, Miyake M, Kumagai Y. Real-World Hepatic Safety of Oral Acetaminophen Versus Loxoprofen/Celecoxib: Using a Nationwide Electronic Medical Record Database. J Clin Pharmacol. 2023 Jul;63(7):798-806.

10. Uno S, Midorikawa S, Inoue K, Ichikawa D, Ito T, Kuroda J, Suzuki K. Survival outcomes among patients with multiple myeloma in the era of novel agents: exploratory assessment using an electronic medical record database in Japan. PLoS One. 2023 May 31;18(5):e0285947.

Japan Medical Data Center® (JMDC): Payer Database (Japan)

Database Contact Data

JMDC Inc.
Sumitomo Shibadaimon Bldg 10F 
2-5-5, Shibadaimon
Minato-ku
Tokyo 105-0012
JAPAN
Phone: +81-03-5733-5010 
Email: medhelp@jmdc.co.jp

Alternate Contact

N/A

References of Studies Using/Describing Database

1. Miyairi I, Miyazawa S, Takahashi Y, Kojima S, Kitanishi Y, Ogura E. Incidence of severe illness in pediatric influenza outpatients treated with baloxavir or neuraminidase inhibitors. J Infect Chemother. 2025 Mar;31(3):102606.

2. Aranishi T, Igarashi A, Hara K, Osumili B, Cai Z, Mizogaki A, Sato M, Takeuchi M, Minghetti A, Hunt B, Kadowaki T. The Long-Term Cost-Effectiveness of Tirzepatide 5 mg versus Dulaglutide 0.75 mg for the Treatment of People with Type 2 Diabetes in Japan. Diabetes Ther. 2025 Mar;16(3):431-445.

3. Miyazato K, Ohtsu H, Shimomura A, Yonemoto N, Shimizu C, Sase K, Ueda S. Impact of adjuvant trastuzumab therapy and its discontinuation on cardiac function and mortality in patients with early-stage breast cancer: An analysis based on the Japanese Receipt Claim Database. Breast. 2025 Feb;79:103871.

4. Nagashima R, Kato H, Matsuzaki T, Nagahama T, Goto R. Utilisation of outpatient care immediately before emergency admission for ambulatory care-sensitive conditions in Japan: a retrospective observational study. BMJ Open. 2025 Jan 8;15(1):e086714.

5. Takizawa T, Kitano T, Togo K, Yoshikawa R, Iijima M. Clinical practice for migraine treatment and characteristics of medical facilities and physicians treating migraine: Insights from a retrospective cohort study using a Japanese claims database. PLoS One. 2024 Dec 19;19(12):e0315610.

6. Suzuki Y, Iwagami M, Shimizu S, Goto A. Effects of incentivising dialysis facilities on peripheral arterial disease care in patients undergoing haemodialysis: a claims-based cohort study. Clin Kidney J. 2024 Nov 18;17(12):sfae342.

7. Okada K, Nakayama Y, Xu J, Cheng Y, Tanaka J. A nation-wide medical record database study: Value of hepatitis B surface antigen loss in chronic hepatitis B patients in Japan. Hepatol Res. 2024 Nov;54(11):1004-1015.

8. Kawai K, Ishii M, Kokado Y, Horikawa T, Hoshino J. Outcomes of Early Versus Delayed Anemia Treatment in Nondialysis-Dependent CKD. Kidney Int Rep. 2024 Apr 15;9(7):2056-2066.

9. Hayashi A, Mizuno K, Shinkawa K, Sakoda K, Yoshida S, Takeuchi M, Yanagita M, Kawakami K. Effect of multidisciplinary care on diabetic kidney disease: a retrospective cohort study. BMC nephrology. 2024 Mar 25;25(1):114.

10. Okumura Y, Fujiwara T, Tokumasu H, Kimura T, Hinotsu S. A new electronic medical record database linked to claims data and discharge abstract data (the RWD database) in Japan: Study design and profile. Annals of Clinical Epidemiology. 2024;6(3):58-64.

Apr 22, 2025: Are you looking for a European rare disease database?

With data starting in 2010, the BNDMR (Banque Nationale de Données Maladies Rares) is a French National Rare Disease Data Registry offering healthcare professionals the ability to collect a minimum data set (MDS) common for all patients in addition to other different complementary data collections for specific care purposes via the BaMaRa application.

Banque Nationale de Données Maladies Rares (BNDMR): French National Registry of Rare Diseases (France)

Database Contact Data

BNDMR - Banque Nationale de Données Maladies Rares
AP-HP 
33 Boulevard de Picpus
75012 Paris
FRANCE
Contact : Solange ROUMENGOUS
Email 1: solange.roumengous@aphp.fr
Email 2: contact@bndmr.fr

Alternate Contact

Alban LERMINE
Email: alban.lermine@aphp.fr 

References of Studies Using/Describing Database

1. Vantyghem MC, Nobécourt E, Vatier C, Bismuth E, Deshuille C, Elarouci N; French Lipodystrophy Reference Network; Jannot AS, Delemer B, Vigouroux C. Lipodystrophy and severe insulin resistance syndrome: epidemiological data from a French national rare diseases registry. Ann Endocrinol (Paris). 2025 Mar 31:101730.

2. Donadille B, Janmaat S, Mosbah H, Belalem I, Lamothe S, Nedelcu M, Jannot AS, Christin-Maitre S, Fève B, Vatier C, Vigouroux C. Diagnostic and referral pathways in patients with rare lipodystrophy and insulin-resistance syndromes: key milestones assessed from a national reference center. Orphanet J Rare Dis. 2024 Apr 27;19(1):177.

3. Angin C, Mazzucato M, Weber S, Kirch K, Abdel Khalek W, Ali H, Maiella S, Olry A, Jannot AS, Rath A. Coding undiagnosed rare disease patients in health information systems: recommendations from the RD-CODE project. Orphanet J Rare Dis. 2024 Jan 27;19(1):28.

4. Mazzucato M, Pozza LV, Facchin P, Angin C, Agius F, Cavero-Carbonell C, Corrochano V, Hanusova K, Kirch K, Lambert D, Lucano C. ORPHAcodes use for the coding of rare diseases: comparison of the accuracy and cross country comparability. Orphanet Journal of Rare Diseases. 2023 Sep 4;18(1):267.

5. Pichon T, Messiaen C, Soussand L, Angin C, Sandrin A, Elarouci N, Jannot AS; BNDMR infrastructure team. Overview of patients' cohorts in the French National rare disease registry. Orphanet J Rare Dis. 2023 Jul 3;18(1):176.

6. Bodemer C, Soussand L, Sandrin A, Khatim A, Sauvestre A, Elarouci N, Jannot AS. French data on the epidemiology and expert healthcare network for epidermolysis bullosa. J Eur Acad Dermatol Venereol. 2023 May;37(5):e597-e599.

7. Soussand L, Kuchenbuch M, Messiaen C, Sandrin A, Jannot AS, Nabbout R. Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study. Orphanet Journal of Rare Diseases. 2022 Dec 9;17(1):430.

8. Jannot AS, Messiaen C, Khatim A, Pichon T, Sandrin A, BNDMR Infrastructure Team. The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease. Journal of the American Medical Informatics Association. 2022 Mar 1;29(3):553-8.

9. Kallali W, Messiaen C, Saïdi R, Lessim S, Viaud M, Dulon J, Nedelcu M, Samara D, Houang M, Donadille B, Courtillot C, de Filippo G, Carel JC, Christin-Maitre S, Touraine P, Netchine I, Polak M, Léger J. Age at diagnosis in patients with chronic congenital endocrine conditions: a regional cohort study from a reference center for rare diseases. Orphanet J Rare Dis. 2021 Nov 4;16(1):469.

10. Messiaen C, Racine C, Khatim A, Soussand L, Odent S, Lacombe D, Manouvrier S, Edery P, Sigaudy S, Geneviève D, Thauvin-Robinet C, Pasquier L, Petit F, Rossi M, Willems M, Attié-Bitach T, Roux-Levy PH, Demougeot L, Slama LB, Landais P; AnDDI-Rares network; Jannot AS, Binquet C, Sandrin A, Verloes A, Faivre L. 10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France. Orphanet J Rare Dis. 2021 Aug 4;16(1):345.

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