Swedish Dementia Registry (SveDem) (Sweden) **

Database Contact Data

Karin Westling
National coordinator,  SveDem
SWEDEN
Phone: +468123 897 83
Mobile phone: +46700 85 66 78
Email: svedem.karolinska@regionstockholm.se

Alternate Contact

Dorota Religa
Chair, SveDem
SWEDEN
Email: svedem.karolinska@regionstockholm.se

References of Studies Using/Describing Database

1: Mo M, Abzhandadze T, Hoang MT, Sacuiu S, Jurado PG, Pereira JB, Naia L, Kele J, Maioli S, Xu H, Eriksdotter M, Garcia-Ptacek S. Antidepressant use and cognitive decline in patients with dementia: a national cohort study. BMC Med. 2025 Feb 25;23(1):82.

2: Abzhandadze T, Hoang MT, Raaschou P, Norgren J, Mo M, Molnar C, Xu H, Kananen L, Åkerman M, Religa D, Eriksdotter M, Garcia-Ptacek S. Temporal trends in sex differences in dementia care-results from the Swedish registry for cognitive/dementia disorders, SveDem. Sci Rep. 2025 May 29;15(1):18890.

3: Petek B, Mo M, Xu H, Norgren J, Hoang MT, Villa-Lopez M, Häbel H, Kele J, Naia L, Maioli S, Pereira JB, Gregorič Kramberger M, Winblad B, Eriksdotter M, Carrero JJ, Garcia-Ptacek S. Statins, cholesterol and cognition at the time of Alzheimer's disease diagnosis: A cross-sectional study from the Swedish registry for cognitive/dementia disorders. J Alzheimers Dis Rep. 2025 Oct 3;9:25424823251385903.

4: Kårelind F, Johansson L, Zarit S, Wijk H, Bielsten T, Finkel D. Factors influencing time to support in young-onset dementia: survival analysis of data from the Swedish Dementia Registry (SveDem). Aging Ment Health. 2025 Jun;29(6):992-999.

5: Skillbäck TB, Jönsson L, Skoog I, Blennow K, Eriksdotter M, Zetterberg H, Kern S. Cerebrospinal Fluid Biomarkers for Alzheimer Disease Among Patients With Dementia. JAMA Neurol. 2025 Jun 1;82(6):580-588.

6: Grau-Jurado P, Mostafaei S, Xu H, Mo M, Petek B, Kalar I, Naia L, Kele J, Maioli S, Pereira JB, Eriksdotter M, Chatterjee S, Garcia-Ptacek S. Medications and cognitive decline in Alzheimer's disease: Cohort cluster analysis of 15,428 patients. J Alzheimers Dis. 2025 Feb;103(3):931-940.

7: Aye S, Frisell O, Zetterberg H, Skillbäck TB, Kern S, Eriksdotter M, Aho E, Xia X, Winblad B, Wimo A, Jönsson L. Costs of Care in Relation to Alzheimer's Disease Severity in Sweden: A National Registry-Based Cohort Study. Pharmacoeconomics. 2025 Feb;43(2):153-169.

8. External Causes of Death From Death Certificates in Patients With Dementia. Mo M, Xu H, Hoang MT, Jurado PG, Mostafaei S, Kåreholt I, Johnell K, Eriksdotter M, Garcia-Ptacek S. J Am Med Dir Assoc. 2023 Sep;24(9):1381-1388.

9. Hoang MT, Jurado PG, Abzhandadze T, Mostafaei S, Mo M, Åkerman M, Vestling K, Chen C, Xu H, Eriksdotter M, Garcia-Ptacek S. Effects of the COVID-19 Pandemic on the Number of New Dementia Diagnoses and the Quality of Dementia Diagnostics and Treatment. J Prev Alzheimers Dis. 2024;11(6):1703-1711.

10. Shahim B, Xu H, Haugaa K, Zetterberg H, Jurga J, Religa D, Eriksdotter M. Cholinesterase inhibitors are associated with reduced mortality in patients with Alzheimer's disease and previous myocardial infarction. Eur Heart J Cardiovasc Pharmacother. 2024 Feb 23;10(2):128-136.

Scandinavian Obesity Surgery Registry Norway (SOReg-N) (Norway) **

Database Contact Data

Willy Våge, Registrar 
Health Bergen HF
Haukeland University Hospital
PO Box 1400
5021 Bergen
NORWAY
Phone: +47 90 86 37 44
Email: villy.vage@helse-bergen.no

Alternate Contact

Email: soreg-norge@helse-bergen.no

References of Studies Using/Describing Database

1. Bruinsma FFE, Hurme S, Peterli R, Stenberg E, Nienhuijs SW, Grönroos S, Våge V, Bueter M, Ottosson J, Liem RSL, Salminen P. Validation of the Swiss-Finnish Bariatric Metabolic Outcome Score within a large prospective registry cohort. Br J Surg. 2025 May 31;112(6):znaf106.

2. Franken RJ, Lyyjynen HS, Nienhuijs SW, Våge V, van de Laar AW. Adding Evidence to an Evidence-Based Classification for Recurrent Weight Gain after Bariatric and Metabolic Surgery from a Norwegian National Registry. Obes Surg. 2024 Oct;34(10):3833-3839.

3. Lyyjynen HS, Andersen JR, Liem RSL, Mala T, Nienhuijs SW, Ottosson J, Sundbom M, Thorell A, Våge V. Surgical Aspects of Sleeve Gastrectomy Are Related to Weight Loss and Gastro-esophageal Reflux Symptoms. Obes Surg. 2024 Mar;34(3):902-910.

4. Richardsen AJ, Chahal-Kummen M, Kristinsson JA, Søvik TT, Eribe IEL, Mala T. Single anastomosis gastric bypass for morbid obesity. Tidsskr Nor Laegeforen. 2023 Nov 6;143(16). English, Norwegian.

5. Irtun Ø. Surgery for morbidly obese patients?. Tidsskrift for Den norske legeforening. 2023 Nov 6. Editorial.

6. Poelemeijer YQM, Liem RSL, Våge V, Mala T, Sundbom M, Ottosson J, Nienhuijs SW. Gastric Bypass Versus Sleeve Gastrectomy: Patient Selection and Short-term Outcome of 47,101 Primary Operations From the Swedish, Norwegian, and Dutch National Quality Registries. Ann Surg. 2020 Aug;272(2):326-333.

7. Poelemeijer YQM, Liem RSL, Våge V, Mala T, Sundbom M, Ottosson J, Nienhuijs SW. Perioperative Outcomes of Primary Bariatric Surgery in North-Western Europe: a Pooled Multinational Registry Analysis. Obes Surg. 2018 Dec;28(12):3916-3922.

For more publications, please contact the database personnel

Sep 23, 2025: New registry added from Sweden

We've hit a new milestone! B.R.I.D.G.E. TO DATA® is proud to announce the addition of its 520th database profile to the platform: Swedish Respiratory Failure Registry (Swedevox). Marking our 23rd profile from Sweden, this further expands our global reach for the research community. Swedevox has been collecting data on home oxygen therapy (LTOT) since 1986, on home ventilators (LTMV) since 1997, and on CPAP for sleep apnea since 2010.

Swedish Respiratory Failure Registry (Swedevox) (Sweden) **

Database Contact Data

Magnus Ekström (Register Holder)
Senior Consultant, Pulmonary Department, Blekinge Hospital, Karlskrona
Associate Professor and Senior Lecturer, Lund University
Email: pmekstrom@gmail.com

Alternate Contact

For more contacts, please visit https://www.ucr.uu.se/swedevox/contacts and reach out to the contact of interest.

References of Studies Using/Describing Database

1. Florén J, Israelsson-Skogsberg Å, Ekström M, Lindahl B, Markström A, Palm A. No socioeconomic disparities in the availability of personal care assistance: a population-based cohort analysis of children living with respiratory support. Int J Equity Health. 2025 May 19;24(1):141.

2. Sundh J, Ekström M. Conducting a registry-based randomised trial (REDOX) in chronic respiratory failure: experiences and advice. Eur Clin Respir J. 2025 May 15;12(1):2502237.

3. Florén J, Ekström M, Lindahl B, Markström A, Palm A, Israelsson-Skogsberg Å. Swedish national cohort of children living with long-term respiratory support (DISCOVERY-P): cohort profile. BMJ Open. 2025 Apr 14;15(4):e090241.

4. Palm A, Ekström M, Emilsson Ö, Ersson K, Ljunggren M, Sundh J, Grote L. Control of hypercapnia and mortality in home mechanical ventilation: the population-based DISCOVERY study. ERJ Open Res. 2024 Dec 9;10(6):00461-2024.

5. Skär L, Borg C, Emtner M, Ekström M. Thoughts on the end of life in patients with oxygen-dependent chronic obstructive pulmonary disease: A qualitative interview study. Nurs Open. 2023 Apr;10(4):2158-2164.

6. Bengtsson C, Grote L, Ljunggren M, Ekström M, Palm A. Nasal polyposis is a risk factor for nonadherence to CPAP treatment in sleep apnea: the population-based DISCOVERY study. J Clin Sleep Med. 2023 Mar 1;19(3):573-579.

7. Björklund F, Ekström M. Adverse Effects, Smoking, Alcohol Consumption, and Quality of Life during Long-Term Oxygen Therapy: A Nationwide Study. Ann Am Thorac Soc. 2022 Oct;19(10):1677-1686.

8. Sundh J, Palm A, Wahlberg J, Runold M, Ekström M. Impact of covid-19 on long-term oxygen therapy 2020: A nationwide study in Sweden. PLoS One. 2022 Apr 8;17(4):e0266367.

9. Genberg J, Davies JM, Ahmadi Z, Currow D, Johnson MJ, Tanash H, Bajwah S, Ekström M. Indications and patterns of use of benzodiazepines and opioids in severe interstitial lung disease: a population-based longitudinal study. ERJ Open Res. 2021 Feb 1;7(1):00716-2020.

10. Ekström M, Albrecht D, Andersson S, Grote L, Kärrsten Rundström B, Palm A, Theorell-Haglöw J, Wahlberg J, Midgren B. Validation of the Swedevox registry of continuous positive airway pressure, long-term mechanical ventilator and long-term oxygen therapy. ERJ Open Res. 2021 Jan 18;7(1):00340-2020. 

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