Sep 23, 2025: New registry added from Sweden

We've hit a new milestone! B.R.I.D.G.E. TO DATA® is proud to announce the addition of its 520th database profile to the platform: Swedish Respiratory Failure Registry (Swedevox). Marking our 23rd profile from Sweden, this further expands our global reach for the research community. Swedevox has been collecting data on home oxygen therapy (LTOT) since 1986, on home ventilators (LTMV) since 1997, and on CPAP for sleep apnea since 2010.

Swedish Respiratory Failure Registry (Swedevox) (Sweden) **

Database Contact Data

Magnus Ekström (Register Holder)
Senior Consultant, Pulmonary Department, Blekinge Hospital, Karlskrona
Associate Professor and Senior Lecturer, Lund University
Email: pmekstrom@gmail.com

Alternate Contact

For more contacts, please visit https://www.ucr.uu.se/swedevox/contacts and reach out to the contact of interest.

References of Studies Using/Describing Database

1. Florén J, Israelsson-Skogsberg Å, Ekström M, Lindahl B, Markström A, Palm A. No socioeconomic disparities in the availability of personal care assistance: a population-based cohort analysis of children living with respiratory support. Int J Equity Health. 2025 May 19;24(1):141.

2. Sundh J, Ekström M. Conducting a registry-based randomised trial (REDOX) in chronic respiratory failure: experiences and advice. Eur Clin Respir J. 2025 May 15;12(1):2502237.

3. Florén J, Ekström M, Lindahl B, Markström A, Palm A, Israelsson-Skogsberg Å. Swedish national cohort of children living with long-term respiratory support (DISCOVERY-P): cohort profile. BMJ Open. 2025 Apr 14;15(4):e090241.

4. Palm A, Ekström M, Emilsson Ö, Ersson K, Ljunggren M, Sundh J, Grote L. Control of hypercapnia and mortality in home mechanical ventilation: the population-based DISCOVERY study. ERJ Open Res. 2024 Dec 9;10(6):00461-2024.

5. Skär L, Borg C, Emtner M, Ekström M. Thoughts on the end of life in patients with oxygen-dependent chronic obstructive pulmonary disease: A qualitative interview study. Nurs Open. 2023 Apr;10(4):2158-2164.

6. Bengtsson C, Grote L, Ljunggren M, Ekström M, Palm A. Nasal polyposis is a risk factor for nonadherence to CPAP treatment in sleep apnea: the population-based DISCOVERY study. J Clin Sleep Med. 2023 Mar 1;19(3):573-579.

7. Björklund F, Ekström M. Adverse Effects, Smoking, Alcohol Consumption, and Quality of Life during Long-Term Oxygen Therapy: A Nationwide Study. Ann Am Thorac Soc. 2022 Oct;19(10):1677-1686.

8. Sundh J, Palm A, Wahlberg J, Runold M, Ekström M. Impact of covid-19 on long-term oxygen therapy 2020: A nationwide study in Sweden. PLoS One. 2022 Apr 8;17(4):e0266367.

9. Genberg J, Davies JM, Ahmadi Z, Currow D, Johnson MJ, Tanash H, Bajwah S, Ekström M. Indications and patterns of use of benzodiazepines and opioids in severe interstitial lung disease: a population-based longitudinal study. ERJ Open Res. 2021 Feb 1;7(1):00716-2020.

10. Ekström M, Albrecht D, Andersson S, Grote L, Kärrsten Rundström B, Palm A, Theorell-Haglöw J, Wahlberg J, Midgren B. Validation of the Swedevox registry of continuous positive airway pressure, long-term mechanical ventilator and long-term oxygen therapy. ERJ Open Res. 2021 Jan 18;7(1):00340-2020. 

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