OPCRDA collects de-identified Electronic Medical Records (EMR) patient data from GP practices and respiratory and allergy specialist practices across Australia. Data include information on prescriptions, medical devices, procedures, clinical measurements, healthcare provider details, biomarker data, patient-reported outcomes, lifestyle factors, and sociodemographic information.
Optimum Patient Care Australia Pty Ltd (OPCA)
320 Adelaide Street
Brisbane City, Level 10, Office 1
AUSTRALIA
Email: info@optimumpatientcare.org.au
Phone: (+61) 405 764 842
Fax: (+61) 7 3036 6729
Complete the Contact Us form at
https://www.optimumpatientcare.org.au/opcrda
1. Price D, Jenkins C, Hancock K, Vella R, Heraud F, Le Cheng P, Murray R, Beekman M, Bosnic-Anticevich S, Botini F, Carter V, Catanzariti A, Doan J, Fletton K, Kichkin A, Le T, Le Lievre C, Lau CM, Novic D, Pakos J, Ranasinghe K, Roussos A, Samuel-King J, Sharma A, Stewart D, Willet B, Bateman E; OPCA Improving Asthma Outcomes in Australia Research Group. The Association Between Short-Acting β2-Agonist Over-Prescription, and Patient-Reported Acquisition and Use on Asthma Control and Exacerbations: Data from Australia. Adv Ther. 2024 Mar;41(3):1262-1283.
2. Hancock KL, Bosnic-Anticevich S, Blakey JD, Hew M, Chung LP, Cvetkovski B, Claxton S, Del Fante P, Denton E, Doan J, Ranasinghe K, Morgan L, Sharma A, Smith PK, Stewart D, Thompson PJ, Wiseman R, Upham JW, Yan KY, Carter V, Dhillon K, Heraud F, Le T, Vella R, Price D; OPCA Improving Asthma outcomes in Australia Research Group. Characterisation of the Australian Adult Population Living with Asthma: Severe - Exacerbation Frequency, Long-Term OCS Use and Adverse Effects. Pragmat Obs Res. 2022 Jul 5;13:43-58.
3. Bateman ED, Price DB, Wang HC, Khattab A, Schonffeldt P, Catanzariti A, van der Valk RJP, Beekman MJHI. Short-acting β2-agonist prescriptions are associated with poor clinical outcomes of asthma: the multi-country, cross-sectional SABINA III study. Eur Respir J. 2022 May 5;59(5):2101402.
4. Evans A, Soremekun S, Stanley B, Appiagyei F, Couper A, Taylor O, Le T, Pullen R, Jones S, Carter V, Price C. Strategies that promote sustainability in quality improvement activities for chronic disease management in healthcare settings: a practical perspective. Quality in Primary Care. 2020;28(6), 55–60.
The Optimum Patient Care Research Database (OPCRD) provides de-identified data from ~1,100 general practices and more than 25 million patients in the UK. The de-identified electronic medical records, patient questionnaires and clinical review data provided by OPCRD offer an essential source of real-world data to promote evidence-based research and quality improvement.
OPCRD
5 Coles Lane
Oakington, CB24 3BA
UNITED KINGDOM
Email: info@optimumpatientcare.org
Phone: (+44) 1223 967855
You may also contact OPCRD via their contact form at https://opcrd.optimumpatientcare.org/contact-us
1. Kaplan A, Heatley H, Townend J, Skinner D, Carter V, Hubbard R, Lee TT, Koh MS, Price D. The Real-World Impact of Glucagon-Like Peptide 1 Receptor Agonists on Asthma Control in People with High-Risk Asthma and Obesity. Adv Ther. 2025 Jun;42(6):2950-2956.
2. Sadatsafavi M, Tran TN, Scelo G, Tsai MJ, Busby J, Emmanuel B, Heaney LG, Jenkins C, Hoyte F, Canonica GW, Katial R, Heffler E, Wang E, Puggioni F, Wechsler ME, Ardusso LRF, Máspero J, Sivori M, Emmas C, Menzies-Gow AN, Stjepanovic N, Bosnic-Anticevich SZ, Cochrane B, Denton E, Gibson PG, Hew M, Middleton PG, Peters MJ, Brusselle GG, Louis R, Schleich F, Christoff GC, Popov TA, Bergeron C, Bhutani M, Chapman KR, Côté A, Couillard S, Dorscheid DR, Jiménez-Maldonado L, Solarte I, Torres-Duque CA, Hansen S, Porsbjerg CM, Ulrik CS, Altraja A, Bourdin A, Exarchos KP, Gogali A, Kostikas K, Makris MP, Papaioannou AI, Mitchell PD, Iwanaga T, Nagano T, Tohda Y, Al-Ahmad MS, Larenas-Linnemann D, Aarli BB, Kuna P, Chaves Loureiro C, Al-Lehebi R, Bulkhi AA, Chen W, Juang YR, Koh MS, Liu A, Rhee CK, Cosio BG, Perez-de-Llano L, Perng DW, Sheu CC, Wang HC, Mahboub B, Salameh L, Jackson DJ, Patel PH, Pfeffer PE, Lugogo N, Pleasants RA, Beastall A, Bulathsinhala L, Carter V, Eleangovan N, Fletton K, Townend J, Murray RB, Price DB. Prevention of Cardiovascular and Other Systemic Adverse Outcomes in Patients with Asthma Treated with Biologics. Am J Respir Crit Care Med. 2025 May 18. Epub ahead of print.
3. Chen W, Tran TN, Townend J, Christoff GC, Tsai MJ, Altraja A, Cochrane B, Cosio BG, Sivori M, Murray RB, Makris MP, Scelo G, Bulathsinhala L, Ardusso LRF, Franchi ME, Máspero J, Saldarini F, Stok AM, Tomaszuk AG, Yañez A, Emmanuel B, Emmas C, Kostikas K, Menzies-Gow AN, Stjepanovic N, Bosnic-Anticevich SZ, Denton E, Gibson PG, Hew M, Jenkins C, Middleton PG, Peters MJ, Upham JW, Brusselle GG, Louis R, Schleich F, Pitrez PM, Popov TA, Bergeron C, Bhutani M, Chapman KR, Côté A, Couillard S, Dorscheid DR, Lougheed MD, Sadatsafavi M, Celis-Preciado CA, Jiménez-Maldonado L, Rodríguez-Cáceres B, Cano Rosales DJ, Solarte I, Torres-Duque CA, Hansen S, Porsbjerg CM, Ulrik CS, Bourdin A, Bakakos P, Exarchos KP, Gogali A, Ladias AA, Papadopoulos NG, Papaioannou AI, Costello RW, Cushen B, Mitchell PD, Canonica GW, Heffler E, Puggioni F, Iwanaga T, Nagano T, Tohda Y, Al-Ahmad MS, Larenas-Linnemann D, Aarli BB, Lehmann S, Kuna P, Ferreira JA, Fonseca JA, Loureiro CC, Al-Lehebi R, Bulkhi AA, Juang YR, Koh MS, Liu A, Rhee CK, Perez-de-Llano L, Fu PK, Perng DW, Sheu CC, Wang HC, Mahboub B, Salameh L, Busby J, Heaney LG, Jackson DJ, Patel PH, Pfeffer PE, Hoyte F, Katial RK, Lugogo N, Pleasants RA, Wang E, Wechsler ME, Beastall A, Carter V, Eleangovan N, Fletton K, Price DB; ISAR SOLAR I Working Group. Impact of Biologics Initiation on Oral Corticosteroid Use in the International Severe Asthma Registry and the Optimum Patient Care Research Database: A Pooled Analysis of Real-World Data. J Allergy Clin Immunol Pract. 2025 Apr 26:S2213-2198(25)00390-3. doi: 10.1016/j.jaip.2025.04.032. Epub ahead of print.
4. Gonnelli F, Eleangovan N, Smith U, Heatley H, Navarantam V, Corte TJ, Price DB, Carter V, Bonifazi M, Fermoyle CC, Hubbard R. Incidence and survival of interstitial lung diseases in the UK in 2010-2019. ERJ Open Res. 2025 Mar 3;11(2):00823-2024.
5. Lynam A, Curtis C, Stanley B, Heatley H, Worthington C, Roberts EJ, Price C, Carter V, Dennis J, McGovern A, Price D. Data-Resource Profile: United Kingdom Optimum Patient Care Research Database. Pragmat Obs Res. 2023 Apr 27;14:39-49.
6. Loewenthal L, Busby J, McDowell R, Brown T, Burhan H, Chaudhuri R, Dennison P, Dodd JW, Doe S, Faruqi S, Gore R, Idris E, Jackson DJ, Patel M, Pantin T, Pavord I, Pfeffer PE, Price DB, Rupani H, Siddiqui S, Heaney LG, Menzies-Gow A; UK Severe Asthma Registry. Impact of sex on severe asthma: a cross-sectional retrospective analysis of UK primary and specialist care. Thorax. 2024 Apr 15;79(5):403-411.
7. Tran TN, Heatley H, Rowell J, Chan JSK, Bourdin A, Chapaneri J, Emmanuel B, Gibson D, Jackson DJ, Menzies-Gow AN, Murray R, Skinner D, Price DB. Longitudinal patterns of intermittent oral corticosteroid therapy for asthma in the United Kingdom. J Allergy Clin Immunol Glob. 2024 Feb 2;3(2):100225.
8. Horne EMF, McLean S, Alsallakh MA, Davies GA, Price DB, Sheikh A, Tsanas A. Defining clinical subtypes of adult asthma using electronic health records: Analysis of a large UK primary care database with external validation. Int J Med Inform. 2023 Feb;170:104942.
9. Ryan D, Heatley H, Heaney LG, Jackson DJ, Pfeffer PE, Busby J, Menzies-Gow AN, Jones R, Tran TN, Al-Ahmad M, Backer V, Belhassen M, Bosnic-Anticevich S, Bourdin A, Bulathsinhala L, Carter V, Chaudhry I, Eleangovan N, FitzGerald JM, Gibson PG, Hosseini N, Kaplan A, Murray RB, Rhee CK, Van Ganse E, Price DB. Potential Severe Asthma Hidden in UK Primary Care. J Allergy Clin Immunol Pract. 2021 Apr;9(4):1612-1623.e9. doi: 10.1016/j.jaip.2020.11.053. Epub 2020 Dec 9. Erratum in: J Allergy Clin Immunol Pract. 2021 Nov;9(11):4182.
10. Magnussen H, Lucas S, Lapperre T, Quint JK, Dandurand RJ, Roche N, Papi A, Price D, Miravitlles M; Respiratory Effectiveness Group (REG). Withdrawal of inhaled corticosteroids versus continuation of triple therapy in patients with COPD in real life: observational comparative effectiveness study. Respir Res. 2021 Jan 21;22(1):25.
The National Trauma Registry (NTR) of Norway is a robust, population-based medical quality registry capturing detailed metadata on all seriously injured patients treated by specialist health services nationwide. With over 100 data fields, the NTR enables quality improvement in trauma care by tracking patient demographics, injury characteristics, and treatment outcomes from prehospital to rehabilitation phases.
1. Elisabeth Jeppesen
Registry Leader
Email: ntr@traumatologi.no
2. In order to apply for access to data, please send an e-mail to olav.roise@medisin.uio.no.
National Center for Traumatology
Oslo University Hospital
Ullevål, Kirkeveien
166 0450 Oslo
NORWAY
Email: post@traumatologi.no
1. Nilsbakken IMW, Wisborg T, Sollid S, Jeppesen E. EMCC dispatch priority for trauma patients in Norway: a retrospective cohort study. Scand J Trauma Resusc Emerg Med. 2025 May 12;33(1):83.
2. Ringdal KG, Holm KT, Røise O. The Norwegian national trauma registry: development process and essential data insights. Scand J Trauma Resusc Emerg Med. 2025 May 1;33(1):78.
3. Aalberg I, Nordseth T, Klepstad P, Rosseland LA, Uleberg O. Incidence, severity and changes of abnormal vital signs in trauma patients: A national population-based analysis. Injury. 2025 Jan;56(1):111884.
4. Bjørke G, Dalen I, Thorsen K. Accuracy of the Norwegian trauma protocol. An observational population study from South-Western Norway. Injury. 2025 Jan;56(1):112063.
5. Sødal HF, Nordseth T, Rasmussen AJO, Rosseland LA, Stenehjem JS, Gran JM, Helseth E, Taubøll E. Risk of epilepsy after traumatic brain injury: a nationwide Norwegian matched cohort study. Front Neurol. 2024 Jun 5;15:1411692.
6. Nilsbakken I, Wisborg T, Sollid S, Jeppesen E. Functional outcome and associations with prehospital time and urban-remote disparities in trauma: A Norwegian national population-based study. Injury. 2024 Jun;55(6):111459.
7. Naberezhneva N, Uleberg O, Dahlhaug M, Giil-Jensen V, Ringdal KG, Røise O. Excellent agreement of Norwegian trauma registry data compared to corresponding data in electronic patient records. Scand J Trauma Resusc Emerg Med. 2023 Sep 26;31(1):50.
8. Dehli T, Wisborg T, Johnsen LG, Brattebø G, Eken T. Mortality after hospital admission for trauma in Norway: A retrospective observational national cohort study. Injury. 2023 Sep;54(9):110852.
9. Cuevas-Østrem M, Thorsen K, Wisborg T, Røise O, Helseth E, Jeppesen E. Care pathways and factors associated with interhospital transfer to neurotrauma centers for patients with isolated moderate-to-severe traumatic brain injury: a population-based study from the Norwegian trauma registry. Scand J Trauma Resusc Emerg Med. 2023 Jun 26;31(1):34.
10. Nilsbakken IMW, Sollid S, Wisborg T, Jeppesen E. Assessing Trauma Management in Urban and Rural Populations in Norway: A National Register-Based Research Protocol. JMIR Res Protoc. 2022 Jun 17;11(6):e30656.
