Norwegian Cause of Death Registry (Norway)

Database Contact Data

Stephanie Jebsen Fagerås 
Product Owner NCoDR
Department of Health Registers
Norwegian Institute of Public Health
Email: StephanieJebsen.Fageras@fhi.no

Alternate Contact

You can email datatilgang@fhi.no for enquiries about health registries at NIPH; they will be directed to the correct person depending on the registry and topic

References of Studies Using/Describing Database

1. Alm-Kruse K, Tjelmeland I, Reiner A, Kvåle R, Kramer-Johansen J. Use of healthcare services before and after out-of-hospital cardiac arrest. Resuscitation. 2023 Jun;187:109805.

2. Falch CM, Olarescu NC, Bollerslev J, Dekkers OM, Heck A. Trends in incidence and mortality risk for acromegaly in Norway: a cohort study. Endocrine. 2023 Apr;80(1):152-159.

3. Basnet P, Skjaerven R, Sørbye LM, Morken NH, Klungsøyr K, Singh A, Mannseth J, Harmon QE, Kvalvik LG. Long-term cardiovascular mortality in women with twin pregnancies by lifetime reproductive history. Paediatr Perinat Epidemiol. 2023 Jan;37(1):19-27.

4. Hamina A, Odsbu I, Borchgrevink PC, Chen LC, Clausen T, Espnes KA, Gjesdal K, Handal M, Hartikainen S, Hjellvik V, Holter MTS, Høibø T, Kurita GP, Langaas HC, Lid TG, Nøst TH, Sjøgren P, Skurtveit S; POINT study group. Cohort Description: Preventing an Opioid Epidemic in Norway - Focusing on Treatment of Chronic Pain (POINT) - A National Registry-Based Study. Clin Epidemiol. 2022 Dec 8;14:1477-1486.

5. Cowdery SP, Bjerkeset O, Sund ER, Mohebbi M, Pasco JA, Berk M, Williams LJ. Depressive symptomology and cancer incidence in men and women: Longitudinal evidence from the HUNT study. J Affect Disord. 2022 Nov 1;316:1-9.

6. Ellingsen CL, Alfsen GC, Ebbing M, Pedersen AG, Sulo G, Vollset SE, Braut GS. Garbage codes in the Norwegian Cause of Death Registry 1996-2019. BMC Public Health. 2022 Jul 7;22(1):1301.

7. Bukten A, Skjærvø I, Stavseth MR. The association of prison security level with mortality after release from prison: a retrospective national cohort study (2000-16). Lancet Public Health. 2022 Jul;7(7):e583-e592.

8. Pretorius M, Lundstam K, Heck A, Fagerland MW, Godang K, Mollerup C, Fougner SL, Pernow Y, Aas T, Hessman O, Rosén T, Nordenström J, Jansson S, Hellström M, Bollerslev J. Mortality and Morbidity in Mild Primary Hyperparathyroidism: Results From a 10-Year Prospective Randomized Controlled Trial of Parathyroidectomy Versus Observation. Ann Intern Med. 2022 Jun;175(6):812-819.

9. Stene-Larsen K, Raknes G, Engdahl B, Qin P, Mehlum L, Strøm MS, Reneflot A. Suicide trends in Norway during the first year of the Covid-19 pandemic. A register-based cohort study. Eur Psychiatry. 2022 Apr 19;65(1):1-24.

10. Pethrus CM, Vedtofte MS, Neovius K, Borud EK, Neovius M. Pooled analysis of all-cause and cause-specific mortality among Nordic military veterans following international deployment. BMJ Open. 2022 Apr 12;12(4):e052313.

May 30, 2023: Our 5th healthcare database profile from Sweden

Part of Riks-Stroke (RS), the Swedish Stroke Register established in 1994, a national register for acute stroke care; all Swedish hospitals admitting acute stroke and TIA (Transient Ischemic Attacks) patients participate. The Transient Ischemic Attacks (TIA) Registry contains more than 100,000 total TIA events recorded. This makes RS one of the world’s largest TIA registers.

Transient Ischemic Attacks (TIA) Registry (Sweden)

Database Contact Data

Mia von Euler
Professor of Neurology 
Örebro University
SWEDEN
Email: mia.von-euler@oru.se

Alternate Contact

Marie Eriksson
Professor 
Umeå University
SWEDEN
Email: marie.eriksson@umu.se

References of Studies Using/Describing Database

1. Ullberg T, Von Euler M, Wester P, Arnberg F, Norrving B, Andersson T, Wassélius J. Endovascular thrombectomy for anterior circulation stroke beyond 6 hours of onset in Sweden 2015 to 2020: rates and outcomes in a nationwide register-based study. Journal of neurointerventional surgery. 2023 Apr 1;15(4):330-5.

2. Mellander H, Bengtsson P, Fransson V, Ramgren B, Undrén P, Drake M, Ydström K, Lätt J, Hilal A, Wassélius J, Ullberg T. Virtual monoenergetic images by spectral detector computed tomography may improve image quality and diagnostic ability for ischemic lesions in acute ischemic stroke. Acta Radiologica. 2023 Apr;64(4):1631-40.

3. Hillal A, Sultani G, Ramgren B, Norrving B, Wassélius J, Ullberg T. Accuracy of automated intracerebral hemorrhage volume measurement on non-contrast computed tomography: a Swedish Stroke Register cohort study. Neuroradiology. 2023 Mar;65(3):479-88.

4. Drescher C, Buchwald F, Ullberg T, Pihlsgård M, Norrving B, Petersson J. Epidemiology of First and Recurrent Ischemic Stroke in Sweden 2010–2019: A Riksstroke Study. Neuroepidemiology. 2023 Feb 17;56(6):433-42.

5. Broberg E, Hjalmarsson C, Setalani M, Milenkoski R, Andersson B. Sex Differences in Treatment and Prognosis of Acute Intracerebral Hemorrhage. Journal of Women's Health. 2023 Jan 1;32(1):102-8.

6. Apostolaki‐Hansson T, Ullberg T, Norrving B, Petersson J. Patient factors associated with receiving reversal therapy in oral anticoagulant‐related intracerebral hemorrhage. Acta Neurologica Scandinavica. 2022 Nov;146(5):590-7.

7. Oldgren J, Åsberg S, Hijazi Z, Wester P, Bertilsson M, Norrving B, National TIMING Collaborators. Early versus delayed non–vitamin k antagonist oral anticoagulant therapy after acute ischemic stroke in atrial fibrillation (TIMING): a registry-based randomized controlled noninferiority study. Circulation. 2022 Oct 4;146(14):1056-66.

8. Rydell M, Wester P, Laska AC, Rudberg AS. Maintained acute stroke admission during the first wave COVID-19 pandemic in Sweden, a register-based study. Journal of Stroke and Cerebrovascular Diseases. 2022 Oct 1;31(10):106686.

9. Yu AY, Bravata DM, Norrving B, Reeves MJ, Liu L, Kilkenny MF. Measuring Stroke Quality: Methodological Considerations in Selecting, Defining, and Analyzing Quality Measures. Stroke. 2022 Oct;53(10):3214-21.

10. Magnusson C, Herlitz J, Sunnerhagen KS, Hansson PO, Andersson JO, Jood K. Prehospital recognition of stroke is associated with a lower risk of death. Acta Neurologica Scandinavica. 2022 Aug;146(2):126-36.

May 24, 2023: Compare SEER’s Consumer Assessment of Healthcare Providers and Systems (CAHPS) with other healthcare databases.

SEER-CAHPS is a resource for quality of cancer care research based on a linkage between the NCI's Surveillance, Epidemiology and End Results (SEER) cancer registry data and the Centers for Medicare & Medicaid Services' (CMS) Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS®) patient surveys. The SEER Program works to provide information on cancer statistics in an effort to reduce the burden of cancer among the U.S. population.

Surveillance, Epidemiology, and End Results – Consumer Assessment of Healthcare Providers and Systems (SEER-CAHPS) (USA)

Database Contact Data

For more information or additional guidance on SEER-CAHPS, please contact the SEER-CAHPS staff at NCISEERCAHPS@mail.nih.gov.

Alternate Contact

You may also contact the SEER-CAHPS staff by completing this contact form at https://healthcaredelivery.cancer.gov/seer-cahps/contact.html

References of Studies Using/Describing Database

1. Pandit AA, Patil NN, Mostafa M, Kamel M, Halpern MT, Li C. Rural-Urban Disparities in Patient Care Experiences among Prostate Cancer Survivors: A SEER-CAHPS Study. Cancers (Basel). 2023 Mar 23;15(7):1939.

2. Arevalo M, Pickering TA, Vernon SW, Fujimoto K, Peskin MF, Farias AJ. Do breast cancer survivors with a recent history of clinical depression report worse experiences with care? A retrospective cohort study using SEER-CAHPS data. Cancer Med. 2023 Jan;12(2):1949-1960.

3. Pandit AA, Gressler LE, Halpern MT, Kamel M, Payakachat N, Li C. Racial/Ethnic Disparities in Patient Care Experiences among Prostate Cancer Survivors: A SEER-CAHPS Study. Curr Oncol. 2022 Nov 1;29(11):8357-8373.

4. Wardrop RC, Cass AL, Quinn SA, Wercholuk AN, Parikh AA, Snyder RA. Racial and ethnic differences in patient ratings of colorectal and non-small-cell lung cancer care: A SEER-CAHPS study. Cancer Causes Control. 2022 Sep;33(9):1125-1133. 

5. Navarro S, Hu X, Mejia A, Ochoa CY, Pickering TA, Ballas L, Farias AJ. Racial/ethnic disparities in patient experiences with care and Gleason score at diagnosis of prostate cancer: a SEER-CAHPS study. Cancer Causes Control. 2022 Apr;33(4):601-612. 

6. DiMartino LD, Kirschner J, Jackson GL, Mollica MA, Lines LM. Are care experiences associated with survival among cancer patients? An analysis of the SEER-CAHPS data resource. Cancer Causes Control. 2021 Sep;32(9):977-987.

7. Mohan CS, Rotter JS, Tan HJ, Kent E, Bjurlin MA, Basch E, Samuel C, Nielsen M, Smith AB. The association between patient experience and healthcare outcomes using SEER-CAHPS patient experience and outcomes among cancer survivors. J Geriatr Oncol. 2021 May;12(4):623-631.

8. Mollica MA, Buckenmaier SS, Halpern MT, McNeel TS, Weaver SJ, Doose M, Kent EE. Perceptions of care coordination among older adult cancer survivors: A SEER-CAHPS study. J Geriatr Oncol. 2021 Apr;12(3):446-452. 

9. Farias AJ, Toledo G, Ochoa CY, Hamilton AS. Racial/Ethnic Disparities in Patient Experiences With Health Care in Association With Earlier Stage at Colorectal Cancer Diagnosis: Findings From the SEER-CAHPS Data. Med Care. 2021 Apr 1;59(4):295-303.

10. Lines LM, Cohen J, Kirschner J, Halpern MT, Kent EE, Mollica MA, Smith AW. Random survival forests using linked data to measure illness burden among individuals before or after a cancer diagnosis: Development and internal validation of the SEER-CAHPS illness burden index. Int J Med Inform. 2021 Jan;145:104305. 

May 10, 2023: B.R.I.D.G.E. TO DATA services for your database-related projects

In addition to our online compendium of healthcare database profiles, the B.R.I.D.G.E. TO DATA® team also provides assistance for your database-related projects. Whether it's conducting comprehensive database searches, identifying data sources, communicating with data vendors, or developing a customized searchable database repository, our team is ready to help.

Subscribe to