The Swedish National Parkinson's Disease Patient Registry (PARKreg) is a national quality registry that aims to contribute to Swedish Parkinson's care by spreading new knowledge through research and education. Established in 2010, the register currently covers approximately 15,681 people with Parkinson's (PwP), out of whom 10,735 are still alive and residing in Sweden (of an estimated total of 22,000 PwP).
Linnéa Edman-Persson
Forskningssjuksköterska
Koordinator Parkinsonregister
Skånes Universitetssjukhus
Forskningsenhet Neurologi
221 85 Lund
SWEDEN
Email: Linnea.Edman-Persson@skane.se
Phone: +46 175501
Sven Pålhagen
Email: sven.palhagen@karolinska.se
Per Odin
Email: per.odin@med.lu.se
Per Svenningsson
Email: per.svenningsson@karolinska.se
1. Wolfschlag M, Cedergren Weber G, Timpka J, Weintraub D, Odin P, Håkansson A. Recognition, management, and patient perspectives of impulsive-compulsive disorders in Parkinson's disease. J Parkinsons Dis. 2025;15(3):585-594.
2. Hjalte F, Gustafsson A, Samuelsson J, Bergquist F, Johansson A, Odin P. Health-Related Quality of Life in Relation to the 5-2-1 Criteria in Parkinson's Disease in Sweden. Mov Disord Clin Pract. 2025;12(10):1511-1519.
3. Gustafsson A, Hjalte F, Norlin J, Odin P, Hagell P. The association between non-motor symptoms and cost in Parkinson's disease. J Neurol. 2025;272(4):297.
4. Öthman M, Bergquist F, Odin P, Scharfenort M, Johansson A, Markaki I, Svenningsson P, Dizdar N, Nyholm D. Levodopa-entacapone-carbidopa intestinal gel: Data from the Swedish national registry for Parkinson's disease. Eur J Neurol. 2025;32(1):e16582.
5. Janz C, Timpka J, Rosqvist K, Paul G, Storch A, Odin P. Non-Motor Symptom Management: Insights into Adherence to Treatment Guidelines in Parkinson's Disease Patients. J Parkinsons Dis. 2024;14(2):297-312.
6. Löhle M, Timpka J, Bremer A, Khodakarami H, Gandor F, Horne M, Ebersbach G, Odin P, Storch A. Application of single wrist-wearable accelerometry for objective motor diary assessment in fluctuating Parkinson's disease. NPJ Digit Med. 2023;6(1):194.
7. Rosqvist K, Odin P. Compliance with National and International Guidelines in the Treatment of Nonmotor Symptoms in Late-Stage Parkinson's Disease. Parkinsons Dis. 2023;2023:6667339.
8. von Below D, Wallerstedt SM, Bergquist F. Validation of the Swedish Patient-Reported Outcomes in Parkinson's Disease Scale in Outpatients. Mov Disord. 2023;38(9):1668-1678.
9. Norlin JM, Kellerborg K, Persson U, Åström DO, Hagell P, Martinez-Martin P, Odin P. Clinical Impression of Severity Index for Parkinson's Disease and Its Association to Health-Related Quality of Life. Mov Disord Clin Pract. 2023;10(3):392-398.
10. Kellerborg K, Norlin JM, Odin P. The Relationship between PDQ-8 and Costs in Parkinson's Disease-A Swedish Register-Based Study. Mov Disord Clin Pract. 2022;10(2):231-237.
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