Sample Set

Coordinating Country:
Austria
Region:

Austria

Database Type:
Registry, Birth defect registry

The Austrian Epidermolysis Bullosa Registry is a collection of demographic data of patients that were treated on site. It includes mutation data since 2017; however, no clinical data on disease progression are currently collected.  

Last Update:
January 8, 2024
Coordinating Country:
United States
Region:

New York Metropolitan Area

Database Type:
Registry

The Northwell Wound Registry has a total of 15,915 patients with 203,145 discrete wounds. Tissue Analytics wound tracking is done since September 2020.

Northwell has the following data from their primary wound care center:
Clinic Data…

Last Update:
February 26, 2024
Coordinating Country:
Japan
Region:

Sampled from all regions of Japan

Database Type:
Other

PatientsMap is a longitudinal, cross-sectional physician-survey database capturing the patient population size of 1,000 conditions in major countries including Japan, US, and China.

Target conditions:
One thousand conditions ranging from…

Last Update:
March 20, 2024
Coordinating Country:
Colombia
Region:

Colombia

Database Type:
Longitudinal Population Database

SISPRO (Sistema Integrado de Información de la Protección Social - Integrated Social Protection Information System) comprises:
- Administrative registries,
- Population and Special population censuses,
- Surveys, and
- Geographical…

Last Update:
January 24, 2024
Coordinating Country:
Australia
Region:

Victoria

Database Type:
Tissue/Blood and Genomic/Pharmacogenetic Database, Biobank, Disease-based

The Victorian Cancer Biobank (VCB) is operated by a consortium that collects and distributes tissue samples to support cancer research in Victoria, Australia and throughout the world with the aim of delivering better clinical outcomes to people…

Last Update:
March 19, 2024