With data starting from 1999 and around 500,000 cancer patients being added each year, the population-based cancer registries in each German federal state transfer data to the German Centre for Cancer Registry Data (ZfKD). ZfKD estimates national cancer incidence, prevalence and survival rates after assessing the completeness of the data recorded in the individual registries. The basic method is that the data are first checked for completeness of incidence and of vital status.
Klaus Kraywinkel, MD, MSc (Epidemiology)
Centre for Cancer Registry Data at the Robert Koch-Institute
Nina Buttmann-Schweiger, MD, MSc (Epidemiology)
Centre for Cancer Registry Data at the Robert Koch-Institute
1. Bedir A, Abera SF, Efremov L, Hassan L, Vordermark D, Medenwald D. Socioeconomic disparities in head and neck cancer survival in Germany: A causal mediation analysis using population-based cancer registry data. J Cancer Res Clin Oncol. 2021 Feb 11. doi: 10.1007/s00432-021-03537-2. Epub ahead of print.
2. Böthig R, Tiburtius C, Fiebag K, Kowald B, Hirschfeld S, Thietje R, Kurze I, Schöps W, Böhme H, Kaufmann A, Zellner M. Traumatic spinal cord injury confers bladder cancer risk to patients managed without permanent urinary catheterization: Lessons from a comparison of clinical data with the national database. World Journal of Urology. 2020 Nov;38(11):2827-34.
3. Jansen L, Holleczek B, Kraywinkel K, Weberpals J, Schröder CC, Eberle A, Emrich K, Kajüter H, Katalinic A, Kieschke J, Nennecke A, Sirri E, Heil J, Schneeweiss A, Brenner H. Divergent Patterns and Trends in Breast Cancer Incidence, Mortality and Survival Among Older Women in Germany and the United States. Cancers (Basel). 2020 Aug 26;12(9):2419.
4. Hübner J, Katalinic A, Waldmann A, Kraywinkel K. Long-term Incidence and Mortality Trends for Breast Cancer in Germany. Geburtshilfe Frauenheilkd. 2020 Jun;80(6):611-618.
5. Schulz GB, Grimm T, Buchner A, Jokisch F, Kretschmer A, Stief CG, Knüchel R, Kraywinkel K, Karl A. Bladder Cancer Stage Development, 2004-2014 in Europe Compared With the United States: Analysis of European Population-based Cancer Registries, the United States SEER Database, and a Large Tertiary Institutional Cohort. Clin Genitourin Cancer. 2020 Jun;18(3):162-170.e4.
6. Arndt V, Holleczek B, Kajüter H, Luttmann S, Nennecke A, Zeissig SR, Kraywinkel K, Katalinic A. Data from Population-based Cancer Registration for Secondary Data Analysis: Methodological Challenges and Perspectives. Gesundheitswesen. 2020 Mar;82(S 01):S62-S71. English.
7. Oppelt KA, Luttmann S, Kraywinkel K, Haug U. Incidence of advanced colorectal cancer in Germany: comparing claims data and cancer registry data. BMC Med Res Methodol. 2019 Jul 8;19(1):142.
8. Strauss A, Uhlig J, Lotz J, Trojan L, Uhlig A. Tumor laterality in renal cancer as a predictor of survival in large patient cohorts: A STROBE compliant study. Medicine (Baltimore). 2019 Apr;98(17):e15346.
9. Walter D, Ferstl P, Waidmann O, Trojan J, Hartmann S, Schnitzbauer AA, Zeuzem S, Kraywinkel K. Cholangiocarcinoma in Germany: Epidemiologic trends and impact of misclassification. Liver Int. 2019 Feb;39(2):316-323.
10. Stock C, Mons U, Brenner H. Projection of cancer incidence rates and case numbers until 2030: a probabilistic approach applied to German cancer registry data (1999–2013). Cancer epidemiology. 2018 Dec 1;57:110-9.
The Egypt National Population-based Cancer Registry (NPCR) was established in 2007 and is the only source for cancer incidence in the whole of Egypt. It routinely collects patient data from peripheral population-based registries in the cancer centers of the 5 governorates. Data include patient demographics, primary tumor site, tumor morphology, stage at diagnosis, and follow-up for vital status from over one million patients.
Amal Ibrahim, MD, DrPH
Emeritus Professor of Epidemiology
National Cancer Institute, Cairo University
Director National Cancer Registry Program
13, Street 207 Maadi,
Phone: +2 01006030480
1. Ibrahim AS, Mikhail NN, Khaled H. Current and future incidence of childhood cancer in Egypt: results of the national population-based cancer registry. J Cancer PrevCurr Res. 2018;9(6):316-21.
2. Ibrahim AS, Nazmi N. Cancer: the growing monster in Egypt. J Cancer Prev Curr Res. 2016;6(4):217.
3. Ibrahim AS, Mikhail NN. The evolution of cancer registration in Egypt: From proportions to population-based incidence rates. SECI Oncology. 2015; 3(1):23-43.
4. Azim HA, Ibrahim AS. Breast cancer in Egypt, China and Chinese: statistics and beyond. J Thorac Dis. 2014 Jul;6(7):864-6.
5. Ibrahim AS, Khaled HM, Mikhail NN, Baraka H, Kamel H. Cancer incidence in egypt: results of the national population-based cancer registry program. J Cancer Epidemiol. 2014;2014:437971.
6. Alieldin NH, Abo-Elazm OM, Bilal D, Salem SE, Gouda E, Elmongy M, Ibrahim AS. Age at diagnosis in women with non-metastatic breast cancer: Is it related to prognosis?. Journal of the Egyptian National Cancer Institute. 2014 Mar 1;26(1):23-30.
7. Soliman AS, Banerjee M, Lo AC, Ismail K, Hablas A, Seifeldin IA, Ramadan M, Omar HG, Fokuda A, Harford JB, Merajver SD. High proportion of inflammatory breast cancer in the Population-based Cancer Registry of Gharbiah, Egypt. Breast J. 2009 Jul-Aug;15(4):432-4.
8. Barchana M, Ibrahim AS, Mikhail N. MOS Epidemiology Group Special report: cancer incidence in Mediterranean populations. Mediterranean Oncology Society Web site. 2009.
9. Ibrahim AS, Ismail K, Hablas A, Hussein H, Elhamzawy H, Ramadan M. Cancer in Egypt, Gharbiah. Triennial Report of 2000–2002. Gharbiah Population-Based Cancer Registry. 2007.
10. Ibrahim AS. Descriptive statistics of urogenital cancer in Egypt and Asian area. Tunis Med. 2005 Dec;83 Suppl 12:15-7.
Kantar's latest NHWS, from South Korea and Taiwan, are the latest to be profiled in B.R.I.D.G.E. TO DATA. These databases provide demographic data, disease-specific measures on >165 conditions (including symptoms & comorbidities), patient-reported outcomes (including quality of life), patient attitudes, medication and healthcare resource utilization. The survey aims to collect data to show how patients view their health, their attitudes and behaviors, outcomes and their unmet needs.