Sep 21, 2021: Our 100th profile from the USA!

The Rheumatology Informatics System for Effectiveness (RISE) registry is a Qualified Clinical Data Registry (QCDR) developed by the American College of Rheumatology to help clinicians and researchers. RISE is the first and largest electronic health record (EHR)-enabled rheumatology registry collecting 2.6 Million records in the United States since 2014. It is a rheumatology-specific registry and includes patients with all medical conditions seen by a rheumatologist and all insurance types.

Rheumatology Informatics System for Effectiveness (RISE) Registry (USA)

Database Contact Data

Tracy Johansson, MS
Director, Registry Analytics
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: (404) 633-3777, ext. 105
Email: 
tjohansson@rheumatology.org

Alternate Contact

Amber Washington
Coordinator, Registry Analytics
American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
USA
Phone: (404) 633-3777, ext. 841
Email: awashington@rheumatology.org

References of Studies Using/Describing Database

1. Li J, Ringold S, Curtis JR, Michaud K, Johansson T, Yun H, Yazdany J, Schmajuk G. Effects of the SARS-CoV-2 global pandemic on U.S. rheumatology outpatient care delivery and use of telemedicine: an analysis of data from the RISE registry. Rheumatol Int. 2021 Aug 2. doi: 10.1007/s00296-021-04960-x. Epub ahead of print. PMID: 34338816.

2. Wallace ZS, Yun H, Curtis JR, Chen L, Stone JH, Choi HK. ANCA-associated Vasculitis Management in the United States: Data From the Rheumatology Informatics System for Effectiveness (RISE) Registry. J Rheumatol. 2021 Feb 1:jrheum.201330. doi: 10.3899/jrheum.201330. Epub ahead of print.

3. Yun H, Xie F, Chen L, Yang S, Ferri L, Alemao E, Curtis JR. Evaluation of the Effect of Diabetes on Rheumatoid Arthritis-related Outcomes in an Electronic Health Record-based Rheumatology Registry. J Rheumatol. 2020 Dec 1:jrheum.200486. doi: 10.3899/jrheum.200486. Epub ahead of print.
 
4. Schmajuk G, Li J, Evans M, Anastasiou C, Izadi Z, Kay JL, Hammam N, Yazdany J. RISE registry reveals potential gaps in medication safety for new users of biologics and targeted synthetic DMARDs. Semin Arthritis Rheum. 2020 Dec;50(6):1542-1548.

5. Hammam N, Evans M, Morgan E, Reimold A, Anastasiou C, Kay JL, Yazdany J, Schmajuk G. Treatment of Sarcoidosis in U.S. Rheumatology Practices: Data from ACR's Rheumatology Informatics System for Effectiveness (RISE) Registry. Arthritis Care Res (Hoboken). 2020 Oct 26. doi: 10.1002/acr.24496. Epub ahead of print.

6. Curtis JR, Xie F, Zhou H, Salchert D, Yun H. Use of ICD-10 diagnosis codes to identify seropositive and seronegative rheumatoid arthritis when lab results are not available. Arthritis Res Ther. 2020 Oct 15;22(1):242.

7. Schmajuk G, Li J, Evans M, Anastasiou C, Kay JL, Yazdany J. Quality of care for patients with SLE: data from the American College of Rheumatology's RISE registry. Arthritis Care Res (Hoboken). 2020 Sep 16. doi: 10.1002/acr.24446. Epub ahead of print.

8. Izadi Z, Schmajuk G, Gianfrancesco M, Subash M, Evans M, Trupin L, Yazdany J. Rheumatology Informatics System for Effectiveness (RISE) Practices See Significant Gains in Rheumatoid Arthritis Quality Measures. Arthritis Care Res (Hoboken). 2020 Sep 16:10.1002/acr.24444. doi: 10.1002/acr.24444. Epub ahead of print. 

9. Yun H, Chen L, Xie F, Patel H, Boytsov N, Zhang X, Curtis JR. Do Patients With Moderate or High Disease Activity Escalate Rheumatoid Arthritis Therapy According to Treat-to-Target Principles? Results From the Rheumatology Informatics System for Effectiveness Registry of the American College of Rheumatology. Arthritis Care Res (Hoboken). 2020 Feb;72(2):166-175.

10. Yazdany J, Bansback N, Clowse M, Collier D, Law K, Liao KP, Michaud K, Morgan EM, Oates JC, Orozco C, Reimold A, Simard JF, Myslinski R, Kazi S. Rheumatology Informatics System for Effectiveness: A National Informatics-Enabled Registry for Quality Improvement. Arthritis Care Res (Hoboken). 2016 Dec;68(12):1866-1873.

Subscribe to